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All Journal Jurnal Keperawatan Padjadjaran Kesmas: Jurnal Kesehatan Masyarakat Nasional (National Public Health Journal)
Sihwastuti, Sihwastuti
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Health Professions Neuroscience Nursing Public Health

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The unmet needs of palliative care among patients with non-malignant chronic illness in Indonesia: A phenomenology study Merduaty, Rona Cahyantari; Nuraini, Tuti; Sihwastuti, Sihwastuti
Jurnal Keperawatan Padjadjaran Vol. 12 No. 3 (2024): Jurnal Keperawatan Padjadjaran
Publisher : Faculty of Nursing Universitas Padjadjaran

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.24198/jkp.v12i3.2397

Abstract

Background and Objectives: People with chronic illness tend to report multiple and complex symptoms that decrease their ability to meet their needs and quality of life (QoL). As an approach to address people with chronic illness, palliative care is still shortly focused on people with chronic malignancies in Indonesia. Eventually, that paradigm makes the spectrum of palliative care interpreted narrowly only for cancer or end-of-life (EOL) patients. This study explores the experience and needs of patients diagnosed with non-malignant chronic illness towards their illness to identify the need for palliative care. This study used a qualitative method with a phenomenological approach. Material and Methods: A total of seven (7) participants were involved in semi-structured interviews that were previously selected based on screening using an adult palliative patient score developed by Cipto Mangunkusumo Hospital (RSCM), Jakarta. Only participants with a score above or equal to 4 (four) are selected to participate. All qualitative data is recorded, transcribed, and analyzed using Colaizzi's approach. Results: There are seven major interrelated themes emerging from this qualitative study that uniquely match with the illness trajectory of non-malignant chronic patients. The themes are: (1) negative feelings that cannot be described at the time of diagnosis, (2) ignorance of the disease process, (3) late realization that illness cannot be cured, (4) helplessness during the medication/treatment process, (5) shame of being a burden to family and surroundings, (6) limited access, (7) family and God as motivation and hope reinforcement to recover at the end of illness stage. Conclusions: People with non-malignant chronic complain of several challenges, which are not much different from those with cancer. Therefore, patients with non-malignant chronic illness (PWNMCI) also have a similar need for palliative care. A deeper and broader assessment of palliative care should also be implemented in patients with non-malignant chronic illness from the early diagnostic process.
Effects of Early Hospital-Based Palliative Care Consultation on Length of Stay and Costs of Care at Indonesian Tertiary Hospital Putranto, Rudi; Shatri, Hamzah; Rajabto, Wulyo; Sumariyono, Sumariyono; Faisal, Edward; Sihwastuti, Sihwastuti
Kesmas Vol. 18, No. 3
Publisher : UI Scholars Hub

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Abstract

Despite the numerous benefits of palliative care for cancer patients, there have been few studies on palliative care services for terminal cancer patients, particularly near the end of life. This study aimed to evaluate whether there were differences in length of stay and cost of care associated with how early or late a patient received palliative care intervention. Another objective was to compare the length of stay and cost of care of those who received palliative care intervention and those who did not. This study used a cohort retrospective design at Hospital A, Jakarta, Indonesia, from January to December 2019. The diagnosis of terminal cancer was based on medical records. Data on length of stay and costs of care were based on medical records and finance billing. The hospitalized terminal cancer patients (392) were recruited by consecutive sampling. The length of stay and costs of care for patients with advanced cancer who received palliative care consultations were longer and higher than for patients who did not receive them. However, if palliative care consultation is provided early, the increase in length of stay and costs are less.
Co-Authors E. Mudjaddid A. Siswanto Deddy N.W.Achadiono Hamzah Shatri Faisal, Edward Merduaty, Rona Cahyantari Rudi Putranto Sumariyono Sumariyono Tuti Nuraini Wulyo Rajabto