Kurniawan Taufiq Kadafi
Division Of Pediatric Emergency And Intensive Care, Department Of Pediatrics, Faculty Of Medicine, Universitas Brawijaya, Saiful Anwar General Hospital, Indonesia

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ACHIEVING BETTER QUALITY OF LIFE THROUGH THE PROVISION OF SUPPLEMENTS, MEDICAL AIDS, AND COUNSELLING OF SLE PEDIATRIC PATIENTS AT RSSA MALANG Barlianto, Wisnu; Taufiq Kadafi, Kurniawan; Micho, Rahma
Jurnal Pengabdian Masyarakat Dalam Kesehatan Vol. 6 No. 2 (2024): OCTOBER 2024
Publisher : Universitas Airlangga

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.20473/jpmk.v6i2.55204

Abstract

Introduction: Systemic lupus erythematosus (SLE) in children can interfere with their growth and social functioning and the treatment process is often hampered by low compliance and the unmet secondary needs of the patient. The aim of this community service activity is to improve the quality of life of patients by fulfilling their secondary needs and providing free consultation and education. Methods: This community service was carried out by educating and provide free consultation for 38 SLE pediatric patients accompanied by their parents directly at RSSA, monthly for 6 months, and we emphasise topics on management and healthy lifestyle for SLE patients. We also make this opportunity as a means of monitoring patient's condition which includes disease activity through SLEDAI Score, clinical symptoms, and psychosocial support, and we complete it by providing vitamin D supplements, sunblock, and wheelchairs. Results: All the subjects in this community service were 100% girls and 50% of them had active SLE status with various clinical manifestations. 79% of patients never took vitamin D supplements and all patients did not use sunblock. There were 3 patients with neurological disorders who needed a wheelchair. We provide their secondary needs to maximize the standard therapy we have been doing. After 6 months, there was a decrease in the number of patients who missed monthly controls, and a decrease in patients SLEDAI Score indicating that their lupus activity was appropriately controlled. Conclusion: Although rarely considered, the fulfillment of secondary needs in SLE patients such as vitamin D, sunblock, and wheelchairs for patients with mobility problems is very meaningful to them, which can optimize the main therapy given and make patients routinely attend monthly controls, because they find it helpful in terms of mobility. In addition, they do not need to buy vitamin D and sunblock themselves.
The effect of breastfeeding compared with formula milk on the growth of infants with congenital heart disease: Evidence-based case report Melinda; Permadi, Prasetya Ismail; Yuliarto, Saptadi; Kadafi, Kurniawan Taufiq; Koentartiwi, Dyahris; Rahmadany, Aulya Farra; Fauzi, Muhammad Rizki; Muharrom, Muhammad Aji
Pediatric Sciences Journal Vol. 6 No. 1 (2025): Available online : 1 June 2025
Publisher : Medical Faculty of Brawijaya University, Indonesia

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.51559/pedscij.v6i1.123

Abstract

Introduction: Children with Congenital Heart Disease are at high risk of feeding and growth problems. Nutrition practices for children with CHD still vary widely across institutions, including breastfeeding. This study aims to conduct a critical review to compare the effects of breastfeeding versus formula on the growth of infants with congenital heart disease. Methods: The article search was conducted online using the PubMed, EBSCO, and ProQuest databases with the keywords “Congenital Heart Disease,” “Human Milk,” “Formula,” and “Growth.” Result: Two articles were obtained in the form of systematic review studies. Results of the study stated that in infants with CHD with breastfeeding compared to formula milk Weight for age score is better with breastfeeding because breast milk is easier to digest Conclusion. Breast milk has been shown to have significant benefits on the growth of infants with CHD compared to formula, especially in terms of weight-for-age z-score.