Nenden Nur Asriyani Maryam
Department of Pediatric Nursing, Faculty of Nursing, Universitas Padjadjaran, Sumedang, West Java, Indonesia

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Pengalaman Orang Tua Selama Perawatan Anak di Pediatric Intensive Care Unit (PICU) Sri Hendrawati; Septa Permana; Nenden Nur Asriyani Maryam
SENTRI: Jurnal Riset Ilmiah Vol. 5 No. 1 (2026): SENTRI : Jurnal Riset Ilmiah, Januari 2026
Publisher : LPPM Institut Pendidikan Nusantara Global

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.55681/sentri.v5i1.5547

Abstract

Care for children in the Pediatric Intensive Care Unit (PICU) is a stressful experience not only for the child but also for parents. The complex PICU environment, the use of advanced medical equipment, and the child’s critical condition can affect parents’ emotional, psychological, and spiritual well-being. Therefore, a deep understanding of parents’ experiences during their child’s care in the PICU is essential as a foundation for implementing family-centered care (FCC). During PICU hospitalization, parents strive to balance anxiety and hope, with clear and empathetic communication from healthcare professionals identified as a primary support need. This study aimed to explore parents’ experiences during their child’s care in the PICU. A qualitative descriptive design was employed. The participants consisted of five parents (three mothers and two fathers) whose children were treated in the PICU. Data were collected through in-depth interviews and analyzed using thematic analysis. The analysis identified six main themes: strong emotional reactions when the child was first admitted to the PICU; parents’ feelings of role loss during the child’s hospitalization; nurses as a source of safety and reassurance; hope and spirituality as coping strategies; parents’ desire to be more involved in their child’s care; and unmet parental needs during PICU care, particularly related to information, emotional support, and orientation to PICU routines. Spirituality emerged as an important parental need within the Indonesian cultural context and played a significant role in parents’ coping processes. In conclusion, parents’ experiences during their child’s care in the PICU are complex and shaped by interactions with healthcare providers, fulfillment of informational needs, involvement in care, and emotional and spiritual support. These findings highlight the importance of implementing holistic and culturally sensitive family-centered care in PICU nursing practice.
The Role of Family in Caring for Critically Ill Children in the Intensive Care Unit: A Narrative Review Sri Hendrawati; Nenden Nur Asriyani Maryam; Windy Rakhmawati; Septa Permana
HealthCare Nursing Journal Vol. 7 No. 2 (2025): HealthCare Nursing Journal
Publisher : LP3M Universitas Muhammadiyah Tasikmalaya

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.35568/healthcare.v7i2.6528

Abstract

Critically ill children admitted to intensive care units experience complex physical and emotional challenges, not only for themselves but also for their families. Family-centered care (FCC) has become a cornerstone in children's critical care, emphasizing collaboration, respect, and shared decision-making between healthcare teams and families. Despite growing recognition of its benefits, the practical roles of families in children's intensive care unit settings remain diverse and sometimes underutilized across different healthcare systems and cultural contexts. This research aims to identify the family's role in caring for critically ill children in the intensive care unit. This research method uses narrative review. Articles were collected from Pubmed, ScienceDirect, EBSCOhost, and Google Scholar. The keywords used were critically ill children OR children in PICU OR children in NICU AND family involvement OR role of family OR family participation OR family-centred care OR FCC AND intensive care unit OR critical care with boolean "OR" and "AND". Inclusion criteria were free full-text, years of publication between 2020-2025, and articles in Indonesian or English. The search results obtained 11.345 articles, and only 10 articles met the criteria, which were then analyzed. Across various studies, families, particularly parents, emerged as essential components in the care of critically ill children. Their roles extended beyond traditional caregiving and encompassed several interconnected domains: emotional support and security, physical and emotional presence, advocacy and care partnership, participation in daily care, communication and shared decision-making, creating a sense of home and normalcy, coping and post-discharge involvement. Families contribute not only emotional and physical support but also advocacy, caregiving participation, and partnership in decision-making, all of which enhance patient outcomes and support holistic care delivery. Nurses are pivotal in operationalizing family-centred care principles and ensuring meaningful family involvement in caring for critically ill children in the intensive care unit.