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All Journal Belitung Nursing Journal Media Publikasi Promosi Kesehatan Indonesia (MPPKI)
Annastasia Ediati
Faculty of Psychology, Universitas Diponegoro, Semarang, Indonesia
Nursing Public Health

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Factors influencing illness uncertainty in parents of children with congenital adrenal hyperplasia in a developing country: A cross-sectional study Irene Astrid Larasati; Fanti Saktini; Tri Indah Winarni; Annastasia Ediati; Agustini Utari
Belitung Nursing Journal Vol. 9 No. 1 (2023): January - February
Publisher : Belitung Raya Foundation, Indonesia

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.33546/bnj.2379

Abstract

Background: Illness uncertainty in parents of children with congenital adrenal hyperplasia (CAH) refers to parents’ inability to create meaning in events related to their children having CAH. This may influence their role in caring for children with CAH. Objective: The study aimed to determine factors associated with illness uncertainty experienced by parents of children with CAH in a developing country. Methods: A cross-sectional study was conducted on 80 parents (43 mothers and 37 fathers) of children with CAH, selected using consecutive sampling methods. The Parent’s Perception of Uncertainty Scale (PPUS) was used to measure the illness uncertainty levels. Data were collected from March 2020 to October 2020. Independent t-test and chi-square test were used to determine factors (parent’s gender, age, educational level, monthly household income, number of children with CAH, history of child death due to CAH, child’s age when first diagnosed with CAH, duration of therapy, gender change, type of CAH (salt wasting/SW or simple virilizing/SV), current gender, and genitoplasty) influencing illness uncertainty in parents. Results: The mean scores of PPUS were 42.3 ± 12.91, and the majority of parents had a low PPUS score (49; 61%). Parents of children with SW-CAH showed higher uncertainty (44.2 ± 12.77) than those with SV-CAH (32.6 ± 8.86; p = 0.003). Parents who lost their children due to CAH were more likely to report a moderate illness uncertainty than parents who never experienced child mortality due to CAH (χ2(1, 80) = 4.893; p = 0.027). Conclusion: The factors significantly affecting uncertainty in parents of children with CAH determined in this study might help healthcare professionals, including nurses, to play a pivotal role in giving pertinent information regarding their children’s health, disease, and therapy to help manage parental uncertainty.
Body Image Dissatisfaction and Hormonal Therapy Effects in Indonesian Females with Turner Syndrome Dinda Tiara Firdaus; Annastasia Ediati; Achmad Zulfa Juniarto
Media Publikasi Promosi Kesehatan Indonesia (MPPKI) Vol. 9 No. 3 (2026)
Publisher : Fakultas Kesehatan Masyarakat, Universitas Muhammadiyah Palu

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.56338/mppki.v9i3.8970

Abstract

Introduction: Turner Syndrome (TS) is a genetic disorder that impairs the development of secondary sexual characteristics and may negatively affect body image. Hormonal therapy is administered to stimulate puberty, but its impact on body image remains inconclusive. Data from Indonesia is still limited. This study aims to analyze the differences in body image assessment between females with and without TS, and to evaluate the relationship between the duration of hormonal therapy and body image perception in females with TS. Methods: A cross-sectional case-control study was conducted at CEBIOR, Faculty of Medicine, Diponegoro University. Twenty-eight females with TS, aged 14-31 years, participated. Body image was assessed using a validated questionnaire, and secondary sexual characteristics were evaluated using the Tanner stage. Data were analyzed using the Mann-Whitney U test and Spearman's correlation. Results: The mean Tanner stage was increased from 3.6 ± 1.1 to 6.2 ± 2.7 after hormonal therapy. No significant difference in overall body image dissatisfaction was found between females with TS and controls (MdnTS = 74.5 [34–120]; MdnC = 68.0 [31–109]; p = 0.512). However, females with TS showed significantly higher dissatisfaction scores in the sexual domain (MdnTS = 11 [4–20]; MdnC = 7.5 [4–16]; p = 0.013) and in height–weight perception (MdnTS = 7 [3–10]; MdnC = 6 [2–8]; p = 0.014). No significant correlation was found between therapy duration and body image scores, although a weak negative trend was observed for height–weight perception (r = –0.373; p = 0.051). Conclusion: Hormonal therapy increased Tanner stage but did not reduce overall body image dissatisfaction. Females with TS reported greater dissatisfaction in specific domains. These findings suggest that psychosocial interventions are crucial for enhancing body image and overall well-being in this population.
Co-Authors Achmad Zulfa Juniarto Agustini Utari Dinda Tiara Firdaus Fanti Saktini Irene Astrid Larasati Tri Indah Winarni