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Journal : Holistic Nursing PLUS

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ASSESSMENT OF THE QUALITY OF LIFE OF CHILDREN WITH CHRONIC KIDNEY DISEASE IS IMPORTANT INFORMATION IN PROVIDING SERVICES: SYSTEMATIC REVIEW Purnamawati, IGA Dewi; HASSAN, HAFIZAH CHE HASSAN; SANSUWITO, TUKIMIN BIN SANSUWITO
Holistic Nursing Plus Vol. 1 No. 2 (2023): Holistic Nursing Plus
Publisher : Sahabat Publikasi Kuu

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.58439/hnp.v1i2.181

Abstract

ABSTRACT Background: Children with chronic kidney disease (CKD) continue to face significant health challenges, with a growing morbidity rate that lowers their quality of life (QoL). Children with CKD experience complex problems physically, emotionally, socially and at school, requiring different problem solving for each child. At the assessment stage, assessing the quality of life is very important, the results of which determine the next steps regarding the child's care and treatment. Purpose: The aim of this research is to determine the best service delivery based on assessing the quality of life of CKD children based on research results. Methods: Systematic review study was for children determine the best service delivery based on assessing the QoL with CKD. Electronic database and reference list of relevant articles from 2016 to 2023. Guided by PRISMA guidelines, five electronic database PubMed, EBSCO, PROQUEST, Science Direct, and Google Scholar-were searched for relevant articles published in Indonesia and English. Results: From 11 studies, it was found that the majority of children with CKD had a low quality of life in terms of physical, emotional, social and academic function, even though the quality of life of children who underwent a renal transplant (RT) was better than children who underwent a RT, undergoing hemodialysis (HD) and peritoneal dialysis (PD), to improve the QoL proper care is needed, one of which is camping activities by camping, children assess their quality of life positively, with self-esteem as the most felt dimension. Short stature, low family income, use of dialysis, and depression are risk factors associated with lower overall QoL. Conclusion: Research reveals that almost all children with CKD score poorly on QoL assessments. Children with CKD experience a poor quality of life, and require team and comprehensive work to improve the child's quality of life. Quality of life assessment is a reflection of the need for appropriate care and treatment for the child and family. Keywords: Quality of life, Children, Chronic kidney disease
Validity and Reliability of the Peds QLᵀᴹ 4.0 Generic Core Scale in Indonesian Version in Children with Chronic Kidney Disease Undergoing Hemodialysis in the Dialysis Unit of Cipto Mangunkusumo Hospital Purnamawati, IGA Dewi
Holistic Nursing Plus Vol. 2 No. 2 (2024): Holistic Nursing Plus
Publisher : Sahabat Publikasi Kuu

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.58439/hnp.v2i2.256

Abstract

Background: The Peds QLᵀᴹ 4.0 Generic Core Scales is a modular instrument for measuring health-related quality of life (HR-QoL) in children and adolescents aged 2 to 18 years. The Peds QLᵀᴹ 4.0 GCS consists of 23 items applicable to healthy school and community populations and populations of children with acute and chronic health conditions. The Pediatric Quality of Life Inventory (Peds QLᵀᴹ 4.0 Generic Core Scales) is a modular instrument designed to measure health-related quality of life (HR-QoL) in children and adolescents aged between two and thirteen years. It measures health-related quality of life (HR-QoL) in children and adolescents with progressive chronic kidney disease (CKD), regardless of the underlying etiology, due to the need for regular follow-up visits, strict medication regimens, and dietary intake. Purpose: This study aimed to evaluate the validity and reliability of the Peds QLᵀᴹ 4.0 GCS Indonesian version in children with CKD undergoing hemodialysis (HD) in the Dialysis Unit of Cipto Mangunkusumo Hospital. Methods: This type of research is analytical and observational in nature. The Peds QLᵀᴹ 4.0 GCS were administered to 30 children and 30 parents recruited from a pediatric dialysis unit. This study was conducted at a pediatric dialysis unit at Cipto Mangunkusumo Hospital Jakarta, Indonesia, in Mei-Juni 2024. Validity was tested using Pearson product moment, and reliability was tested using Cronbach's alpha. Results: A total of 30 children and 30 parents undergoing hemodialysis agreed to participate. The average age of the patients was 8–18 years old. Cronbach’s alpha coefficient for the total Peds QLᵀᴹ 4.0 GCS (α child self-report 0.918; α parent proxy report 0.928). Conclusion: The Indonesian versions of The Peds QLᵀᴹ 4.0 GCS were valid and reliable instruments to measure the HR-QoL of children with CKD on hemodialysis. The Peds QLᵀᴹ 4.0 GCS can be applied to provide relevant evidence that helps the function of quality of life among Indonesian patients on hemodialysis in evaluating health programs.
Co-Authors Agus Wibowo Agus Wibowo Aida Rizki Kurniawan Bunga Grace Rehulina Happy Hayati HASSAN, HAFIZAH CHE HASSAN Indah Safitriani Indria Rifka Fajri Ivony Asih Munte Karimah, Farradina Vidya Krisna Yetti Novianti, Irgiani Fitri Rani Murtiani Safitriani, Indah Sahla Rizky SANSUWITO, TUKIMIN BIN SANSUWITO Siti Nurhayati Zuraida Sukma Abdillah