Belitung Nursing Journal
Vol. 9 No. 2 (2023): March - April

Understanding the experiences of caregivers of HIV-exposed children under five: A phenomenological inquiry

Happy Hayati (Faculty of Nursing, Universitas Indonesia, Depok, West Java, Indonesia)
Nani Nurhaeni (Faculty of Nursing, Universitas Indonesia, Depok, West Java, Indonesia)
Dessie Wanda (Faculty of Nursing, Universitas Indonesia, Depok, West Java, Indonesia)
Nuraidah Nuraidah (Rumah Sakit Penyakit Infeksi Sulianti Saroso, DKI Jakarta, Indonesia)



Article Info

Publish Date
18 Apr 2023

Abstract

Background: Children born to mothers with HIV require special care from the womb to the postnatal period, and caregivers involved in their care face several challenges. Objective: This study aimed to explore caregivers’ experiences providing care for HIV-exposed children under five. Methods: This study employed a phenomenological approach. Ten caregivers of HIV-exposed children living in Jakarta, Indonesia, were selected using snowball techniques. Online in-depth interviews were conducted to collect data from September 2021 to July 2022, and thematic analysis using Colaizzi’s method was performed for data analysis. Results: The study involved ten caregivers (nine females and one male) aged between 23 and 42 years. Seven of them were mothers who tested HIV-positive, while one was an adoptive father, one was a mother’s sister, and one was an aunt of HIV-exposed children. The majority of them were housewives and had a low educational background. Three themes were generated: (i) disease-transmission foreboding, (ii) prejudice against mothers and children exposed to HIV, and (iii) seeking support. Conclusion: Caring for HIV-exposed children poses emotional and physical challenges for caregivers, necessitating support from health professionals and peer groups. Nurses play essential roles in improving caregiver well-being and supporting optimal growth and development in HIV-exposed children under five by designing intervention programs. Furthermore, to enhance home-based HIV care in Indonesia, the government must implement social interventions that target families with limited resources.  

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Journal Info

Abbrev

bnj

Publisher

Subject

Nursing

Description

BNJ contributes to the advancement of evidence-based nursing, midwifery and healthcare by disseminating high quality research and scholarship of contemporary relevance and with potential to advance knowledge for practice, education, management or policy. BNJ welcomes submissions of evidence-based ...