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Parents' Experiences In Facing The Challenges Of Caring For Children With Autism In SLBN B PEMBINA At The Province Level Of West Java 2025 Agri Azizah Amalia; Puji Nurfauziatul Hasanah; Shalsa Agustin
HealthCare Nursing Journal Vol. 8 No. 2 (2026): HealthCare Nursing Journal
Publisher : LP3M Universitas Muhammadiyah Tasikmalaya

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.35568/healthcare.v8i2.7981

Abstract

Caring for a child with autism presents a complex and challenging experience for parents. Autism is a neurodevelopmental disorder that requires special attention and treatment, not only in terms of therapy and education but also from the emotional, social, and economic aspects of parents. This study aims to explore in depth the experiences of parents in facing the challenges of caring for a child with autism at the West Java Province-level Special Needs School for Children with Autism (SLBN B Pembina). This study used a qualitative approach with descriptive phenomenology methods and Colaizzi analysis techniques. Data were obtained through in-depth interviews with four parents who met certain criteria. The results of the study revealed five main themes, namely: 1) Initial emotional response of parents to the child's condition, 2) non-compliance in undergoing therapy, 3) financial burden during child care, 4) efforts to overcome difficulties, and 5) positive child development. These findings indicate that the experience of parents in caring for a child with autism is filled with emotional, social, and financial dynamics that require patience and resilience. Social support and active involvement in therapy are important factors in improving family well-being and child development.
The relationship between parental acceptance and socialization ability among children with special needs grades 1-6 at of state Special School B, Sumedang Regency in 2025 Yulianti, Mona; Puji Nurfauziatul Hasanah; Sobur Setiaman; Siti Nur Kiki Atika
JNKI (Jurnal Ners dan Kebidanan Indonesia) (Indonesian Journal of Nursing and Midwifery) Vol. 14 No. 3 (2026)
Publisher : Alma Ata University Press

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.21927/jnki.2026.14(3).520-530

Abstract

Background: Children with special needs have difficulties in communicating influenced by the lack of parental acceptance, with the development of social skills children with special needs are better due to the support from the environment, especially parents who can accept the presence of children with special needs will try to pay attention to the growth and development of children such as giving attention, meeting needs and sending children to school. Objectives: This study aims to determine the relationship between parental acceptance and the socialization ability of children with special needs grades 1-6 SDLB in SLBN-B Sumedang, Sumedang Regency in 2025. Methods: This study uses descriptive quantitative with a cross-sectional design. The number of samples was 38 students taken using the total sampling technique. Results: The results showed that out of 38 (100) children with special needs, children with special needs who had parental acceptance did not receive 11 people (28.9%), and children with special needs who had parental acceptance received 27 people (71.1%). Children with special needs who have social skills are good at 22 people (57.9%), children with special needs who have enough social skills are 6 people (15.8%), and children with special needs who have social skills are less than 10 people (26.3%). The results of the Chi-Square statistical test showed a p-value = 0.001 (<0.05) which means that the research has a relationship between parental acceptance and the ability to socialize children with special needs. Conclusions: It is hoped that nurses can play an active role in collaborating with teachers, parents and counselors in developing school programs that aim to improve the social skills of children with special needs.