Rini Sasanti Handayani
Puslitbang Sistem dan Kebijakan Kesehatan, Badan Litbangkes, Depkes RI, Jakarta 10560, Indonesia

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Challenges and social support provisions in the treatment of HIV infected children in Indonesia Yuyun Yuniar; Rini Sasanti Handayani
Health Science Journal of Indonesia Vol 10 No 2 (2019)
Publisher : Sekretariat Badan Penelitian dan Pengembangan Kesehatan

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.22435/hsji.v10i2.684

Abstract

Latar belakang: Pengobatan pada anak yang terinfeksi HIV merupakan beban bagi para orang tua/pengasuh karena berbagai permasalahan menyangkut kesehatan mereka. Metode: Penelitian untuk mengeksplorasi pengalaman dan dukungan sosial pada pengobatan anak terinfeksi HIV dilakukan di 5 provinsi di Indonesia dengan prevalensi HIV tertinggi. Total sampel anak sebanyak 239 orang dari sejumlah 267 orang yang direncanakan. Data dikumpulkan dengan wawancara semi terstruktur dengan orang tua/pengasuhnya. Analisis dilakukan terhadap 16 anak berusia 2-14 tahun yang telah mendapatkan terapi obat antiretroviral. Hasil: Dari sejumlah 160 anak, sebanyak 62,5% anak mengkonsumsi 1-2 item obat dan 36,9% mengkonsumsi 3 5 item. Efek samping yang paling sering terjadi adalah kulit kemerahan, mual dan muntah. Kesulitan yang paling sering dihadapi adalah rasa bosan dan anak mempertanyakan minum obat. Orangtua/pengasuh berusaha melanjutkan pengobatan dengan mengingatkan jadwal minum obat, membujuk, memberikan penjelasan bahkan memaksa atau mengancam mereka untuk minum obat. Kesulitan tersebut makin bertambah seiring meningkatnya usia anak. Dukungan yang paling sering berasal dari orang tua dan keluarga besar seperti nenek atau paman, khususnya untuk anak yang sudah yatim. Kesimpulan: Pemahaman hambatan pengobatan pada anak terinfeksi HIV dapat membantu untuk menyediakan intervensi yang tepat untuk meningkatkan kepatuhan yang akan mendorong kesuksesan terapi mereka. Kata kunci: anak terinfeksi HIV, antiretroviral, dukungan social, pengobatan, kesulitan Abstract Background: The treatment of HIV infected children is a burden to their caregiver due to many existing problems related with their health. Methods: A research to explore the experience and social support on the treatment of HIV infected children was conducted in 5 provinces in Indonesia with highest prevalence of HIV. Total children sample was 239 out of previous 267 planned. Data was collected through semi structured interview with caregivers of the children. Analysis was conducted to 160 children aged 2-14 years old who were on antiretroviral therapy. Results: Among those 160 children, 62.5% took 1-2 items of medicines and 36.9% took 3-5 items. The most frequent adverse events were skin rash followed by nausea and vomiting. Boredom and questioning were the most frequent difficulties. The caregivers attempted to continue the treatment by reminding the children on schedule to take medicines, wheedling, explaining, forcing or even threatening them. The difficulties appeared more as the children grew older. The most frequent supports mainly came from parents, and extended family such as grandmother or uncle especially for orphaned children. Conclusion: Understanding obstacles in HIV infected children will help to do proper interventions to improve adherence that will lead to successful therapy. Keywords: HIV infected children, antiretroviral, social support, treatment, difficulties
STIGMA DAN DISKRIMINASI PADA ANAK DENGAN HIV AIDS (ADHA) DI SEPULUH KABUPATEN/KOTA DI INDONESIA Sugiharti Sugiharti; Rini Sasanti Handayani; Heny Lestary; Mujiati Mujiati; Andi Leny Susyanti
Jurnal Kesehatan Reproduksi Vol 10 No 2 (2019): JURNAL KESEHATAN REPRODUKSI VOLUME 10 NO. 2 TAHUN 2019
Publisher : Puslitbang Upaya Kesehatan Masyarakat

Show Abstract | Download Original | Original Source | Check in Google Scholar | Full PDF (483.082 KB) | DOI: 10.22435/kespro.v10i2.2459

Abstract

Abstract Background: Children with HIV are vulnerable groups that need to be protected, considering that their parents have often died of HIV/AIDS. Objective: The purpose is to find information about stigma and discrimination against children with HIV/AIDS in 10 districts in Indonesia. Method: The study was conducted in 2015 with a cross-sectional research design using quantitative and qualitative combined approaches (mixed methods approaches). Quantitative study respondents were parents/guardians of children with HIV/AIDS aged ≥18 months totaling 201 children with HIV/AIDS. The variables studied included: age, child status, children with HIV/AIDS companion and source of transmission), reasons for closing the ADHA status and reasons for opening status. The qualitative study informants were doctors, nurses, case managers, NGOs, and the Education Office Results: Quantitative results showed that 41.8% of children with HIV/AIDS were aged 4-9 years; 58.5% are in school; 61.7% of children with HIV/AIDS companions are biological parents; 91.5% of sources of transmission are from biological mothers; 57.5% of reasons for closing status because of shame/stigma/ discrimination, 45.9% of reasons for opening status because the family already knew. Qualitative results of stigma and discrimination occur in families, the environment, schools, and health services Conclusion: Children with HIV/AIDS are a vulnerable group that must be protected. They have the right to live properly and safely like other children. But the results of this study found that there was still stigma and discrimination for Children with HIV/AIDS, both in the home, school and health care facilities. Key words: Children with HIV/AIDS, Stigma and Discrimination, HIV/AIDS Abstrak Latar belakang: Anak dengan HIV merupakan kelompok rentan yang perlu dilindungi, mengingat orang tua mereka sering kali sudah meninggal karena HIV/AIDS. Tujuan: mengetahui gambaran stigma dan diskriminasi pada Anak dengan HIV/AIDS (ADHA) pada 10 Kabupaten/Kota di Indonesia. Metode: Penelitian dilakukan tahun 2015 dengan disain potong lintang, menggunakan pendekatan kuantitatif dan kualitatif (mixed methods approaches). Responden studi kuantitatif adalah orangtua/wali dengan ADHA berusia ≥18 bulan sejumlah 201 ADHA yang diperoleh dari Dinas Kesehatan. Variabel yang diteliti meliputi: usia, status anak, pendamping ADHA dan sumber penularan), alasan menutup status ADHA dan alasan membuka status. Informan studi kualitatif adalah adalah dokter, perawat, manajer kasus, LSM, dan Dinas Pendidikan Hasil: Hasil kuantitatif menunjukkan 41,8% ADHA di usia 4–9 tahun; 58,5% berstatus sekolah; 61,7% pendamping ADHA adalah orangtua kandung; 91,5% sumber penularan berasal dari ibu kandung; 57,5% alasan menutup status karena malu/stigma/diskriminasi, 45,9% alasan membuka status karena keluarga sudah tahu. Hasil kualitatif bahwa stigma/ diskriminasi terjadi di keluarga, lingkungan sekitar, sekolah dan pelayanan kesehatan. Kesimpulan: ADHA merupakan kelompok rentan yang harus dilindungi. Mereka berhak untuk dapat hidup dengan layak dan aman seperti anak – anak lainnya. Namun hasil penelitian ini menemukan masih terjadi stigma dan diskriminasi bagi ADHA, baik di lingkungan rumah, sekolah, maupun fasilitas pelayanan kesehatan. Kata kunci: ADHA, Stigma dan Diskriminasi, HIV-AIDS
Gambaran Upaya Pencarian Pengobatan Diare di Wilayah Kerja Puskesmas yang Mendapat Nusantara Sehat berbasis Tim Batch I dan II Aris Yulianto; Ida Diana Sari; Rini Sasanti Handayani
Jurnal Penelitian dan Pengembangan Pelayanan Kesehatan List Just Accepted Manuscript and Article In Press 2020
Publisher : Jurnal Penelitian dan Pengembangan Pelayanan Kesehatan (Journal of Research and Development in Health Services)

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.22435/jpppk.v0i0.3685

Abstract

Diarrhea still becomes major public health problem, especially in remote and underdeveloped areas, borderland and outlying islands (DTPK) where most Nusantara Sehat health workers have been distributed to each primary healthcare center. The aim of this research is to investigate the habit of community seeks diarrhea medication pattern in the working area of primary healthcare centers where Team-based Nusantara Sehat health workers Batch I and II placed. The research was a descriptive cross sectional study and involved 12,381 families in 27 districts, 15 provinces, interventional and control primary healthcare centers, 30 each. Result showed that the prevalence of diarrhea cases based on diagnosis and recognition of respondents which had experienced liquid defecation 3 or more times a day were 1.9% and 0.6%, respectively. Oral rehydration salts (ORS) is the most dominant for diarrhea medication (31.1%). When seeking medication, 19.3% of respondents treated self-medication and 19.1% utilized health facility. This research concludes that there is still low self-medication care in treating diarrhea so that it needs to optimization using medicinal plants for the community with limited access to healthcare facilities.