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All Journal Sari Pediatri Paediatrica Indonesiana
Fitri Primacakti, Fitri
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Health Professions Medicine & Pharmacology

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Family functioning, parental cancer-related emotions, and quality of life in childhood cancer patients Andriastuti, Murti; Fathinasari, Anisa Dwi; Arafah, Nurani Rahma; Asa, Annisa Aditya; Salsabila, Khansa; Primacakti, Fitri
Paediatrica Indonesiana Vol 64 No 3 (2024): May 2024
Publisher : Indonesian Pediatric Society

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.14238/pi64.3.2024.250-7

Abstract

Background Childhood cancer and its treatment affects not only children’s health, but also children’s and families’ psychosocial function, relationship, emotion, and quality of life. Several studies in developed countries have been conducted to address this issue using the Family Adaptation and Cohesion Scales (FACES) III and the Situation-Specific Emotional Reaction Questionnaire (SSERQ). Screening psychosocial problems is crucial as part of cancer comprehensive care. Objective To investigate the dynamics of family functioning, parental cancer-related emotions, and to evaluate possible associations with the child's quality of life. Methods This cross-sectional study was done in child with cancer aged 0-18 years. Parents completed the validated Indonesian versions of three sets of questionnaires regarding subjects’ quality of life (PedsQL), family function (FACES III), and family cancer-related emotions (SSERQ). Validity and reliability tests were done to assess the Indonesian versions of the questionnaires. Results A total of 269 subjects were recruited. Parental proxy of PedsQL evaluations revealed that the 8-12-year-old age group had significantly lower score than the other groups (P=0.014). Solid tumor subjects had significantly lower PedsQL score compared to subjects with hematological malignancy (P=0.001). The FACES III questionnaire results showed that connected families tended to have better PedsQL score based on children’s evaluation compared to disengaged families (P=0.049). No significant difference was found between adaptability of family function and PedsQL score. The SSERQ revealed significant associations between negative emotions and lower PedsQL scores in the children (all P=0.000). Conclusions Parental proxy of PedsQL scores were significantly lower in older children (8 to 12 years). Children with connected families have significantly higher PedsQL scores than disengaged families, for the PedsQL children’s evaluation. Parents’ emotions (loneliness, helplessness, and uncertainty) experienced by a family member of a child with cancer are also correlated with lower PedsQL scores by both evaluations.
Bleeding outcomes and musculoskeletal function in adolescents having severe hemophilia A: a case series Primacakti, Fitri; Prasetyo, Marcel; Fauzia, Sri Novia; Sarita, Raisa Cecilia; Chozie, Novie Amelia
Paediatrica Indonesiana Vol. 65 No. 3 (2025): May 2025
Publisher : Indonesian Pediatric Society

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.14238/pi65.3.2025.268-72

Abstract

As an emerging country, Indonesia is still in the process of implementing prophylaxis as a standard of care for managing hemophilia with limited real-world evidence in Indonesian patients. This case series details the effects of tertiary prophylaxis with an intermediate dose of factor VIII concentrate on bleeding outcomes and musculoskeletal function in three Indonesian adolescents suffering from severe haemophilia A and associated arthropathy.
Pengetahuan Tenaga Kesehatan Mengenai Diagnosis dan Tata Laksana Hemofilia: Studi Analisis Pra-Pasca Sesi Edukasi pada Delapan Provinsi di Indonesia Chozie, Novie Amelia; Primacakti, Fitri; Sarita, Raisa Cecilia; Gatot, Djajadiman; Abigail, Dina Clarisa Rumora; Atmakusuma, Tubagus Djumhana
Sari Pediatri Vol 27, No 3 (2025)
Publisher : Badan Penerbit Ikatan Dokter Anak Indonesia (BP-IDAI)

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.14238/sp27.3.2025.187-92

Abstract

Latar belakang. Tingkat pengetahuan tenaga kesehatan (nakes) memiliki peranan penting dalam diagnosis dan penanganan hemofilia, terutama dokter umum sebagai tenaga kesehatan lini pertama. Maka dari itu, kami mengadakan sesi edukasi untuk nakes mengenai manajemen dan diagnosis hemofilia. Tujuan. Studi ini bertujuan untuk menganalisis dampak sesi edukasi bagi pengetahuan nakes terhadap diagnosis dan tata laksana hemofilia di delapan provinsi di Indonesia.Metode. Studi ini menggunakan desain potong-lintang, deskriptif, analisis data sekunder dari kuesioner terstruktur, yang diisi secara mandiri sebelum (pra) dan sesudah (pasca) sesi edukasi, berisikan pilihan ganda berjumlah 8 soal berkaitan dengan pengetahuan dasar hemofilia untuk menemukan dampak sesi edukasi. Analisis data menggunakan Tes Wilcoxon.Hasil. Total partisipan sesi edukasi berjumlah 1231 dengan 983 mengisi data diri lengkap dan 565 memenuhi kriteria inklusi. Mayoritas dari partisipan yang memenuhi kriteria adalah dokter umum (46,7%) diikuti dokter anak (9,2%), dan dokter penyakit dalam (3,4%). Hasil tes pra dan pasca sesi edukasi dilakukan analisis. Skor median untuk tes pra-sesi adalah 5 (0-8) dan pasca-sesi adalah 7 (3-8). Hasil dari Tes Wilcoxon didapatkan p<0,0001.Kesimpulan. Perbaikan skor setelah sesi edukasi menunjukkan peningkatan pengetahuan yang signifikan pada nakes mengenai hemofilia, yang dapat berkontribusi pada diagnosis dan tata laksana hemofilia di Indonesia.
Co-Authors Abigail, Dina Clarisa Rumora Arafah, Nurani Rahma Asa, Annisa Aditya Atmakusuma, Tubagus Djumhana Djajadiman Gatot Fathinasari, Anisa Dwi Fauzia, Sri Novia Marcel Prasetyo Murti Andriastuti, Murti Novie Amelia Chozie Salsabila, Khansa Sarita, Raisa Cecilia