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All Journal Acta Neurologica Indonesia
Gandra, Agus Suwandi
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Medicine & Pharmacology Neuroscience Public Health

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Effect of Community-Based Rehabilitation on Caregivers of Palliative Stroke and Geriatric Patients: Pilot Study Harini, Melinda; Nathania, Eugene; Meilinda, Astrid; Gandra, Agus Suwandi; Ghassani, Atika; Ayuningtyas, Putu Duhita; Hasanah, Wenny Wirdatul; Kusumaningsih, Widjajalaksmi; Sukmana, Deddy Tedja; Tamin, Tirza Zainuddin; Setiani, Maina; Yuliandra, Rofi; Lauvita, Jenny; Kweri, Kazya; Nadobudskaya, Syifa Muzalifa
Acta Neurologica Indonesia Vol. 4 No. 3 (2026): Acta Neurologica Indonesia
Publisher : Departemen Neurologi Fakultas Kedokteran Universitas Indonesia

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.69868/ani.v4i3.136

Abstract

Introduction : Community-based rehabilitation (CBR) effectively supports palliative care patients, including those with cerebrovascular disease (CVD/stroke), though impacts vary by local resources. Caregiver burden is common among families of palliative patients with cardiovascular and geriatric conditions. This study evaluated a primary health center–based CBR programme’s effects on both caregiver & patient. Objective : To describe and assess the clinical and statistical significance of CBR in reducing caregiver burden, improving quality of life (QoL), knowledge, and patient functional outcomes in palliative care. Material and methods : This retrospective study analyzed CBR data from Universitas Indonesia. Four validated tools were used: Zarit Burden Interview (ZBI), EQ-5D-5L/EQ-VAS (caregiver and patient QoL), caregiver knowledge questionnaire, Barthel Index (BI). Paired pre-post analyses were performed. Result : Most caregivers cared for post stroke patients. Caregiver EQ-VAS improved significantly (+30.56±39.25; p=0.048). Non-significant but clinically meaningful trends were observed in ZBI reduction (−4.33±8.38; p=0.159) and caregiver knowledge gain (median +7; p=0.050). Patient BI improvement (+1.78±1.30; p=0.073) and patient EQ-VAS increase (median +10; p=0.089). Discussion : CBR training enhanced caregiver QoL and produced consistent positive trends across functional and psychosocial measures for palliative patients in resource-limited community settings, suggesting clinical benefit and feasibility for primary care implementation despite limited statistical significance. Conclusion : CBR showed potential benefit in improving caregiver QoL and patient outcomes in primary palliative care. Larger prospective studies are needed.
Co-Authors Ayuningtyas, Putu Duhita Ghassani, Atika Harini, Melinda Hasanah, Wenny Wirdatul Kweri, Kazya Lauvita, Jenny Meilinda, Astrid Nadobudskaya, Syifa Muzalifa Nathania, Eugene Setiani, Maina Sukmana, Deddy Tedja Tamin, Tirza Zainuddin Widjajalaksmi Kusumaningsih, Widjajalaksmi Yuliandra, Rofi