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All Journal South East Asia Nursing Research Indonesian Journal of Global Health research Makara Journal of Health Research
Huang, Xuan-Yi
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Education Health Professions Languange, Linguistic, Communication & Media Nursing Public Health

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Exploring the Experience of Stigma among People Living with HIV in Bali, Indonesia: Qualitative Phenomenological Study Hidayat, Jufri; Huang, Xuan-Yi; Lin, Hung-Ru; Wei, Shiow-Jing; Chen, Miao-Yen; Pranata, Satriya
Makara Journal of Health Research Vol. 26, No. 1
Publisher : UI Scholars Hub

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Abstract

Background: Human immunodeficiency virus (HIV)-related stigma continues to be a serious problem for people living with HIV (PLWH). This study aimed to explore stigma experience among PLWH in Bali, Indonesia. Methods: This research was a qualitative descriptive phenomenological study. With the help of a local clinician–researcher and the staff of the United Nations Program on AIDS Commission, Bali, 10 participants were recruited by purposive sampling and participated in semi-structured interviews via WhatsApp online audio from April to December 2021. Data were analyzed using Colaizzi’s process. Results: The following three themes emerged: (1) experiencing discrimination, (2) getting stronger through stigma experiences, and (3) receiving support. Interviews revealed that PLWH in Bali experience stigma and discrimination across settings, including communities, families, friends, employers, and health care. Some participants could turn the pressure of stigma into a source of strength, making them psychologically and mentally strong. This phenomenon mostly happened when the patients had positive attitudes toward illness and good coping mechanisms. Conclusions: This study showed the importance of support from family, friends, and organizations in surviving stigma. For PLWH, having a sense of self-support and resilience and adaptive mechanisms also help ease the negative effects of stigma and discrimination.
Caregiver Burden of People with Schizophrenia: a concept analysis Gunawan, Indra; Huang, Xuan-Yi; Restiana, Nia; Rosnawanty, Rossy; Saryomo, Saryomo; Falah, Miftahul
South East Asia Nursing Research Vol 5, No 2 (2023)
Publisher : University of Muhammadiyah Semarang

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.26714/seanr.5.2.2023.12-22

Abstract

The term burden of care has been widely used in current nursing reference sources, but the definition of the concept of the burden of caring for caregivers of people with Schizophrenia has never been studied. Therefore, this article aims to analyze and provide relevant information related to the caregiver burden of people with Schizophrenia. This literature study uses an electronic article search tool from several online database sources such as (CINAHL (Cumulative Index for Nursing and Allied Health), PubMed, Google Scholar, Cochrane Library), health official websites (both non-government or government), and dictionaries. This analytical study adopts the principles of Walker and Avant to identify the attributes, antecedents, and consequents of this concept. This study has identified the attributes, antecedents, and consequences of the concept of caregiver burden of people with Schizophrenia. The attributes include Unequal distribution of responsibilities, persistent fatigue, and perception. Meanwhile, the antecedents are a lack of formal and informal social support, the conflict of various duties, and limited social activities. The last, in this study, has revealed the concept's negative consequences, including decreased quality of care, poor quality of life, and physical and psychological problems. A clear understanding of the caregiver burden of people with Schizophrenia has been defined. The results of this study can be used as a knowledge base for scientific development to improve the quality of nursing interventions, especially for caregivers of people with Schizophrenia.
A Lived Experience of Being A Family Caregiver for People with Schizophrenia in Indonesia; A Phenomenological Study Gunawan, Indra; Huang, Xuan-Yi; Restiana, Nia; Rosnawanty, Rossy
Indonesian Journal of Global Health Research Vol 6 No 3 (2024): Indonesian Journal of Global Health Research
Publisher : GLOBAL HEALTH SCIENCE GROUP

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.37287/ijghr.v6i3.3147

Abstract

The family caregiver is significant in helping their relatives with schizophrenia by providing care support. At the same time, the long period and constant caregiving process can negatively affect the caregiver's condition physically and mentally. Understanding these phenomena is needed to create an appropriate intervention to solve the caregiving issues. Objective: This study aimed to explore family caregivers' experiences in providing care for family members with schizophrenia in Indonesia. Method: This study uses a phenomenological qualitative approach conducted from July to December 2022 in West Java, Indonesia. Fourteen primary caregivers were recruited using purposive sampling, meaning they have lived with the client for at least one year, are close relatives, and bear almost all of the care duties. An in-person face-to-face interview was driven to gather the data by following semi-structured questions as a reference. The narrative was analyzed by adopting the seven steps of Colaizzi's method. Results: Three themes and nine sub-themes were identified: lack of support in caregiving, lose yourself, and caregiving burden. Conclusions: These study findings provided a deep understanding of the experiences of Indonesian family caregivers in providing care to family members with schizophrenia at home.
Co-Authors Chen, Miao-Yen Hidayat, Jufri Indra Gunawan Lin, Hung-Ru MARIA BINTANG Miftahul Falah Restiana, Nia Rosnawanty, Rosy Saryomo, Saryomo Satriya Pranata Wei, Shiow-Jing