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All Journal DUNIA KEPERAWATAN: JURNAL KEPERAWATAN DAN KESEHATAN Journal of Pubnursing Sciences NERS Jurnal Keperawatan
Allenidekania
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Health Professions Immunology & microbiology Neuroscience Nursing Public Health

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Masalah Psikososial Remaja dengan Thalasemia Mayor: Literature Review Sartika, Nanda; Allenidekania
Dunia Keperawatan: Jurnal Keperawatan dan Kesehatan Vol 8 No 2 (2020): Dunia Keperawatan: Jurnal Keperawatan dan Kesehatan
Publisher : School of Nursing, Faculty of Medicine and Health Science, Universitas Lambung Mangkurat

Show Abstract | Download Original | Original Source | Check in Google Scholar | Full PDF (492.269 KB)

Abstract

Adolescent thalassemia majorhave a variety of psychosocial problems that have an impact ondecreasing QOL, interpersonal relationships, self-esteem resulting in depression. The aim of thisstudy is to look at psychosocial development and the things that occur in adolescent thalassemiarelated to psychosocial. Literature was made by analyzing scientific articles published from 2015-2019 and English. Data were obtained from Scopus, Wiley, Science Direct, Ebsco host, Proquestdatabases with psychosocial adolescent, thalassemia, and quality of life keywords. The results of theliterature study were 2,533 articles and 8 articles were obtained that fit the inclusion and exclusioncriteria. The results of the study are psychosocial problems occur due to activity restrictions, lack ofconfidence due to changes in face shape and skin color, adolescents feel different from siblings,decreased school performance. This will have an impact on the declining their QOL. The results ofthe literature review can be used as basic data in the development of counseling and mentoringprograms.
Validasi Nutrition Screening Tool For Childhood Cancer (SCAN) Dalam Versi Indonesia Saudi, La; Allenidekania; Nur Agustini
Journal of Pubnursing Sciences Vol 1 No 01 (2023): Journal of Pubnursing Sciences (JPS)
Publisher : PT. Pubsains Nur Cendekia

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.69606/jps.v1i01.3

Abstract

Background & objectives: Nutritional screening is very important to assess the nutritional status of children with cancer that increases nutrition or the risk of malnutrition so that it is easy to determine the right nutrition management. Aim: The Indonesian version of the Validating Childhood Nutrition Screening Tool (SCAN) as a cancer child nutrition screening tool. Method: Before being used in research this instrument was translated, then distributed to nurses oncology care rooms for openness testing. Tracking test method by comparing instruments for nutritional screening tools for child cancer (SCAN) with STRONGkids instruments in 92 children with translated cancer. Results: The SCAN instrument showed very good sensitivity, namely 100% (Cl95% 100% -100%; p <0.001), specificity: 21.4%, PPVs: 45%, and NPVs: 100%. Conclusion: This SCAN instrument is valid and can be used for pediatric patients with cancer, easily and quickly resolved when conducting a nutritional screening.
Respon Emosional Orang Tua Dalam Merawat Anak Dengan Kanker Dalam Kondisi Perawatan Palliatif : Respon Emosional Orang Tua Dalam Merawat Anak Dengan Kanker Dalam Kondisi Perawatan Palliatif Rina Mariyana; Allenidekania; Nani Nurhaeni
NERS Jurnal Keperawatan Vol. 14 No. 2 (2018): NJK Volume 14, Number 2
Publisher : Fakultas Keperawatan Universitas Andalas

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.25077/njk.v14i2.13

Abstract

Cancer is one of the main causes of morbidity and mortality in the world. In caring for children with cancer, parents experienced many changes from this disease where parents feel giving up, feel emotional, and lack of communication between parents and the palliative team can influence the plan for palliative care in children. This study aims to explore the parents’ emotional response in caring for children with cancer under palliative care condition. The study was conducted at Jakarta, Bogor, and Bekasi. The research applied descriptive qualitative phenomenology design. Parents caring for children with cancer under palliative care were in-depth interviewed with open-ended questions. Data were then analyzed using the Colaizzi method. This study produced a theme. Anger, effort to distract their anger, exspression the anger, powerlessness. This study shows that during palliative care, parents experience a variety of emotional responses that they cannot control. Therefore, nurses are very important to provide an assessment and facilitate the fulfillment of needs that involve family members and religious experts to control the emotional response caused by the mother.
Resiko Remaja Thalasemia terhadap Perubahan Perilaku : Thalassemia Adolescents' Risk of Behavior Change Halimah; Allenidekania; Fajar Tri Waluyanti
NERS Jurnal Keperawatan Vol. 12 No. 1 (2016): NJK Volume 12, Number 1
Publisher : Fakultas Keperawatan Universitas Andalas

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.25077/njk.v12i1.233

Abstract

Adolescent with chronic illness such as thalassemia can increase the risk of behavioral changes. The purpose of this study is to identify the risk of behavioral changes in adolescents with thalassemia such as anxiety, social problem and attention deficits. This study used cross sectional. Respondent consist of 43 adolescent (12-18 years old) and their parents to filled questionnaire about the related factors, anxiety, social problem, and attention deficits in thalassemia. The results shown that male adolescent have a risk to experience anxiety problem (OR 2,5), social problem (OR 1,264), and attention deficits (OR 1,185). Adolescents with Jawa and the other ethnic have a risk to experience anxiety problem (OR 0,001), social problem (0,001 and 0,365), and attention deficits (1,338 and 0,501). Another factor such as multitranfusion more than 5 years have a risk to experience anxiety problem (OR 0,001), low parent’s support with social problem (0,042), and low or middle of mother education increase attention deficits risk until 3,763 and 1,338. Nurses responsible to solve behavioral problem with current nursing intervention to prevent low quality of live in adult with thalassemia
Co-Authors Fajar Tri Waluyanti Halimah Nani Nurhaeni Nur Agustini Rina Mariyana Sartika, Nanda Saudi, La