Humaniora
Vol 38, No 1 (2026)

Caught in Between: Family Caregivers and the Ethics of Severe Mental Illness Care

Aan Kurniawan (1. Universitas Indonesia
2. National Research and Innovation Agency)

Irwan Martua Hidayana (Department of Anthropology, Universitas Indonesia)
Bagus Hargo Utomo (Indonesian Community for Schizophrenia Care)



Article Info

Publish Date
02 Oct 2026

Abstract

Family caregiving for individuals with severe mental illness (SMI) is frequently regarded as a central element of community-based mental health systems, especially in settings where services are limited or fragmented. This study investigates the practice and negotiation of caregiving in everyday life in Jakarta, Indonesia, utilising an ethnographic case study approach. In-depth interviews were conducted with family caregivers recruited through a peer-support network. Five cases are presented to examine how caregivers make decisions over time in response to crisis, relapses, treatment, household demands, and evolving relationships. Drawing on care ethics, particularly Joan Tronto's framework, the analysis demonstrates that caregiving is not a static role or a fixed set of tasks. Rather, it is a context-dependent practice that requires ongoing judgment, with caregivers continuously adjusting their actions amid risk, ambiguity, and constraint. Across cases, care takes multiple forms, including direct daily tasks, monitoring and guidance, household adaptation, and delegation to paid helpers. The findings indicate that care evolves over time through turning points, periods of stability, and episodes of disruption. This article contends that “good care” cannot be defined solely by symptom control or clinical improvement. In the cases examined, care also encompasses maintaining social relationships, preserving household stability, managing uncertainty, and sustaining the caregiver’s capacity to continue providing care. By tracing these everyday negotiations, the study contributes to care ethics and mental health research by illustrating how family caregiving is enacted, contested, and sustained within unequal social and institutional contexts.

Copyrights © 2026






Journal Info

Abbrev

jurnal-humaniora

Publisher

Subject

Humanities

Description

Humaniora focuses on the publication of articles that transcend disciplines and appeal to a diverse readership, advancing the study of Indonesian humanities, and specifically Indonesian or Indonesia-related culture. These are articles that strengthen critical approaches, increase the quality of ...