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Penyuluhan Osteoporosis dalam Upaya Pencegahan Komplikasi Tulang pada Pasien Talasemia Mayor di Kabupaten Rembang dan Grobogan Widyastiti, Nyoman Suci; Retnoningrum, Dwi; Ariosta, Ariosta; Nency, Yetty Movieta; Ngestiningsih, Dwi; Partiwi, Rina; Muniroh, Muflihatul; Naviati, Elsa; Afriana, Rizky Dyas
Journal of Dedicators Community Vol 7, No 3 (2023)
Publisher : Universitas Islam Nahdlatul Ulama Jepara

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.34001/jdc.v7i3.3577

Abstract

Background Osteoporosis is a complication that often occurs in thalassemia major patients. This complication is still not widely known. This community service program aims to increase the knowledge of families of major thalassemia patients in Rembang Regency and Grobogan Regency regarding the complications of osteoporosis in thalassemia patients. Methods Education about osteoporosis, risk of osteoporosis in thalassemia patients, and prevention of osteoporosis. Extension method with presentation and discussion. The activity was attended by 20 thalassemia families in the Rembang Regency and 21 families of thalassemia patients in the Grobogan Regency. Before and after counseling, pretest and posttest questionnaires were completed to measure the knowledge of families of thalassemia major patients regarding bone complications in thalassemia patients. Results and Discussion Nearly half (46.34%) of respondents did not know the risk of osteoporosis in thalassemia. After counseling, 82.93% of respondents knew the risk of osteoporosis in thalassemia, but there were still 17.07% of respondents who still did not know this risk. Conclusion There is a significant increase in family knowledge of thalassemia major patients about the risk of osteoporosis in thalassemia. Further efforts to increase knowledge are needed with written information media (leaflets) given to families of thalassemia major patients
Oral Health Problems of Children with Cancer After Chemotherapy: A Literature Review Naviati, Elsa; Afiyanti, Yati; Allenidekania, Allenidekania; Nugroho, Agus
Jurnal Kesehatan Gigi Vol. 12 No. 1 (2025): Juni 2025
Publisher : Jurusan Kesehatan Gigi, Poltekkes Kemenkes Semarang

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.31983/jkg.v12i1.12309

Abstract

Pediatric cancer patients are particularly vulnerable to oral health complications, primarily due to the adverse effects of chemotherapy. This treatment significantly influences both oral health and nutritional status, especially in children diagnosed with acute lymphoblastic leukemia (ALL). Chemotherapy can trigger a range of oral issues, including mucositis, dry mouth (xerostomia), and oral infections, which in turn can hinder proper nutritional intake and compromise overall health. This paper aims to investigate the impact of chemotherapy on oral health and nutrition in pediatric cancer patients, focusing on those with ALL. Through a literature review, the study examines the prevalence and types of oral complications and their effects on well-being. Relevant literature published between 2014 and 2024 was sourced from databases such as EBSCO, ScienceDirect, SpringerLink, ProQuest, and Scopus. Using the PICO (Population, Intervention, Comparison, and Outcomes) framework, articles were selected and critically appraised by two independent reviewers. A descriptive method was employed to analyze the data. Out of 2,465 initially identified articles, eight were selected for in-depth analysis. The findings show that pediatric cancer patients face both immediate and long-term oral health issues, including dental abnormalities and jaw development problems. These complications can cause pain, eating difficulties, and social stigma, negatively affecting the child's quality of life. The study emphasizes the need for early oral health intervention, better training for healthcare providers, and the development of standardized oral care protocols. Future research should aim to assess the effectiveness of targeted oral health interventions in improving nutrition and overall quality of life in pediatric oncology patients. 
Cultural care behaviors of multidisciplinary health workers in preventing neutropenic fever in children with leukemia after chemotherapy: an Ethnonursing study Naviati, Elsa; Afiyanti, Yati; Allenidekania, Allenidekania; Novieastari, Enie
Jurnal Ners Vol. 19 No. 1 (2024): FEBRUARY 2024
Publisher : Universitas Airlangga

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.20473/jn.v19i1.50681

Abstract

Introduction: Neutropenic fever is commonly found in children with leukemia after chemotherapy. Fever occurs when children's immunity decreases after chemotherapy, and they are prone to infection. This study aims to describe the cultural care behaviors of multidisciplinary health workers in preventing neutropenic fever among hospitalized children with leukemia after chemotherapy. Methods: An ethnonursing study was conducted at a cancer referral hospital in Central Java, Indonesia. Data were collected through observation in two Pediatric ward and chemotherapy unit for three months and FGDs and in-depth interviews with health workers who provided care services to leukemia patients post-chemotherapy. Data were collected from 14 informants: six nurses, four doctors, two clinical pharmacists, and two nutritionists. This study employed four phases of Leininger analysis for qualitative data to develop its thematic structures. Results: The analysis of the entire data has revealed five themes: (1) performing antiseptic and aseptic techniques consistently, (2) nurse and dietician collaboration in handling eating difficulties post-chemotherapy, (3) collaborative interactions interdisciplinary in handling medication, (4) patient placement in an isolation room adjusted to patients' conditions, and (5) nurse's challenge to educate patients and their families. Conclusions: Health workers from multiple disciplines play essential roles in preventing neutropenic fever by involving patients, parents, and other family members. It is necessary for the nurses to collaborate with other healthcare professionals and educate patients, and families to participate in the care interventions for these patients in minimizing the occurrence of infection among leukemia patients.