Mulud, Zamzaliza Abdul
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Journal : Jurnal NERS

Navigating care: family information needs and responsibilities in the context of schizophrenia caregiving Fitryasari, Rizki; Nurlela, Lela; Syadiyah, Hidayatus; Yusuf, Ah; Maliah, Iin; Ambarwati, Galuh Adjeng; Mulud, Zamzaliza Abdul; Diba, Rafidah Farah; Sari, Dianis Wulan
Jurnal Ners Vol. 19 No. 3 (2024): AUGUST 2024
Publisher : Universitas Airlangga

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.20473/jn.v19i3.58359

Abstract

Introduction: : Families of schizophrenia patients need   to obtain information from health services about how to care for them. Limited information and understanding of responsibilities in caring are still obstacles to becoming an empowered family in caring for patients with schizophrenia. The study aimed to explore family needs regarding information from health services and family responsibilities when caring for patients with schizophrenia. Methods: This study used a descriptive qualitative design. The study involved families who cared for patients with schizophrenia in Surabaya, Indonesia. Twenty participants were obtained using purposive sampling techniques and the sample size was determined by data saturation. Data were collected using in-depth interviews, field notes and interview question guides. The data were processed with content analysis. Results: The results showed eight themes. Families need information about patient conditions, medication, routine control, and counseling for patient conditions as well as for families. The family describes the responsibilities carried out for the patient as providing support for patient treatment, fulfilling daily needs, helping with social skills, and providing activities in spare time. Conclusions: Adequate information from health services regarding both the patient's condition and family counseling can help to meet the demands of care, which stimulates families to be more empowered to carry out care responsibilities and has an impact on the ability to care better Keywords: counseling, empowerment, family, mental disorder, responsibility, schizophrenia
The impact of self-care behavior on quality of life among patients with heart failure in Malaysia: a cross-sectional study Mohamad, Norfidah; Mulud, Zamzaliza Abdul; Chan, Chong Mei; Razak, Hairil Rashmizal Abdul; Esa, Nor Masita
Jurnal Ners Vol. 20 No. 3 (2025): VOLUME 20 ISSUE 3 (AUGUST 2025)
Publisher : Universitas Airlangga

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.20473/jn.v20i3.67901

Abstract

Introduction: Individuals with heart failure anticipate adjustment to self-care behaviors following hospital discharge. Self-care in heart failure includes medication adherence, dietary modifications, symptom monitoring, and activity adjustment. Adequate self-care behavior may contribute to enhanced outcomes, decreased hospitalization, and improved quality of life in patients with heart failure. This study aimed to determine the level of self-care behavior, quality of life, and its relationships among patients with heart failure. Methods: A cross-sectional study using purposive sampling was conducted among 200 heart failure patients at a teaching hospital in Selangor, Malaysia. The sample size was determined using G*Power to ensure adequate statistical power. Data were collected using the Self-Care of Heart Failure Index (SCHFI) and the Minnesota Living with Heart Failure Questionnaire (MLHFQ). Descriptive statistics, Pearson’s correlation, and multiple linear regression were used in this study. Results: The results indicated that the total mean score of self-care behavior was 145.42 and SD=16.23. Most patients demonstrated good quality of life (n=73, 36.5%), moderate quality of life (n=62, 31%), and poor quality of life (n=65, 32.5 %). Pearson's correlation revealed a significant (p<0.001) correlation (r = 0.651) between self-care behavior and quality of life. Conclusions: In conclusion, this study demonstrated that higher levels of self-care are associated with better quality of life in patients with heart failure. It is recommended that nurses provide individualized self-care education at discharge, focusing on medication adherence, symptom monitoring, and lifestyle changes to improve quality of life.
Caregiver Burden and Depression Among Caregivers of Patients with Chronic Disease Mohamad, Norfidah; Mulud, Zamzaliza Abdul; Tutienande , Nurfeekah Afzatul; Sazaly, Nur Nadhrah; Ibrahim, Nurul Hazirah
Jurnal Ners Vol. 19 No. 2 (2024): MAY 2024
Publisher : Universitas Airlangga

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.20473/jn.v19i2.51301

Abstract

Introduction: Caring for people with chronic diseases is physically and emotionally demanding. It can also have adverse effects on the caretaker, such as depression. Caregiver burden describes the psychological and financial strains of providing care. Depression in caregivers' manifests as concern, indecision, and an inability to feel the future. Chronic disease is a condition that takes a long time to treat and may progressively get worse over time. This study aims to identify the level of caregiver burden and depression and the correlation between burden and depression among caregivers of patients with chronic diseases. Methods: A self-administered questionnaire containing the Caregiver Burden Inventory and Beck Depression Inventory was used to measure caregiver burden and depression among 217 caregivers of patients with chronic diseases in a teaching hospital in the Klang Valley. Results: The findings showed that the majority of caregivers experienced a mild burden (n = 168, 77.4%), a moderate burden (n = 43, 19.8%), and a severe burden (n = 6, 2.8%). Following mild depression (n = 17, 7.8%), moderate depression (n = 15, 6.9%), and severe depression (n = 4, 1.8%), some caregivers experienced minimal depression (n = 181, 83.4%). According to Pearson's analysis, the link between caregiver burden and depression was statistically significant (p<0.000) with a positive correlation (r = 0.408). Conclusion: In this study, caregivers experienced burden and depression due to providing care. Future studies should incorporate support and resources for caregivers, including respite care and counselling that can promote overall well-being.
Understanding predictors of caregivers’ treatment-seeking behavior for mental health: the roles of stigma, motivation, relationship, and literacy Fitryasari, Rizki; Iswanti, Dwi Indah; Sari, Dianis Wulan; Nurlela, Lela; Marthoenis, Marthoenis; Warsini, Sri; Mulud, Zamzaliza Abdul
Jurnal Ners Vol. 20 No. 4 (2025): VOLUME 20 ISSUE 4 (NOVEMBER 2025)
Publisher : Universitas Airlangga

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.20473/jn.v20i4.75117

Abstract

Introduction: Caregivers play a crucial role in seeking timely treatment for individuals with mental disorders. However, reliance on traditional healing practices often leads to delayed medical care. This study aims to identify predictors of caregivers' treatment-seeking efforts, focusing on the role of stigma, motivation, relationship with the patient, and mental health literacy. Methods: A cross-sectional study involving 301 caregivers of patients with mental disorders was conducted in two mental hospitals using cluster sampling. Variables studied include sociodemographic factors, caregiving burden, stigma, social support, motivation, mental health literacy, and treatment-seeking behavior. The data were collected through validated questionnaires as instruments. Multivariate regression analysis was performed to identify significant predictors of treatment-seeking behavior. Results: The study revealed that caregivers' relationship with the patient, perceived stigma, caregiving motivation, and mental health literacy significantly predicted treatment-seeking behavior (p < 0.05). Mental health literacy emerged as the strongest predictor (β = 0.349), followed by motivation (β = 0.202), stigma (β = -0.125), and relationship with the patient (β = -0.108). Together, these variables explained 23.4% of the variance in treatment-seeking efforts. Conclusions: Mental health literacy is the most influential factor in caregivers' efforts to seek medical treatment. Interventions aimed at increasing mental health literacy and reducing stigma are critical to enhancing caregivers' engagement with formal healthcare services. Findings support the development of culturally appropriate education and support programs to improve mental health outcomes.