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All Journal MAHESA : Malahayati Health Student Journal Journal of Applied Nursing and Health
Handayani, Meyla Sari
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Biochemistry, Genetics & Molecular Biology Chemistry Dentistry Health Professions Immunology & microbiology Medicine & Pharmacology Neuroscience Nursing Public Health Veterinary

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Pengalaman Hidup Pasien Chronic Kidney Disease yang Menjalani Hemodialisis: Scoping Review Rahmah, Tira Nur; Pujikurniawati, Citra Reza; Hendriyani, Desy; Handayani, Meyla Sari; Wahyuni, Hera; Sridiawati, Essy; Trisyani, Yanny
MAHESA : Malahayati Health Student Journal Vol 5, No 8 (2025): Volume 5 Nomor 8 (2025)
Publisher : Universitas Malahayati

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.33024/mahesa.v5i8.18937

Abstract

ABSTRACT Chronic Kidney Disease is a global health problem that occurs every year. Patients can survive by undergoing hemodialysis therapy, but it still leaves a number of important issues as a result of hemodialysis therapy. The purpose of this study was to identify the life experiences of chronic kidney disease patients undergoing hemodialysis. This study used a literature review method with a scoping review approach to explore the experiences of chronic kidney failure patients undergoing hemodialysis. Searches of three databases includes EBSCOhost, PubMed, and Scopus. The keywords used in English were “chronic kidney disease” OR “chronic renal failure” OR “CKD” OR “ESRD” AND “life experiences” OR “lived experiences” AND “during hemodialysis” OR “undergoing hemodialysis”. There were several interrelated themes in exploring the experiences of chronic kidney failure patients undergoing hemodialysis, including emotional and social support, physical and life limitations, psychological impact, economic difficulties, changes in health and knowledge about treatment, and dependence. These findings suggest that the experiences felt by patients with chronic renal failure undergoing hemodialysis are interconnected and have a significant influence on patients' overall quality of life. The implications of these findings suggest that a holistic approach in the care of hemodialysis patients is necessary so that medical interventions cover the physical, emotional, social, and economic aspects of patients. This study provides important insights for healthcare professionals to design more comprehensive and patient-centered interventions. Keywords: Chronic Kidney Disease, Hemodialysis, Life experience  ABSTRAK Chronic Kidney Disease adalah masalah kesehatan global yang sering terjadi di setiap tahunnya. Pasien bisa bertahan hidup dengan menjalani terapi hemodialisis, namun masih menyisakan sejumlah persoalan penting sebagai dampak dari terapi hemodialisis. Tujuan penelitian ini adalah untuk mengidentifikasi pengalaman hidup pasien chronic kidney disease yang menjalani hemodialisis. Penelitian ini menggunakan metode literature review dengan pendekatan scoping review untuk mengeksplorasi pengalaman pasien gagal ginjal kronis yang menjalani hemodialisis. Pencarian menggunakan tiga database terdiri dari EBSCOhost, PubMed, dan Scopus. Kata kunci yang digunakan dalam bahasa Inggris yaitu “chronic kidney disease” OR “chronic renal failure” OR “CKD” OR “ESRD” AND “life experiences” OR “lived experience” AND “during hemodialysis” OR “undergoing hemodialysis”. Terdapat beberapa tema yang saling berkaitan satu sama lain dalam mengeksplorasi pengalaman pasien gagal ginjal kronis yang menjalani hemodialisis, diantaranya dukungan emosional dan sosial, keterbatasan fisik dan hidup, dampak psikologis, kesulitan ekonomi, perubahan kesehatan dan pengetahuan tentang perawatan, serta ketergantungan. Temuan ini menunjukkan bahwa pengalaman yang dirasakan oleh pasien dengan gagal ginjal kronis yang menjalani hemodialisis saling berhubungan dan memiliki pengaruh signifikan terhadap kualitas hidup pasien secara keseluruhan. Implikasi dari temuan ini menunjukkan bahwa pendekatan holistik dalam perawatan pasien hemodialisis sangat diperlukan agar intervensi medis mencakup aspek fisik, emosional, sosial, dan ekonomi pasien. Penelitian ini memberikan wawasan penting bagi tenaga kesehatan untuk merancang intervensi yang lebih komprehenif dan berpusat pada pasien.  Kata Kunci: Chronic Kidney Disease, Hemodialisis, Pengalaman Hidup
Supportive Care Needs and Patient Preferences Among Hemodialysis Patients with Chronic Kidney Disease: A Scoping Review of Evidence for Patient-Centered Kidney Supportive Care Handayani, Meyla Sari; Ibrahim, Kusman; Rahayuwati, Laili; Fauzan, Naufal
Journal of Applied Nursing and Health Vol. 8 No. 2 (2026): Journal of Applied Nursing and Health
Publisher : Chakra Brahmanda Lentera Institute

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.55018/janh.v8i2.675

Abstract

Background: Patients with Chronic Kidney Disease (CKD) undergoing maintenance Hemodialysis (HD) face physical, psychological, social, and spiritual challenges that reduce quality of life. This scoping review mapped and synthesised evidence on supportive care needs and patient preferences to inform the development of holistic, person-centred, and culturally responsive Kidney Supportive Care (KSC) models for adults receiving maintenance HD. Methods: This scoping review followed the PRISMA-ScR guidelines and the Arksey and O'Malley methodological framework, guided by the Population–Concept–Context (PCC) approach. Literature searches were conducted on May 25, 2026, across PubMed, Scopus, ScienceDirect, and EBSCOhost. Eligible studies included English- and Indonesian-language publications from 2021–2026 involving adults with CKD receiving maintenance HD. Qualitative, quantitative, and mixed-methods studies, as well as systematic reviews, were included. Study selection, data charting, thematic synthesis, and methodological quality appraisal were conducted using predefined criteria and Joanna Briggs Institute (JBI) critical appraisal tools. Results: Twelve studies met the inclusion criteria. Four overarching themes were identified: (1) multidimensional supportive care needs, including physical symptom management, psychological support, social and financial assistance, spiritual care, and informational needs; (2) patient preferences for patient-centered care, emphasizing effective communication, shared decision-making, family involvement, and respect for spiritual values; (3) barriers to KSC implementation, including workforce limitations, inadequate psychosocial resources, financial burdens, insufficient professional training, and organizational constraints; and (4) strategies to strengthen KSC through interdisciplinary collaboration, Patient-Reported Outcome Measures (PROMs), family engagement, and integrated palliative care approaches. The review also identified evidence gaps regarding culturally adapted supportive care models, caregiver-support interventions, and implementation strategies in resource-limited settings. Conclusion: Cultural beliefs are crucial in shaping treatment choices for ENT conditions. Public awareness campaigns by the Ministry of Health and local health authorities are recommended to educate communities on the benefits and risks of traditional medicine while promoting evidence-based healthcare practices.
Co-Authors Fauzan, Naufal Hendriyani, Desy Hera Wahyuni Kusman Ibrahim Laili Rahayuwati Pujikurniawati, Citra Reza Rahmah, Tira Nur Sridiawati, Essy Yanny Trisyani