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Journal : Jurnal NERS

Family Support and Quality of Life of Children with Cancer : A Cross-sectional Study Gannika, Lenny; Mulyadi, Mulyadi; Simanjuntak, Susi Roida
Jurnal Ners Vol. 20 No. 1 (2025): VOLUME 20 ISSUE 1 FEBRUARY 2025
Publisher : Universitas Airlangga

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.20473/jn.v20i1.61948

Abstract

Introduction: This study aims to examine the relationship between family support and the quality of life of children with cancer. Methods: This study used a cross-sectional design. The population in this study were children diagnosed with cancer who were getting treatment at the hospital, as well as their parents who cared for them. The sampling technique was consecutive sampling with a total sample of 51 children and 51 parents. Data was collected through a questionnaire consisting of two parts, namely the child's quality of life scale using PedsQLTM 4.0 and PedsQLTM 3.0 Cancer Module and family support using the family support questionnaire. Data analysis was performed using the Pearson correlation test. Results: The study showed that there was a relationship between family support and the quality of life of children with cancer using both the general child quality of life scale (p = 0.001) and with the quality-of-life scale specifically for children with cancer (p < 0.001). Children who received greater family support tended to have a better quality of life compared to children with lower family support. Conclusion: Families play an important role in improving the quality of life of children with cancer. It is important to involve families in the child's care process and to provide education on the importance of family support. Future research should explore other associated factors and family interventions to improve the quality of life of children with cancer.
Early patients' illness perception as a predictor of post-traumatic stress disorder and quality of life one month after mild traumatic brain injury: a prospective study Mulyadi, Mulyadi; Sithichoksakulchai, Siriluk; Gannika, Lenny; Sembiring , Erika Emnina
Jurnal Ners Vol. 19 No. 1 (2024): FEBRUARY 2024
Publisher : Universitas Airlangga

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.20473/jn.v19i1.51316

Abstract

Introduction: The illness perception of mild Traumatic Brain Injury (mTBI) patients before discharge from the hospital tends to be inappropriate. Apart from that, post-injury symptoms such as post-traumatic stress disorder (PTSD) are often experienced by patients, which can affect their quality of life. However, research linking patient perceptions with post-traumatic stress and quality of life remains scarce. This study aimed to examine patient's illness perceptions and their relationship with PTSD and HRQOL. Methods: This study employed a prospective survey. Illness perceptions were measured before hospital discharge, and a follow-up of post-traumatic stress and health-related quality of life using an online survey was conducted one month later. The survey was administered from July to October 2023 at two hospitals, with a sample size of 72 mTBI patients. Results: mTBI patients with older age (p=.001), negative emotional perceptions (p=<.001), more consequence (p=.045), more concern about their injury (p=<.001) are significantly related to more symptoms of post-traumatic stress. Patients with mTBI who felt more identity symptoms of IR (p=.001), worsened personal control (p=.041), and worsened treatment control (p=.011) are significantly related to deteriorated quality of life one month after injury. Conclusions: This study produces evidence that mTBI patients' perceptions before leaving the hospital tend to be inappropriate and are related to post-traumatic stress and quality of life one month later. Based on these results, it is crucial for trauma nurses to identify patients' illness perceptions and initiate appropriate interventions to reduce PTSD symptoms and improve patients' quality of life.