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Shalsa Agustin
Universitas Sebelas April
Nursing

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Parents' Experiences In Facing The Challenges Of Caring For Children With Autism In SLBN B PEMBINA At The Province Level Of West Java 2025 Agri Azizah Amalia; Puji Nurfauziatul Hasanah; Shalsa Agustin
HealthCare Nursing Journal Vol. 8 No. 2 (2026): HealthCare Nursing Journal
Publisher : LP3M Universitas Muhammadiyah Tasikmalaya

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.35568/healthcare.v8i2.7981

Abstract

Caring for a child with autism presents a complex and challenging experience for parents. Autism is a neurodevelopmental disorder that requires special attention and treatment, not only in terms of therapy and education but also from the emotional, social, and economic aspects of parents. This study aims to explore in depth the experiences of parents in facing the challenges of caring for a child with autism at the West Java Province-level Special Needs School for Children with Autism (SLBN B Pembina). This study used a qualitative approach with descriptive phenomenology methods and Colaizzi analysis techniques. Data were obtained through in-depth interviews with four parents who met certain criteria. The results of the study revealed five main themes, namely: 1) Initial emotional response of parents to the child's condition, 2) non-compliance in undergoing therapy, 3) financial burden during child care, 4) efforts to overcome difficulties, and 5) positive child development. These findings indicate that the experience of parents in caring for a child with autism is filled with emotional, social, and financial dynamics that require patience and resilience. Social support and active involvement in therapy are important factors in improving family well-being and child development.
Co-Authors Agri Azizah Amalia Hasanah, Puji Nurfauziatul