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Level of knowledge and awareness among parents regarding the care of children with thalassaemia Makajil, Johari Daud; Taising, Zerah; Thomas, Deena Clare; Nain, Rose A
Jurnal Ilmu Kesehatan dan Kesehatan Vol 8 No 01 (2024): FEBRUARY
Publisher : UNUSA Press

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.33086/mhsj.v8i01.5299

Abstract

Background This study assessed parental knowledge and awareness of children with thalassemia. Thalassemia care among 65 parents at a Kota Kinabalu hospital focuses on parental knowledge and awareness of children with thalassemia. The objectives were to identify parents' level of knowledge of thalassemia care and assess their awareness of specific care needs. Methods: This was a descriptive, cross-sectional study of the thalassemia families of patients at Likas Women and Children's Hospital, Kota Kinabalu, Sabah. Using random sampling. The study involved 65 respondents from Sabah Women and Children in Kota Kinabalu, Sabah. Data from questionnaires and tests were processed using SPSS version 24, with descriptive statistics analysing frequency and percentage, expressed as mean ± standard deviation.  Results Most respondents had a high level of knowledge about thalassemia, an inherited disease caused by insufficient red blood cell supply. They understood that untreated conditions could deteriorate thalassemia patients but could lead normal lives with proper therapy. They also knew that thalassemia could be detected through blood tests and that blood donation could be beneficial. However, they had moderate knowledge of the connection between thalassemia and anaemia, blood transfusions as the only treatment, and their ability to identify and avoid thalassemia during pregnancy. Conclusion This study emphasises the need for education, community engagement, and healthcare involvement to enhance the understanding and support of individuals with thalassemia, suggesting that comprehensive strategies, including education programs and collaborations with local organisations, can be implemented.
Analysis Knowledge of Spiritual Care and HbA1c Among Individual Living with Diabetes Mellitus Agustina, Dwi; Dewi, Ratna Sari; Makajil, Johari Daud
Fundamental and Management Nursing Journal Vol. 8 No. 1 (2025): VOLUME 8 ISSUE 1 2025
Publisher : Universitas Airlangga

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.20473/fmnj.v8i1.62597

Abstract

Introduction: Diabetes mellitus (DM) is a metabolic disease represented by hypoglycemia due to abnormalities in insulin secretion, insulin action, or both. Normal blood glucose levels influence the healing process for DM complications. Reducing blood glucose levels can be achieved by releasing the hormone endorphin, secreted when the patient is calm and comfortable. One way to achieve self-calm is by getting spiritual care. Spiritual care is a process of healing by fulfilling spiritual needs. The objective assessment of DM is seen in hematological parameters, one of them is Glycate Haemoglobin (HbA1c). This study to identifying the analysis between the knowledge of spiritual care and HbA1c assessment. Methods: This was a quantitative research correlation analysis design using person correlation. The dependent variable is the patient's knowledge of spiritual care, while the independent variable is HbA1C levels. The sample is 32 from 115 DM patients with new cases in RSUD Cibinong, Bogor 2022. questionnaire used to collect the knowledge of spiritual care and HbA1c assessment was taken at the same time. Results: The results showed that the majority were female (68.8%), aged 56-65 years (46.9%), knowledge level high category (56.3%), and HbA1c levels were normal (81.3%.) Bivariate analysis has significant results in identifying the relationship between the knowledge of spiritual care and HbA1c levels in DM patients (p-value 0.02). Conclusions: This study concludes that spirituality care can influence HbA1c assessment to a normal level. Spirituality care could be non-pharmacological therapy for DM patients.