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All Journal Walisongo: Jurnal Penelitian Sosial Keagamaan Al AHKAM: Jurnal Kajian Ilmu Hukum dan Syariah IDEAS: Journal on English Language Teaching and Learning, Linguistics and Literature Jurnal Ekonomi Muamalah SAMARAH: Jurnal Hukum Keluarga dan Hukum Islam Jurnal Ilmiah Al-Syir'ah Al-Amwal : Journal of Islamic Economic Law Kumawula: Jurnal Pengabdian Kepada Masyarakat JURNAL ILMIAH ADVOKASI Jurnal Yustisiabel MADDIKA: Journal Of Islamic Family Law Indo-MathEdu Intellectuals Journal Jurnal Konsepsi Al-Bayyinah DISCOURSE : Indonesian Journal of Social Studies and Education Al-Ma‘ani: Journal of Islamic Studies
Rahmawati Rahmawati
Institut Agama Islam Negeri (IAIN) Palopo
Religion Humanities Decision Sciences, Operations Research & Management Economics, Econometrics & Finance Education Environmental Science Languange, Linguistic, Communication & Media Law, Crime, Criminology & Criminal Justice Mathematics Social Sciences Other

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Ethics and the Right to Palliative Care for Marginalized Communities in Indonesia Dirah Nurmila Siliwadi; Rahmawati Beddu; Takdir Takdir
DISCOURSE: Indonesian Journal of Social Studies and Education Vol. 3 No. 3 (2026): July
Publisher : Citra Media Publishing

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.69875/djosse.v3i3.382

Abstract

This study examines the ethical and moral dimensions of fulfilling the right to palliative care for marginalized communities in Indonesia, an issue that has largely been addressed as a technical-administrative concern rather than as a matter of social justice. The study addresses two questions: how ethical and moral principles conceptualize the right of marginalized communities to adequate and dignified palliative care, and which structural factors most significantly shape inequalities in access to such care within the Indonesian health system. To address these questions, the study employs a normative-ethical review approach combined with a thematic synthesis of six primary documents, including systematic reviews, normative legal studies, and bioethics articles, supplemented by supporting literature. The sources were analyzed according to the two research questions. The synthesis indicates that the right to palliative care has a strong constitutional and legislative foundation and emphasizes patient autonomy; however, its implementation is constrained by the ambiguous legal status of technical guidelines and the dominance of family decision-making over individual autonomy. Inequalities in access are shaped by the concentration of facilities in major cities, limited availability of trained health professionals, a national financing scheme that does not explicitly cover palliative care services, and low public awareness, as reflected in Indonesia’s relatively low position in global quality-of-death rankings. The findings also reveal that existing legal and ethical literature rarely explicitly incorporates socioeconomic vulnerability as an analytical variable. These findings underscore the need for a contextual ethical framework that integrates distributive justice into national palliative care policies in order to strengthen the protection of health rights among vulnerable groups.
Co-Authors Abdain Abdain Abdain Abdain, Abdain Adinda Cahya Amalia, Dinda Aminuyati Anggreni, Cahya Arafat Yusmad, H. Muammar Asmaul Husna Assad, Andi Sukma Dewi Liesnoor Setyowati Dirah Nurmila Siliwadi Dita Dita Ervi Rahmadani Erviani, Ria Fachrurrazy, Muhammad Fadilla, Dian Hisban Thaha Kamisnawati Kamisnawati Khatimah, Khusnul Kurniawati, Nur Misbahuddin Misbahuddin Muammar Arafat Yusmad, Muammar Arafat Muhajir, Muhammad Nur Alam Muhammad Hajarul Aswad A Muhammad Tahmid Nur, Muhammad Tahmid Mustaming Nasaruddin Nasaruddin Nasrullah Bin Sapa Ningrum, Ratih Setia Pasondong, Udin Putri Amalia Rahman R., Abd. Rahmiati Ukkas Saribulan, Saribulan Takdir Takdir Takdir Takdir Takdir Takdir Takdir Takdir, Takdir Tarmizi Tarmizi Taudiyah, Nasya Tisfa Usrah, Ayyada Yasmine Alifah, Adela Putri Yazid, Auliyah Baba Yuyun Lestari, Yuyun Zahra, Rafika Zulkifli, Naurah Ghina Aulia Halid