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Pengalaman Orang Tua dalam Mendampingi Program Intervensi Anak dengan Gangguan Spektrum Autisme Hafizhul Akram; Sri Nurhayati Selian
RISOMA : Jurnal Riset Sosial Humaniora dan Pendidikan Vol. 4 No. 5 (2026): September: RISOMA : Jurnal Riset Sosial Humaniora dan Pendidikan
Publisher : Asosiasi Ilmuwan Pendidikan, Sosial, dan Humaniora Indonesia

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.62383/risoma.v4i5.1851

Abstract

Autism Spectrum Disorder (ASD) is a neurodevelopmental disorder characterized by obstacles in communication and social interaction as well as limited and repetitive patterns of behavior, interests, and activities. The success of intervention programs is greatly influenced by the involvement of parents as the child's main companion. This study aims to explore the experiences of parents in assisting intervention programs for children with ASD. The research uses a qualitative approach with phenomenological design. Three parents were selected through purposive sampling technique as participants. Data were obtained through semi-structured in-depth interviews and analyzed using thematic analysis. The results of the study showed five main themes, namely the initial emotional response to diagnosis and intervention, the form of parental involvement during the intervention process, the challenges faced, the adaptation strategies developed, and expectations for intervention services. Parents play an active role by implementing therapy exercises at home, establishing communication with professionals, and providing emotional support to children. However, time constraints, costs, emotional exhaustion, and lack of understanding of intervention techniques are obstacles. These findings confirm the importance of a family-centered approach through the collaboration of parents, therapists, educators, and other professionals to improve the effectiveness of interventions as well as child development.
Keterlibatan Orang Tua dalam Proses Asesmen Anak dengan Autisme Hafizhul Akram; Sri Nurhayati Selian
Intellektika : Jurnal Ilmiah Mahasiswa Vol. 4 No. 2 (2026): Maret : Intellektika : Jurnal Ilmiah Mahasiswa
Publisher : STIKes Ibnu Sina Ajibarang

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.59841/intellektika.v4i2.3656

Abstract

This study aims to explore parental involvement in the assessment process for children with autism and to understand their experiences, roles, and challenges. The study used a qualitative approach with a phenomenological design involving three parents of children with autism who had undergone assessment by professionals. Data were collected through in-depth interviews, observation, and documentation, then analyzed using thematic analysis. The results revealed five main themes: parents' initial awareness of their child's developmental differences, their role in providing developmental information, emotional experiences during the assessment process, the benefits of the assessment in improving understanding of the child's needs, and challenges faced during the process. The findings indicate that parental involvement significantly contributes to enriching assessment information and improving understanding of the child's condition, despite facing various barriers such as limited knowledge, time, cost, and emotional aspects. This study concludes that a family-centered approach is crucial in the assessment process. Therefore, stronger collaboration between professionals and parents is needed to support the optimal development of children with autism.