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Dewi Mustikaningsih
Universitas Aisyiyah Bandung
Dentistry Health Professions Medicine & Pharmacology Nursing Public Health

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Exploring Breast Cancer Stigma Among Family Caregivers in Indonesia: A Cross-Sectional Study Dewi Mustikaningsih; Popy Siti Aisyah; Maya Sukmayati
Journal of Public Health Sciences Vol. 5 No. 03 (2026): In Press - Journal of Public Health Sciences
Publisher : The Indonesian Institute of Science and Technology Research

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.56741/IISTR.jphs.002214

Abstract

Stigma among family-caregivers of women with breast cancer remains a poorly understood barrier to quality care, particularly in low-and middle-income countries (LMICs). Despite their crucial role in supporting patients, evidence on caregiver stigma remains limited. This study aimed to examine stigma among family-caregivers in Indonesia, identify the predominant stigma domains, and explore associated sociodemographic factors. A cross-sectional study was conducted among 92 family-caregivers recruited from 80 Community Health Centers in Bandung, Indonesia. Participants completed a questionnaire on sociodemographic characteristics and the Family Caregiver Stigma Questionnaire, comprising four domains: internal stigma, social isolation, perceived stigma, and reactions. Data were analyzed using descriptive statistics, Friedman and Bonferroni post hoc tests, and multiple linear regression. Overall stigma was high, with a median score of 1.00, 84.6% of the maximum score. Pairwise comparisons showed that internal stigma and social isolation were significantly more prominent than the other stigma domains. No significant differences were found between perceived stigma and reactions or between internal and perceived stigma. Multiple linear regression showed no significant associations between stigma and age, sex, education, or relationship with the patient p > 0.05. These findings indicate that caregiver stigma is primarily characterized by internalized negative beliefs and social isolation rather than demographic characteristics. This study provides novel evidence on the multidimensional nature of caregiver stigma in Indonesia and highlights priority targets for intervention. Culturally appropriate psychoeducational and family-centered strategies should focus on reducing internal stigma and strengthening social connectedness. Future studies should examine psychosocial determinants to develop more targeted anti-stigma interventions.
Building Holistic Well-Being: Islamic Physical, Psychological, and Spiritual Experiences in Breast Cancer Survivors Dewi Mustikaningsih; Nurrohmah; Desvika Putridewa Bernanda; Ilham Anugrah Hidayatullah
Journal of Public Health Sciences Vol. 5 No. 01 (2026): Journal of Public Health Sciences
Publisher : The Indonesian Institute of Science and Technology Research

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.56741/IISTR.jphs.001378

Abstract

Breast cancer is a leading cause of death for women in most countries in Indonesia. Breast cancer survivors are the primary subjects of most studies, but little attention is paid to the impact of the procedure, especially the post-mastectomy experience. We examined the physical, psychological, and Islamic spiritual aspects of breast cancer survivors who have undergone mastectomy. In this qualitative study, we recruited 21 women with breast cancer who had undergone mastectomy in a community in West Java Province. Participants were interviewed, recorded, and transcribed verbatim. Thematic analysis was conducted using Atlas-ti7. The main themes that emerged identified physical issues such as pain, fatigue, swelling, numbness, and stiffness at the surgical site; psychological issues such as loss of femininity, low self-esteem, sadness, worry, anxiety, and anger; Islamic spiritual issues such as complaining to Allah SWT, feelings of abandonment, and questioning Allah SWT's supreme power; and Islamic religious spiritual coping. Post-mastectomy breast cancer survivors experienced significant stress due to frequent hospital visits for check-ups and other procedures. We recommend including strategies for overcoming problems in the physical aspect with physical exercise, strategies for overcoming problems in the psychological aspect with breathing exercises, self-talk techniques, strategies for overcoming problems in the Islamic spiritual aspect with prayer, prayer, dhikr, Islamic caring, mindfulness for breast cancer survivors after undergoing mastectomy to improve the overall physical, psychological, and Islamic spiritual well-being.
Co-Authors Desvika Putridewa Bernanda Ilham Anugrah Hidayatullah Maya Sukmayati Nurrohmah Popy Siti Aisyah