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All Journal The Indonesian Journal of Public Health Journal of Community Empowerment for Health Ophthalmologica Indonesiana
Albaaza Nuady
Department Of Ophthalmology Faculty Of Medicine, Public Health And Nursing, Universitas Gadjah Mada, Dr. Sardjito Hospital
Education Health Professions Medicine & Pharmacology Nursing Public Health

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Increasing the Health-Related Quality of Life in Children with Congenital Rubella Syndrome: A Mixed-methods Study Elisabeth Siti Herini; Agung Triono; Kristy Iskandar; Ashadi Prasetyo; Albaaza Nuady; Marissa Leviani Hadiyanto; Kania Diantika; Veronica Wulan Wijayanti; Avianti Pramastuti
Journal of Community Empowerment for Health Vol 6, No 2 (2023)
Publisher : Faculty of Medicine, Public Health, and Nursing, Universitas Gadjah Mada

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.22146/jcoemph.80029

Abstract

Introduction: Rubella infection during the first trimester of pregnancy is a significant cause of fetal malformation syndrome, or Congenital Rubella Syndrome (CRS), which affects the children’s quality of life (QoL). A Community Engagement Program was arranged collaboratively to increase the QoL of children with CRS and enhance parents’ skills and knowledge to better care for their children with CRS. Methods: A mixed-method descriptive study was conducted from April to October 2022 at Dr. Sardjito General Hospital. Sample recruitment used the purposive sampling method, which had been clinically and serologically diagnosed with CRS. Children’s QoL data were analyzed with a cross-sectional study design. The tools used were the Pediatric Quality of Life Inventory (PedsQL)TM 4.0 Generic Core Scales and SPSS version 26 to analyze paired T-tests. A focus group discussion (FGD) was used for qualitative thematic analysis. Results: We involved ten members willing to participate voluntarily in the PedsQL assessment and FGD. The result was an increase in patients’ QoL in the Physical Function domain that was statistically significant: pre-test and post-test physical health summary [490 (±261) vs. 510 (±251); p=0.022]. While social, emotional, and school functions increased were not statistically significant. From the FGD, the parents had diverse experiences and understanding of CRS-supporting examinations and treatments needed. Parents felt the children’s growth and development, as social and school functions were the common burdens. In order to help CRS prevention, the parents suggested a more comprehensive premarital program and antenatal care. Conclusions: The Community Engagement Program helps to increase the patient’s QoL in the Physical Function domain. Comprehensive multidiscipline management is needed to support children’s growth, social and educational functions. Periodic evaluations are required to monitor the QoL of children with CRS.
The Prediction of Visual Acuity after Open Globe Injury in Children Using Pediatric Ocular Trauma Score (POTS) Albaaza Nuady; Purjanto Tepo Utomo; Widyandana Widyandana
Majalah Oftalmologi Indonesia Vol 42 No 3 (2016): Ophthalmologica Indonesiana
Publisher : The Indonesian Ophthalmologists Association (IOA, Perhimpunan Dokter Spesialis Mata Indonesia (Perdami))

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.35749/journal.v42i3.113

Abstract

Background: Open globe injury is one of the major causes of non-congenital ocular morbidities in children. Ocular trauma contributes 7% of all traumas and 10-15% of all ocular diseases. This study aims to assess VA after OGI in children at Sardjito General Hospital (SGH) and YAP Eye Hospital (YAP) using POTS.Methods: Children with OGI ≤15 years old from emergency unit from 2014 to 2016 was evaluated in retrospective design. Age, sex, admission time, operation time, cause of trauma, initial VA, final VA, and concomitant ocular pathology were collected, then classified with POTS. We compared initial VA and final VA to predict VA after OGI in children at SGH and YAP.Results: Twenty two (88%) patients were male and three (12%) patients were female with mean age of 8.84 years old. Nineteen cases were OGI with zone 1 involvement (76%), 2 cases with zone 2 (8%), and 4 cases with zone 3 (16%). After POTS classification, OGI in group 1 was 8 (32.6%), group 2 was 12 (48%), and group 3 was 5 (20%). Mean rate of initial VA was HM, 1 month after OGI was 1/60, 3 months was 3/60, 6 months was 3/60, and 12 months was 4/60. Classification using POTS was statistically significant for initial VA (p=0.046), VA in 1 month (p=0.046), and 3 months (p=0.46).Conclusion: OGI in children causes poor prognosis for VA. Zone involvement, delayed operation time and vitreous hemorrhage correlate with poor visual prognosis in OGI. Classification of injury with POTS shows prediction of VA after OGI. Keywords: open globe injury in children, pediatric ocular trauma score.
ENHANCING KNOWLEDGE AND AWARENESS FOR MEASLES AND RUBELLA ELIMINATION TO PREVENT CONGENITAL RUBELLA SYNDROME IN KULON PROGO AND GUNUNGKIDUL REGENCIES Herini, Elisabeth Siti; Triono, Agung; Iskandar, Kristy; Indrawanti, Ratni; Sitaresmi, Mei Neni; Nuady, Albaaza; Prasetyo, Ashadi; Paramastuti, Avianti; Nugrahanto, Andika Priamas; Mooiindie, Khansadhia Hasmaradana; Damroni, Rais Aliffandy; Timoti, Joshua
The Indonesian Journal of Public Health Vol. 19 No. 3 (2024): THE INDONESIAN JOURNAL OF PUBLIC HEALTH
Publisher : Universitas Airlangga

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.20473/ijph.v19i3.2024.442-452

Abstract

Introduction: Measles-Rubella (MR) Vaccination coverage is important in eliminating Congenital Rubella Syndrome (CRS). In 2023, Kulon Progo and Gunungkidul Regencies recorded 98.59% and 97.63%, respectively. We conducted campaign activities, introduced the Measles-Rubella (MR) vaccine, and implemented educational efforts crucial for controlling measles, rubella and CRS. A collaborative educational program was organized to improve the quality of promotive and preventive education provided to health workers and elementary teachers. Aims: To enhance the knowledge of health workers and elementary teachers regarding measles, rubella, CRS and elimination strategies in Kulon Progo and Gunungkidul Regency. Methods: This study employed a quasi-experimental, non-randomized design with no control group. The participants were selected from all primary health care centers and selected elementary schools in Kulon Progo and Gunungkidul Regency. Before and after a multi-modal educational program, knowledge of participants was measured using questionnaire and analyzed using Wilcoxon signed-rank test. Results: We included 72 health workers and 8 elementary teachers in Kulon Progo and Gunungkidul Regency. The results indicated an increase in knowledge among health workers regarding these topics. However, elementary teachers did not demonstrate statistically significant improvements in knowledge level, likely due to the small number of participants and a general lack of knowledge about these subjects among teachers. Conclusion: Multi-modal intervention enhanced the knowledge of health workers and elementary teachers about measles, rubella, CRS, elimination strategies of these diseases in two regencies of the Special Region of Yogyakarta. Therefore, it is essential that public health authorities should prioritize continuous and accessible education programs for them
Increasing knowledge and awareness of health workers and health cadres regarding congenital rubella syndrome in Imogiri II Bantul Primary Health Centre Herini, Elisabeth Siti; Triono, Agung; Iskandar, Kristy; Prasetyo, Ashadi; Nuady, Albaaza; Hadiyanto, Marissa Leviani; Diantika, Kania; Wijayanti, Veronica Wulan; Damroni, Rais Aliffandy; Paramastuti, Avianti
Journal of Community Empowerment for Health Vol 7, No 3 (2024)
Publisher : Faculty of Medicine, Public Health, and Nursing, Universitas Gadjah Mada

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.22146/jcoemph.94085

Abstract

Introduction: Prevention through campaign activities, Measles-Rubella (MR) vaccine introduction, and education play an essential role in controlling rubella and, eventually, Congenital Rubella Syndrome. A Community Engagement program was arranged collaboratively to improve the quality of promotive, preventive education by health workers and cadres and to improve the advanced management of Congenital Rubella Syndrome for health workers. Methods: A multi-method engagement program was conducted in collaboration with Imogiri II Bantul Primary Health Centre from March to October 2023. The program aimed to implement various activities involving health workers and health cadres. A descriptive study using the survey method was conducted to assess the knowledge level about Congenital Rubella Syndrome among health workers and cadres before and after the program. The survey included multiple-choice yes-no questions, and the results were analyzed using the McNemar test for paired nominal data with SPSS version 27. Results: We included 25 health workers and 28 health cadres. The results showed a significant increase in health worker's knowledge regarding the impact of Congenital Rubella Syndrome on various organs, including the brain, eyes, ears, heart, and child growth and development (p-values: 0.004, 0.004, 0.0004, 0.021, and 0.008, respectively). There was a notable improvement in health cadres' knowledge concerning the impact of CRS on the brain, eyes, ears, heart, child growth and development, and the child's quality of life (p-values: 0.007, 0.000, 0.000, 0.001, and 0.000, respectively). Conclusion: The community engagement program helps to enhance the knowledge of health workers and cadres concerning the impact of Congenital Rubella Syndrome on patients. 
Co-Authors Agung Triono Agung Triono, Agung Ashadi Prasetyo Avianti Pramastuti Damroni, Rais Aliffandy Diantika, Kania Elisabeth Siti Herini Hadiyanto, Marissa Leviani Iskandar, Kristy Kania Diantika Kristy Iskandar Marissa Leviani Hadiyanto Mei Neni Sitaresmi Mooiindie, Khansadhia Hasmaradana Nugrahanto, Andika Priamas Paramastuti, Avianti Prasetyo, Ashadi Purjanto Tepo Utomo Ratni Indrawanti Timoti, Joshua Veronica Wulan Wijayanti Widyandana Widyandana Wijayanti, Veronica Wulan