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All Journal Jurnal Keperawatan Jurnal NERS AKSIOLOGIYA : Jurnal Pengabdian Kepada Masyarakat South East Asia Nursing Research Humanism : Jurnal Pengabdian Masyarakat Jurnal Keperawatan Soedirman (The Soedirman Journal of Nursing) Warta LPM Journal Of Health Innovation And Community Services
Choliq, Idham
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Religion Humanities Economics, Econometrics & Finance Education Engineering Health Professions Nursing Public Health Social Sciences

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Journal : Jurnal NERS

 1 
Caregiving experiences among parents of children with physical and intellectual disabilities: a qualitative systematic review Mundakir, Mundakir; Choliq, Idham; Sukadiono, Sukadiono; Fitriyani, Vika Ramadhana; Firman, Firman
Jurnal Ners Vol. 19 No. 3 (2024): AUGUST 2024
Publisher : Universitas Airlangga

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.20473/jn.v19i3.55282

Abstract

Introduction: This study aimed to identify caregiver experiences encountered by parents of children with physical and intellectual disabilities. Methods: The study used a systematic review method with the guidelines of Enhancing Transparency in Reporting the Synthesis of Qualitative Research (ENTREQ) and PRISMA 2020. The review focused on parents caring for children with physical and intellectual disabilities. The literature was searched for relevant studies from five electronic databases including PubMed, CINAHL, Web of Science (core collection), Cochrane, and Scopus. This systematic review examined 14 articles out of a total of 63,400 articles found. The study used a thematic analysis method to analyze the study. Results: Providing care for children with physical and intellectual disabilities requires addressing a variety of challenges. It is critical to have a comprehensive understanding of these intricacies to ensure that families receive the necessary support and interventions. Our synthesis identified seven themes: (1) gendered and emotional experiences, (2) compromising quality of life: physical and psychological impact, (3) lack of knowledge about disabilities, (4) lack of social support, (5) stigma, (6) uncertain future of the recipient, and (7) unavoidable caregiving responsibility. Conclusions: The results of this study provide recommendations that health professionals and researchers further explore these challenges and strive to build a supportive and inclusive environment that recognizes the unwavering dedication of parents and prioritizes the optimal care and development of children with disabilities. Keywords: children, disability, parent, qualitative systematic review
Parenting self-efficacy mediates relationship between caregiving burden and parenting stress among parents of adolescents with disabilities: a cross-sectional study Mundakir, Mundakir; Choliq, Idham; Sukadiono, Sukadiono; Vika , Ramadhana Fitriyani; Firman, Firman
Jurnal Ners Vol. 20 No. 2 (2025): VOLUME 20 ISSUE 2 MAY 2025
Publisher : Universitas Airlangga

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.20473/jn.v20i2.68276

Abstract

Introduction: The study examines the role of parenting self-efficacy as a mediator in the relationship between caregiver burden and parenting stress. Methods: A cross-sectional study was conducted with 204 parents of children with disabilities. Data were collected using self-administered questionnaires, including the General Information Questionnaire, Zarit Burden Interview Questionnaire, Parenting Sense of Competence Scale (PSOC Scale), and Parenting Stress Index. Data analysis included multiple linear regression and Hayes’s PROCESS Macro. Results: The mean scores for caregiving burden, parenting self-efficacy, and parenting stress were 16.98 (SD = 10.10), 31.03 (SD = 6.72), and 61.72 (SD = 12.84), respectively. Parenting stress was negatively correlated with parenting self-efficacy (r = –0.35, p < 0.001). The findings reveal that caregiving burden significantly reduces parenting self-efficacy (B = −0.16, p < 0.001), which in turn lowers the ability of caregivers to manage stress (B = −0.48, p < 0.001). While caregiving burden has a direct effect on parenting stress (B = 0.07, p < 0.001), the total impact, including both direct and indirect influences, remains significant (B = 0.52, p < 0.001) with mediation percentages of 12.9%. Conclusions: The findings suggest that strategies to enhance parenting self-efficacy could significantly reduce the negative impact of caregiving burden on parenting stress. By improving self-efficacy, caregivers may better manage stress, highlighting the importance of targeted interventions that boost self-efficacy.
Co-Authors Agus Budiman Dede Nasrullah Fatkur Huda Fery Efendi, Junaidi Firman Firman Firman Fitriani, Vika Ramadhana Fitriyani, Vika Ramadhana Ichda Wahyuni, Holy Lihabi, Lihabi Lukman Hakim Mundakir Nur Hidayatullah Romadhon Rahman, Islam Syarifur Rohmayani, Vella Setiyowati, Arin Sukadiono, Sukadiono Syaifurrahman, Islam Syarifurahman, Islam Syarifurrahman, Islam Uswatun Hasanah Vika , Ramadhana Fitriyani Wijaya, M. Febrianto Wilianarti, Pipit Festi