Jurnal Ilmiah Dan Karya Mahasiswa
Vol. 4 No. 4 (2026): Agustus : JURNAL ILMIAH DAN KARYA MAHASISWA (JIKMA)

Fenomena Perawatan Anak Thalasemia di Rumah dari Perspektif Ibu : Studi Fenomenologi

Fadilla Widodo Putri (Universitas Duta Bangsa Surakarta)
Hani Risnawati (Universitas Duta Bangsa Surakarta)
Adi Buyu Prakoso (Universitas Duta Bangsa Surakarta)



Article Info

Publish Date
20 Aug 2026

Abstract

Background: Thalassemia is a chronic genetic disorder that requires lifelong blood transfusion and long-term treatment, making mothers the primary caregivers responsible for caring for their children at home. Objective: This study aimed to explore mothers' experiences in caring for children with thalassemia at home among patients at Dr. Moewardi Regional General Hospital, Surakarta. Methods: This study employed a qualitative approach with a phenomenological design. Five mothers were selected as participants using purposive sampling. Data were collected through in-depth interviews and analyzed using the Colaizzi method. Results: The study identified four main themes: mothers' efforts in caring for children with thalassemia at home, family support and mothers' emotional responses, challenges experienced by mothers, and mothers' hopes for their children's health and future. The findings showed that mothers performed various caregiving activities, including monitoring their children's condition, ensuring treatment adherence, and providing emotional support. Mothers also experienced physical and emotional challenges in managing their children's needs. Conclusion: Mothers' experiences in caring for children with thalassemia are complex and multidimensional. Family support and family-centered health services play an important role in helping mothers fulfill their roles as primary caregivers. Appropriate education, emotional support, and continuous healthcare assistance are needed to strengthen mothers' caregiving capacity and improve children's quality of life.

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Journal Info

Abbrev

JIKMA

Publisher

Subject

Humanities Computer Science & IT Decision Sciences, Operations Research & Management Economics, Econometrics & Finance Environmental Science Languange, Linguistic, Communication & Media

Description

Ruang lingkup karya yang diterbitkan mencakup Multidisiplin diantaranya yaitu: Ilmu Sosial Humaniora, Politik, Pendidikan, Ilmu Teknik, Teknik Elektro dan Informatika, Desain Komunikasi Visual, Manajemen, Ekonomi dan Akuntansi, Kewirausahaan dan ...