Lin, Hung-Ru
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Exploring the Experience of Stigma among People Living with HIV in Bali, Indonesia: Qualitative Phenomenological Study Hidayat, Jufri; Huang, Xuan-Yi; Lin, Hung-Ru; Wei, Shiow-Jing; Chen, Miao-Yen; Pranata, Satriya
Makara Journal of Health Research Vol. 26, No. 1
Publisher : UI Scholars Hub

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Abstract

Background: Human immunodeficiency virus (HIV)-related stigma continues to be a serious problem for people living with HIV (PLWH). This study aimed to explore stigma experience among PLWH in Bali, Indonesia. Methods: This research was a qualitative descriptive phenomenological study. With the help of a local clinician–researcher and the staff of the United Nations Program on AIDS Commission, Bali, 10 participants were recruited by purposive sampling and participated in semi-structured interviews via WhatsApp online audio from April to December 2021. Data were analyzed using Colaizzi’s process. Results: The following three themes emerged: (1) experiencing discrimination, (2) getting stronger through stigma experiences, and (3) receiving support. Interviews revealed that PLWH in Bali experience stigma and discrimination across settings, including communities, families, friends, employers, and health care. Some participants could turn the pressure of stigma into a source of strength, making them psychologically and mentally strong. This phenomenon mostly happened when the patients had positive attitudes toward illness and good coping mechanisms. Conclusions: This study showed the importance of support from family, friends, and organizations in surviving stigma. For PLWH, having a sense of self-support and resilience and adaptive mechanisms also help ease the negative effects of stigma and discrimination.
Experiences of Indonesian women with breast cancer underwent treatment decision-making: A qualitative study Sitanggang, Yenni Ferawati; Lin, Hung-Ru
Belitung Nursing Journal Vol. 10 No. 4 (2024): July - August
Publisher : Belitung Raya Foundation, Indonesia

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.33546/bnj.3395

Abstract

Background: Patients with breast cancer face a complex situation upon receiving their diagnosis and considering future treatment options. In Indonesian culture, relatives and others significantly influence decision-making processes. Understanding the perspectives of Indonesian women with breast cancer regarding treatment decision-making can enhance satisfaction with the care provided. Objective: This study aimed to explore the experiences of Indonesian women with breast cancer regarding treatment decision-making. Methods: A qualitative descriptive study design was utilized. Purposive sampling was employed to select the study participants. In-depth interviews were conducted with 15 women with breast cancer between March and June 2023. The data were analyzed using thematic analysis. Results:  Three main themes were developed: 1) Emotional impact and uncertainty in cancer care, 2) Clear communication and support for patients, and 3) Family-centered decision-making in treatment planning. Conclusion: This study highlights the perspectives of Indonesian women with breast cancer on treatment decision-making. Nurses play a crucial role in providing clear information to patients and their families during the decision-making process. Understanding the experiences of women with breast cancer can help support and empower patients through effective communication while they undergo treatment.