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A scoping review of educational methods to optimize parental self-efficacy and health literacy in improving the quality of life among children with thalassemia: Evidence from Asian studies Sarinengsih, Yuyun; Putri Alya, Fania; Harun, Zaliha; Gunavathy
Physical Therapy Journal of Indonesia Vol. 6 No. 2 (2025): July-December 2025
Publisher : Universitas Udayana dan Diaspora Taipei Medical University

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.51559/ptji.v6i2.296

Abstract

Background: The success of parents in managing thalassemia in children is influenced by several important aspects, including self-efficacy and health literacy. Educational programs specifically designed for parents and children with thalassemia have been shown to improve the quality of life of children significantly. This scoping review aimed to identify and map family-centered educational interventions that enhanced parental self-efficacy and health literacy to improve the quality of life for children with thalassemia. Methods: This research employs a scoping review method, following the preferred reporting items for systematic reviews and meta-analyses extension for scoping reviews (PRISMA-ScR) guidelines. A literature search was conducted across four databases: EBSCO, PubMed, Scopus, and Taylor & Francis, as well as the search engine Google Scholar. Inclusion criteria included full-text articles in English, primary studies discussing educational interventions related to self-efficacy and health literacy, and studies with a quality score ≥70% based on the Joanna Briggs Institute (JBI) assessment. Exclusion criteria consisted of secondary research such as literature reviews and editorials, as well as studies with a JBI score below 70%. The study selection strategy used the PICO (population, intervention, comparison, and outcome) approach. Total of 17 articles were finally included in the analysis. Results: A total of 17 articles were found and included in the study. There are two types of interventions, conventional and digital-based educations. The media used in conventional education include booklets, pamphlets, posters, and PowerPoint presentations, along with methods such as lectures, group discussions, and training sessions. In addition, digital-based education in this study was a smartphone app and mobile learning. Conclusion: Conventional and digital-based educations have the potential to be effective methods in optimizing parental self-efficacy, health literacy, and knowledge, which can improve the quality of life for children with thalassemia.
The Correlation Between Post-Procedural Complications and Length of Stay Among Post Primary PCI Patients: A Retrospective Study Sugiharto, Firman; Trisyani, Yanny; Nuraeni, Aan; Alya, Fania Putri
Padjadjaran Acute Care Nursing Journal Vol 4, No 3 (2025): Padjadjaran Acute Care Nursing Journal
Publisher : Universitas Padjadjaran

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.24198/pacnj.v4i3.64834

Abstract

Background: Coronary heart disease (CHD) is a leading cause of morbidity and mortality globally. Primary PCI is an effective intervention, it is not without risks, and complications arising post-procedure can significantly affect both patient outcomes and the length of hospital stay (LOS).Aim: To describe the types and frequency of complications that occur in patients after Primary PCI and to analyze their relationship with the length of stay in the hospital.Design: This study employed a retrospective design, utilizing medical records of patients who underwent Primary PCI at a referral hospital in West Java, Indonesia, from December 2019 to April 2024. The study sample was selected using a convenience sampling method, focusing on patients who had complete medical records. Data analysis was conducted using univariate and bivariate analyses, including Fisher's exact test to assess the relationship between complications and LOS. The dependent variable, LOS, was categorized into three groups: ≤ 3 days, 4-5 days, and ≥ 6 days.Results: The findings showed that 81.8% of patients did not experience any complications post-procedure, while 14.5% experienced hematomas and 3.6% experienced bleeding. The median LOS was 4.00 ± 2.28 days, with 60.9% of patients having an LOS of more than 3 days. Patients who experienced complications, especially hematomas or bleeding, were more likely to have prolonged hospital stays, with 11.8% of them staying for ≥ 6 days.Conclusion: Complications following Primary PCI significantly affect the length of stay in the hospital. The study highlights that patients who experience complications such as hematomas or bleeding tend to have longer hospitalizations. These findings underscore the importance of early detection and timely management of post-procedural complications to reduce LOS and enhance patient outcomes.
Comprehensive Nursing Care in a Neonatal Asphyxia with Hypoxic Ischemic Encephalopathy and Sepsis Complications: A Case Report Sugiharto, Firman; Khoirunnisa, Khoirunnisa; Hendrawati, Sri; Alya, Fania Putri
Padjadjaran Acute Care Nursing Journal Vol 4, No 3 (2025): Padjadjaran Acute Care Nursing Journal
Publisher : Universitas Padjadjaran

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.24198/pacnj.v4i3.64835

Abstract

Background: Asphyxia is one of the highest causes of neonatal mortality in the world. Delayed treatment of asphyxia can have an impact on permanent organ failure and neurological disability in neonates such as cerebral palsy, hyperactivity, and epilepsy.Aim: This study aimed to describe nursing care for neonates with asphyxia neonatorum.Case Description: A boy named H (By. H), 22 day old was transferred from the neonatal intensive care unit (NICU) with a diagnosis of severe asphyxia with complications of HIE and sepsis. At the time of assessment, the level of consciousness compos mentis, general condition was weak, often restless, short of breath, there was lobed breathing, intercostal retractions, stridor, secret in the mouth, rhonchi in both lung fields. Vital signs obtained HR: 150 x/minute, RR: 50 x/minute, body temperature: 36.60C, SpO2: 96%. The neonatus has good nutritional status and adequate hydration status, with positive fluid balance and no signs of fluid overload. Rest and sleep status of the neonatus is enough. The patient had a history of apnea, seizures, and post cooling therapy.Conclusion: The interventions and implementations carried out were monitoring vital signs, monitoring signs and symptoms of hypoxia, monitoring additional breath sounds, positioning the semi-fowler 30-450, changing position to prone position after breastfeeding, and nebulization with 3% NaCl 4 ml. After the intervention, the nursing problems in this case study had only been partially resolved. There is a need for further monitoring related to airway management which includes observation of vital signs and respiratory distress, continued nebulization with 4 ml of 3% NaCl, and monitor for signs of hypoxia.
Levels of hope among children under 18 years old with acute lymphoblastic leukemia undergoing chemotherapy: A descriptive study Alya, Fania Putri; Ulfah, Diana; Lusiani, Eli; Deniati, Kiki; Febriyona, Rona; Sugiharto, Firman; Rissaadah, Siti
THE JOURNAL OF Mother and Child Health  Concerns Vol. 4 No. 8 (2025): November Edition
Publisher : Indonesian Public Health-Observer Information Forum (IPHORR) Kerjasama dengan Persatuan Perawat Nasional Indonesia (PPNI)

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.56922/mchc.v4i8.1812

Abstract

Background: Hope is an essential psychological resource that enables children with cancer to cope with the stress and uncertainty of long-term treatment. However, research focusing on the level of hope among children with Acute Lymphoblastic Leukemia (ALL) in Indonesia or Southeast Asia remains limited, as most studies have centered on adults or on depression and anxiety rather than hope. Understanding hope among pediatric cancer patients is crucial for developing psychosocial interventions that enhance emotional resilience and treatment adherence. Purpose: to describe the levels of hope among children under 18 years old with ALL who were undergoing chemotherapy. Method: This was a quantitative descriptive study involving 66 respondents selected through convenience sampling. Data were collected using the Children’s Hope Scale (CHS), consisting of six items that assess agency and pathway thinking. Ethical approval and parental consent were obtained prior to data collection. Descriptive statistics were applied to analyze respondents’ demographic characteristics and hope scores. Result: The findings showed that most respondents were aged 8–12 years (56.1%), male (59.1%), and diagnosed with high-risk ALL (89.4%). More than half (54.5%) demonstrated a high level of hope, while 45.5% had a low level of hope. Younger children exhibited higher hope levels compared to adolescents. The mean hope score was 22.9 ± 3.95, with a median of 23 and a score range of 16–32, indicating a moderate to high overall level of hope. Conclusion: Most children with ALL in this study maintained a moderate to high level of hope during chemotherapy. These results emphasize the importance of assessing hope as part of psychosocial care. Strengthening hope through supportive communication and family-centered interventions can enhance children’s PWB and promote better adherence throughout the treatment process.