NurseLine Journal
Vol 4 No 1 (2019): May 2019

Burden of Parents in Children with Disability at Sekolah Luar Biasa Negeri Cileunyi

Yusi Desriyani (Faculty of Nursing Universitas Padjadjaran)
Ikeu Nurhidayah (Faculty of Nursing Universitas Padjadjaran)
Fanny Adistie (Fakultas Keperawatan Unpad)



Article Info

Publish Date
04 Jul 2019

Abstract

Children with disabilities are children who have limited whether physical, intellectual, mental, sensory, and multiple disability. Children with disabilities tend to have poor quality of life due to low ability fulfilled basic needs independently. Therefore, they need special treatment from their parents and that could be the reasons of burden for parents as primary caregiver. This research aims to find the general burden of parents in disabilities children who attended Sekolah Luar Biasa (SLB) Negeri Cileunyi. This is a quantitative descriptive research with cross sectional approach. The population in this research were 158 parents (father/mother) of children with disability. The sample in this research was obtained 67 people by using convenience sampling technique. The research used Zarit Burden Interview (ZBI) as research instrument. The data have been obtained and analyzed by univariate analysis. The results will be analyzed by using frequency distribution. The result showed that 46.3% means little or no burden, 37.3% means mild to moderate burden, 14,9% means moderate to severe burden and 1,5% means severe burden. The conclusions of this research show that almost half of respondents are in the category of little or no burden. However, there were still respondents who had a severe burden, this is due to parents and children characteristics, poor self-control and lack of social support. Nurses need to provide family center care such as counseling and providing health education to parents with disabilities children and optimize existing support groups.

Copyrights © 2019






Journal Info

Abbrev

NLJ

Publisher

Subject

Nursing

Description

NurseLine Journal (NLJ) is a nursing scientific journal article and publishes by Nursing School, University of Jember in collaboration with National Nurse Association of Indonesia in Jember (DPD PPNI Kabupaten Jember). NLJ have a p-ISSN 2540-7937 and e-ISSN 2541-464X. NurseLine Journal is published ...