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All Journal Psikohumaniora: Jurnal Penelitian Psikologi
Badayai, Abdul Rahman Ahmad
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Challenges in nurturing HFASD teens: Emotional crises and expectations of mothers in Malaysia Mohd Fazree, Shima Dyana; Aun, Nur Saadah Mohamad; Zakaria, Siti Marziah; Badayai, Abdul Rahman Ahmad; Daud, Tuti Iryani Mohd; Idris, Idayu Badilla
Psikohumaniora: Jurnal Penelitian Psikologi Vol. 8 No. 2 (2023)
Publisher : Faculty of Psychology and Health - Universitas Islam Negeri Walisongo Semarang

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.21580/pjpp.v8i2.17078

Abstract

The transition to young adulthood brings distinctive challenges for high-functioning autism spectrum disorder (HFASD) children and their families, especially post-formal education. This qualitative case study research aims to explore hurdles faced by mothers navigating HFASD adolescents. The result shows that financial strain, stigma, and loneliness loom large, compounded by emotional crises tied to uncertainty and stress about their children's future. Mothers advocate for multiple work opportunities and independence, underscoring a notable gap between HFASD teens' needs, available services, and community resources. The study enlightened mothers and inspired proactive measures, emphasizing the imperative for a collective, interdisciplinary effort to align services comprehensively—addressing residential, employment, and social aspects—to enhance the quality of life for HFASD individuals.
Demographic factors as mediators between socio-psychological variables and psychological well-being in parents of children with Down syndrome Putra, Bima Maulana; Badayai, Abdul Rahman Ahmad; Soedjiwo, Novena Ade Fredyarini; Suroyo, Suroyo; Guidi, Elisa; Zakaria, Siti Marziah
Psikohumaniora: Jurnal Penelitian Psikologi Vol. 10 No. 1 (2025)
Publisher : Faculty of Psychology and Health - Universitas Islam Negeri Walisongo Semarang

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.21580/pjpp.v10i1.25583

Abstract

Parents of children with Down syndrome in Riau, Indonesia, encounter distinct psychological challenges, and the influence of demographic factors warrants further exploration. This study investigates the mediating role of demographics in the psychological well-being of 351 parents, employing a cross-sectional, quantitative design with purposive sampling. Standardized scales assessed psychological well-being, self-acceptance, stigma, and social support, which were analyzed using Bayesian methods. Lower self-acceptance significantly and directly correlated with poorer psychological well-being (β = −.1491, p = .0016), while higher parental education significantly predicted greater self-acceptance (β = .0119, p < .001), which in turn positively impacted well-being. Notably, older children were significantly associated with reduced social support (β = −.0101, p = .0010), and lower social support directly linked to reduced psychological well-being (β = −.1526, p = .0015). In theoretical terms, the study contributes by elucidating the indirect pathways through which demographic factors shape parental well-being within the Indonesian context. Practically, the findings underscore the need for culturally sensitive interventions focused on enhancing self-acceptance, providing accessible educational resources, and strengthening adaptive social support networks tailored to the evolving needs of parents of children with Down syndrome in Indonesia.
Co-Authors Aun, Nur Saadah Mohamad Daud, Tuti Iryani Mohd Fredyarini Soedjiwo, Novena Ade Guidi, Elisa Idris, Idayu Badilla Mohd Fazree, Shima Dyana Putra, Bima Maulana Suroyo Suroyo Zakaria, Siti Marziah