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Disease Interpretations and Response among HIV-positive Mothers Johanna Debora Imelda
Antropologi Indonesia Vol 35, No 1 (2014): Antropologi Indonesia
Publisher : Department of Anthropology

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Abstract

Despite the growing number of new cases of HIV and AIDS in Indonesia, the progress ofprevention programs has been slow. Low prevalence is always stated as a reason for delayingHIV prevention programs and to justify slow progress in implementation. Prevention programsare moreover based on a high-risk group paradigm. They focus on female sex workers asresponsible for the spread of HIV, leading to its stigmatization as a hooker’s disease. This articledescribes how seropositive mothers interpret and respond to HIV and AIDS as women, in lightof the fact that most of them have not experienced full-blown AIDS. Some women had alreadyexperienced severe illnesses caused by HIV but defined their ill health by the symptoms theyexperienced, revealing that they did not really feel as if they were living with HIV and AIDS.Despite the fact that some members had died due to AIDS, many still could not believe thatthey were suffering from HIV and AIDS or that their illnesses were caused by it; rather, theirsymptoms were of other diseases such as diarrhoea, tuberculosis, or hepatitis. And thoughthey realized that their past (or present) behaviours put them at risk, they maintained thatthey were victims who had contracted the disease from their promiscuous or drug-injectinghusbands. Even when they did admit that their own behaviour had something to do with it,they did not consider HIV and AIDS as a disease but a curse from God, a punishment fortheir immoral behaviour.Keywords: Women, Infectious Disease, Interpretation, HIV and AIDS, Support Group,Indonesia
Menjadi “Positive Deviant” di antara yang Positif (Kajian Deskriptif tentang Anak dengan HIV/AIDS) Johanna Debora Imelda; Annisah .
Antropologi Indonesia Vol 37, No 2 (2016): Antropologi Indonesia
Publisher : Department of Anthropology

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Abstract

Sejak 1987, kasus HIV/AIDS anak di Indonesia meningkat. Beberapa penelitian mengungkapkan anak dengan HIV/AIDS (ADHA) tidak dapat mencapai umur 5 tahun tanpa didukung oleh pengobatan ARV. Namun, data Kemenkes dan dokumentasi yang ada di LSM pemerhati HIV/AIDS menunjukkan sebaliknya. Beberapa anak HIV positif bisa bertahan hidup lebih lama walaupun belum memulai pengobatan ARV. Dalam ilmu sosial dikenal dengan istilah “Positive Deviance”. Penelitian ini mengkaji bagaimana ADHA menjalani hidup sebagai Positve Deviant dan bagaimana keluarga dan sistem sosial mendukung mereka menjalani kehidupan mereka. Penelitian ini menggunakan pendekatan kualitatif dengan menggunakan FGD dan wawancara mendalam untuk pengumpulan data. Informan kunci adalah ADHA yang memulai pengobatan ARV setelah usia 5 tahun. Informan pendukung, yaitu orangtua/wali anak, LSM yang mendampingi, dan dokter yang merawat mereka. ADHA menjadi positive deviant tanpa disengaja karena telat terdeteksi status HIV-nya. Menjalani hidup sebagai ADHA juga tidak mudah karena mereka harus berdamai dengan penyakit dan obat-obatan, mengalami masalah psikososial karena merasa berbeda dengan teman sebayanya, dan sulit untuk berprestasi karena halangan kesehatan. Namun, bantuan dan dukungan terhadap ADHA malah membuat mereka menjadi pahlawan untuk keluarganya karena dianggap sebagai sumber financial untuk mendukung kebutuhan keluarga mereka. Penelitian juga menemukan bahwa keluarga dan sistem sosial memegang peranan penting bagi informan untuk bisa bertahan hidup lebih lama dari ADHA lainnyaKata Kunci: Anak, Positive Deviance, HIV/AIDS, Keluarga, Dukungan Sosial
Restorasi Tingkat Mikro Dalam Sistem Sosial Budaya Indonesia Untuk Mencegah Kematian Ibu Sari Viciawati Machdum; Sofyan Cholid; Annisah .; Johanna Debora Imelda
Antropologi Indonesia Vol 37, No 2 (2016): Antropologi Indonesia
Publisher : Department of Anthropology

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Abstract

Kompleksitas budaya dan wilayah di Indonesia membuat pelaksanaan perlindungan sosial menjadi tidak mudah. Para ibu memiliki faktor internal yang membuat mereka belum dapat mengetahui dan/atau bersedia memanfaatkan program perlindungan sosial di bidang kesehatan secara optimal, sehingga Angka Kematian Ibu (AKI) pada tahun 2015 yang tidak menurun. Penelitian ini menemukan bahwa ada permasalahan faktor internal yang menjadi kekhasan ibu yang usianya masih muda. Selain mereka terhambat oleh perihal administrasi karena belum cukup usia, ibu yang berumur remaja menjadi rentan karena aspek psikologis-nya yang belum matang. Di tengah kondisi sosial dan budaya yang tidak mendukung, kerentanan terhadap para ibu di usia muda menjadikan mereka berada pada posisi yang semakin lemah. Padahal pertumbuhan dan perkembangan para ibu yang sedang mengandung tidak hanya membutuhkan dukungan untuk kebutuhan fisiknya semata. Aspek psikologis juga penting. Bahkan kedua aspek tersebut dapat memberikan implikasi terhadap kesehatan fisik secara langsung. Dalam kaitannya dengan kerentanan ibu di usia remaja, tataran mikro dalam sistem sosial budaya yang kompleks di Indonesia pun menjadi perhatian yang menentukan.Kata Kunci: Jaminan Kesehatan, Kematian Ibu, Kehamilan Tidak Diinginkan, Perlindungan Sosial, Pemasaran Sosial.
NEGOSIASI PERAN IBU BERUSIA REMAJA MELALUI AGENSI Mardhianti, Justine Yohana; Imelda, Johanna Debora
Sosio Informa Vol 5, No 3 (2019): Sosio Informa
Publisher : Pusat Penelitian dan Pengembangan Kesejahteraan Sosial

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.33007/inf.v5i3.1880

Abstract

Perempuan masih menjadi kelompok yang mengalami diskriminasi, bahkan sejak di usia muda. Perempuan diekspektasikan untuk mengikuti standar nilai dan norma tertentu, terlebih dalam hal aktivitas seksual dan keputusan untuk memiliki anak. Tulisan ini berusaha untuk menjelaskan bagaimana pilihan-pilihan yang diambil oleh perempuan remaja terkait kehamilan yang tidak direncanakan dan masa depannya setelah kehamilan, serta tantangan dan pandangan negatif yang diterimanya dari masyarakat. Konsep agensi yang terkait erat dengan konstruksi budaya, intensi, dan relasi kuasa digunakan untuk menjelaskan bagaimana remaja hamil menegosiasikan posisinya untuk mengambil keputusan-keputusan dalam pengasuhan, pekerjaan dan pendidikan mereka.
Mekanisme Perlindungan Sosial Bagi Pekerja Migran Indonesia (PMI) Perempuan Di Hongkong Istianah, Istianah; Imelda, Johanna Debora
Sosio Konsepsia Vol 10, No 2 (2021)
Publisher : Puslitbangkesos Kementerian Sosial RI

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.33007/ska.v10i2.2222

Abstract

 Memenuhi kebutuhan ekonomi dengan bekerja di luar negeri agar mendapatkan uang adalah salah satu manfaat ekonomi yang dicari oleh seorang pekerja migran.  Pekerja migran pun dilindungi melalui skema perlindungan sosial baik di negara asal maupun di negara tujuan seperti  tercantum dalam UU No. 18 tahun 2017 tentang perlindungan pekerja migran pasal 31.  Penelitian ini bertujuan untuk melihat bagaimana mekanisme perlindungan sosial pada Pekerja Migran Indonesia (PMI) Perempuan di Hongkong.  Penelitian ini melibatkan 12 informan dari PMI Perempuan purna penempatan dan sedang dalam masa penempatan di Hongkong.  Penelitian ini menemukan bahwa donasi antar sesama PMI dan pinjaman antar keluarga PMI merupakan mekanisme perlindungan sosial informal yang dibangun oleh PMI di Hongkong.  Pada kondisi tertentu, cakupan perlindungan sosial formal tidak cukup untuk melindungi PMI Perempuan.  Sebagaimana PMI perempuan memiliki hubungan pertemanan yang solid antar kelompok dan komunitasnya, skema perlindungan sosial informal dengan prinsip gotong royong membantu mereka ketika dalam kondisi sakit, pembehentian kerja, atau pun mengalami kecelakaan kerja. KATA KUNCI: Pekerja Migran Perempuan, Perlindungan Sosial, Perlindungan Sosial Informal  To fulfill the economic needs through working abroad in order to raise the wind is one of benefit seeks by the woman migrant workers.  Migrant workers is protected with formal social protection schemes both in origin and destination countries as stipulated in UU No. 18 tahun 2017 about migrant workers protection article 31.  This study aims to apprehend on how is the mechanism of social protection to Indonesian Women Migrant Workers in Hongkong.  12 informants were involved in this study from Indonesian women migrant workers post placement and in placement period.  This study founds that donation and inter-family loan among Indonesian women migrant workers were informal social protection mechanism developed by them in Hongkong.  In certain condition, the coverage of formal social protection is insufficient to to protect Indonesian women migrant workers.  As woman migran workers have solid friendship relations among their group and communities, informal  social protection schemes with gotong royong principle helped them when in illness, unemployment, and work injury. KEYWORDS: Woman Migrant Workers, Social Protection, Informal Social Protection     
IJON DALAM JARINGAN PERDAGANGAN ANAK PEREMPUAN YANG DILACURKAN Johanna Debora Imelda
Populasi Vol 17, No 2 (2006): Desember
Publisher : Pusat Studi Kependudukan dan Kebijakan, Universitas Gadjah Mada

Show Abstract | Download Original | Original Source | Check in Google Scholar | Full PDF (100.89 KB) | DOI: 10.22146/jp.12049

Abstract

This paper explores the mechanism of the ijon system in child trafficking and the actors involved in this network. The focus is on the girls who sell tea in bottles in Jakarta. The bossess in child trafficking using the ijon system to maintain their product (the girl child). They keep the girls under endless debt (either money or moral obligation) eversince their leaved their origin place. The actors involved in maintaining this system are the girls' parents and relatives, the bossess in Jakarta and mediators in their origin place, and the local elites in the village. Ironically, the girls who involved in this network were not aware of the exploitation they are going through. On the other side, which the fact happened, they were exploited economically, physically, psychologically, and sexually.
COPING STRATEGY OF PLWHA THROUGH ECONOMIC EMPOWERMENT: A LITERATURE REVIEW Hannin Pradita N Soulthoni; Johanna Debora Imelda
EMPATI: Jurnal Ilmu Kesejahteraan Sosial Vol 10, No 1 (2021): Empati Edisi Juni 2021
Publisher : Social Welfare Study Program

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.15408/empati.v10i1.19981

Abstract

Abstract. In Indonesia, the HIV-AIDS case is one of the sensitive issues in which the spread of this case continues to increase every year. The problems of people living with HIV-AIDS (PLWHA) consist of physical dimensions, economic dimensions, and social dimensions. A potential intervention model that can be done to help break the vicious circle for PLWHA sufferers is economic empowerment. So it is necessary to support microeconomic finance in carrying out conventional financial practices which can later have implications for health and economic success for PLWHA through collaboration. PLWHA faces conditions of disadvantage in the form of stigma, physical decline, and economic problems. For this reason, it is necessary to have an appropriate coping strategy from PLWHA in the form of empowering micro-business economies. The implementation of economic empowerment needs to require a good support system in the form of collaboration in which the family, government, and NGOs help carry out economic empowerment. The research method used is a literature review. The journal criteria that have been selected by researchers in this study discuss PLWHA, the existence of similarities in research in the form of coping strategies for economic empowerment, as well as being relevant and accredited. The results of the analysis identified PLWHA in overcoming the economic problems they face can be assisted through a coping strategy that focuses on problems (problem-focused coping) by involving collaborators in overcoming these problems through economic empowerment.Abstrak. Di Indonesia kasus HIV-AIDS merupakan salah satu isu sensitif di mana dalam penyebarannya kasus ini terus mengalami peningkatan setiap tahun. Permasalahan orang dengan HIV-AIDS (ODHA) terdiri dari dimensi fisik, dimensi ekonomi, dan dimensi sosial. Model intervensi potensial yang dapat dilakukan dalam membantu melepaskan lingkaran setan bagi penderita ODHA adalah dengan pemberdayaan ekonomi. Sehingga perlu dukungan keuangan mikro ekonomi dalam menjalankan praktik keuangan konvensional yang nantinya dapat menghasilkan implikasi dalam keberhasilan kesehatan dan perekonomian bagi ODHA dengan cara kolaborasi. ODHA menghadapi kondisi tidak beruntung dalam bentuk stigma, penurunan fisik, dan masalah ekonomi. Untuk itu perlu adanya coping strategi yang tepat dari ODHA dalam bentuk pemberdayaan ekonomi usaha mikro. Pelaksanaan pemberdayaan ekonomi perlu membutuhkan support system yang baik dalam bentuk kolaborasi di mana swasta, pemerintah, serta LSM membantu menjalankan pemberdayaan ekonomi tersebut. Metode penelitian yang digunakan adalah literature review. Kriteria jurnal yang telah dipilih oleh peneliti dalam penelitian ini membahas mengenai ODHA, adanya kesamaan penelitian berupa coping strategi pemberdayaan ekonomi, serta relevan dan juga terakreditasi. Hasil analisis mengidentifikasikan ODHA dalam mengatasi permasalahan ekonomi yang dihadapinya dapat dibantu melalui strategi coping yang berfokus kepada masalah (problem focused copping) dengan melibatkan kolaborator dalam mengatasi permasalahan tersebut dengan melalui pemberdayaan ekonomi.
DIGITAL CAPITAL AS INFORMAL SOCIAL PROTECTION IN THE PANDEMIC COVID-19’S ERA (CASE STUDY OF THE WAYANG KULIT ASSOCIATION IN YOGYAKARTA) Chindy Respa; Johanna Debora Imelda
JHSS (JOURNAL OF HUMANITIES AND SOCIAL STUDIES) Vol 5, No 3 (2021): Journal of Humanities and Social Studies
Publisher : UNIVERSITAS PAKUAN

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.33751/jhss.v5i3.3994

Abstract

This article explains digital capital in the wayang kulit (Javanese traditional shadow puppet) association in Yogyakarta during the Covid-19 pandemic era and how its digital capital can protect and serve as informal social protection for the wayang kulit artists association in Yogyakarta in the difficult time. Following the case study method is to investigate WL (Ki SN) association, the group of wayang kulit GP (Ki CB) and SK (Ki GS). The three associations were chosen because they can survive in the middle of the pandemic by holding wayang kulit performances virtually using existing social capital and digital capital. Based on the research results show during the Covid-19 pandemic, digital capital is more effective in providing social protection for group or associations of wayang kulit in Yogyakarta than the traditional social capital scene. The higher the digital capital has seen from the virtual social network (subscriber and viewer or virtual audience), norms of reciprocity, and trust existing with external parties to increase the virtual shows, therefore it can meet the economic needs and welfare of every member in the group and association for facing the pandemic. This research offers a new alternative framework related to digital capital as a informal social protection form. Meanwhile, the practical result is as references for wayang kulit artists to survive in the uncertainty of pandemic and adapt to the challenges of technological digitalization. In addition, it can suggest for the government in formulating rules and an effective model of social protection policy for wayang kulit performances, shadow puppet artists, and in general other artist who rely on art performance as their livelihoods. 
COMMUNITY PARTICIPATION IN ACCELERATING BEHAVIOR CHANGE IN HANDLING COVID-19 Rifatul Mahmudah; Johanna Debora Imelda
JHSS (JOURNAL OF HUMANITIES AND SOCIAL STUDIES) Vol 5, No 3 (2021): Journal of Humanities and Social Studies
Publisher : UNIVERSITAS PAKUAN

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.33751/jhss.v5i3.4020

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Community participation is essential for the sustainability of a policy or program. The World Health Organization (WHO) suggested the importance of community participation in handling the Corona Virus Disease 2019 (Covid-19) pandemic. Behavioural change by implementing health protocol is believed to be a crucial step to control the pandemic. By involving community participation, the effort to accelerate behavioral change will be more sustainable. This paper is a literature review that explains the concept of community participation. This pieace is also pointed out determinants that need to be considered in increasing community participation. The determinants are are effective government, proper definition regarding the related issues, and voluntary and access.
POSITIVE DEVIANCE CASES ON SOCIAL FUNCTIONS OF ELDERLY WARIA (CASE STUDY ON THE ANAK RAJA WARIA SHELTER DEPOK, WEST JAVA) Zaenoon Rabbani; Johanna Debora Imelda
JHSS (JOURNAL OF HUMANITIES AND SOCIAL STUDIES) Vol 5, No 2 (2021): Journal of Humanities and Social Studies
Publisher : UNIVERSITAS PAKUAN

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.33751/jhss.v5i2.3888

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In developing societies, the elderly in Indonesia are generally cared for by their own families traditionally. However, that does not appear to the transgender community in their old age. The discrimination experienced by waria (transgender in Bahasa, red.) begins when they decide to follow their identity as a woman at an early age. During their lifetime, transgender women frequently get discrimination and rejection from the social environment, which causes them to be unable to function socially in a proper way. Fortunately, those experiences are not the case for elderly transgender who lives under the protection of Anak Raja Transgender Shelter established by the Indonesian Transgender Communication Forum (FKWI). This study examines how elderly transgender women in Anak Raja Transgender Shelter can function socially and be accepted by the environment. The case of positive deviance that occurs in elderly transgender women, in social science studies, is said as a case of Positive Deviance. This research is a qualitative study that applies in-depth interviews for data collection. The main informants are elderly transgender women who are more than 60 years old and have been under the protection of Anak Raja Waria Shelter for at least 1 year. Social functioning in the elderly is a multidimensional concept so that the assessment requires several things to be explored such as social support, social networks, social resources, social roles, role functioning, and social activities. This study found that elderly transgender women at the Anak Raja Waria Shelter can fulfill the five assessments because the strong social support comes from both the community itself and the social environment in where they live.