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The Role of Lay Workers in Providing Psychosocial Support for Cancer Patients Hermawan, Stepanus Maman; Wihardja, Hany
Indonesian Journal of Nursing and Health Sciences Vol 6 No 1 (2025): Indonesian Journal of Nursing and Health Sciences: April 2025
Publisher : CV. Global Health Science Group

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.37287/ijnhs.v6i1.5923

Abstract

Psychosocial support plays an important role in improving the quality of life of cancer patients, especially through assistance by lay workers. This study aimed to explore lay workers' experiences in providing psychosocial support to cancer patients. This study used a qualitative approach with an in-depth interview method with 14 participants selected by purposive sampling. Participants were lay workers who had attended basic and advanced palliative training, as well as cancer awareness guidance, and had experience in providing palliative assistance to cancer patients for more than one year. The data collection technique used was deep interviews, which were conducted directly with participants. The data collected were thematically analysed through interview transcription, coding, pattern identification, theme review, and research report preparation. The research identified four main themes: (1) forms of psychosocial mentoring, (2) challenges in mentoring, (3) support and collaboration during mentoring, and (4) strategies and development of psychosocial mentoring. Lay workers used various approaches, including emotional presence, relaxation techniques, moral support, and education to help patients overcome anxiety, fear, and loneliness. The main challenges faced included difficulties in building patient openness, limited lay worker skills, and lack of family support. Support from health workers and collaboration with families play a role in optimizing assistance. Further training is needed to improve lay workers' skills in dealing with complex psychological problems. A more personalized, empathy-based and integrated approach can strengthen support and increase the effectiveness of psychosocial assistance.
Emotional Support and Family Strategies for Patients with Chronic Kidney Disease Undergoing Hemodialysis Kristian, Eben Haezar; Andri, Florensius; Hermawan, Stepanus Maman
Indonesian Journal of Nursing and Health Sciences Vol 6 No 1 (2025): Indonesian Journal of Nursing and Health Sciences: April 2025
Publisher : CV. Global Health Science Group

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.37287/ijnhs.v6i1.6503

Abstract

Chronic Kidney Disease (CKD) is a progressive medical condition that imposes significant physical, psychological, and social burdens on both patients and their families. Long-term hemodialysis therapy demands substantial involvement from family members, not only in logistical support but also in providing emotional stability. However, the emotional role and adaptive strategies of families in supporting CKD patients remain underexplored, particularly in the context of long-term care. This study aims to explore the emotional roles and coping strategies employed by family caregivers of CKD patients undergoing hemodialysis. A qualitative approach with an interpretative phenomenological design was applied. Twelve participants, all immediate family members of patients receiving regular hemodialysis at Hospital X in Pontianak, Indonesia, were selected through purposive sampling. Data were collected through semi-structured in-depth interviews and analyzed using Interpretative Phenomenological Analysis (IPA). The trustworthiness of the data was enhanced through triangulation and member checking. The study identified four major themes: (1) The Emotional Role of the Family in Accompanying the Patient; (2) Adaptive Strategies for Families in Facing the Challenges of Mentoring; (3) Psychosocial Challenges in the Mentoring Process; and (4) Family Meanings and Expectations in Assisting CKD Patients. Family caregiving was found to be not only burdensome but also an opportunity for emotional growth and personal transformation. This study highlights the need for structured psychosocial support and counseling services for families, and proposes the development of a comprehensive family-centered caregiving model in hemodialysis units.
Barriers to Palliative Kader in Assisting Cancer Patients and Families at Home Hermawan, Stepanus Maman; Wihardja, Hany
Indonesian Journal of Global Health Research Vol 6 No 2 (2024): Indonesian Journal of Global Health Research
Publisher : GLOBAL HEALTH SCIENCE GROUP

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.37287/ijghr.v6i2.2719

Abstract

Palliative care programs are important to improve the quality of life of patients and families in the face of life-threatening disease problems through prevention and alleviation of symptoms. This research aims to explore the barriers of palliative kader’s in providing care and assistance to cancer patients and families. This qualitative research is using a descriptive method. The sampling technique in this study was the purposive sampling technique. Participants in this study were 10 palliative kader in the DKI Jakarta area who provided services in the form of care and assistance to cancer patients and families, data collection techniques using in-depth interviews. Four themes emerged in the form of (1) lack of family support, (2) inadequate health promotion media, (3) lack of support system for palliative kader’s, and (4) lack of confidence in the care and assistance of cancer patients and families. This study emphasizes the importance of adaptive coping mechanisms for patients and families so that they can support palliative kader in care and assistance in the form of meeting basic needs. Empowerment increases the ability of palliative kader’s through training to strengthen the duties and roles of kader and coordinate with relevant stakeholders who can accommodate the solution of any obstacles experienced by palliative kader.
Support Obtained by Families in Running Palliative Care Programs for Advanced Cancer Patients at Home Dasat, Mariam; Mulyono, Sigit; Khasanah, Uswatul; Hermawan, Stepanus Maman
Indonesian Journal of Global Health Research Vol 6 No 4 (2024): Indonesian Journal of Global Health Research
Publisher : GLOBAL HEALTH SCIENCE GROUP

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.37287/ijghr.v6i4.3394

Abstract

Palliative care is a service provided to improve the quality of life of patients both physically, psychologically, socially and spiritually. The purpose of this study is to identify the support obtained by families in carrying out palliative care programs for advanced cancer patients at home. This study uses qualitative research design with phenomenological approach with data collection techniques through in-depth interviews with six participants. Data retrieval using snow ball sampling. Found 5 themes of support obtained by families in caring for advanced cancer patients, namely financial support from people around, moral support from people around, support from health workers and hospitals, helping household chores and patients wanting to stay healthy. The palliative care program carried out by families to patients is good because it has received support from health workers, other family members and neighbors or close relatives so that the goal of cancer palliative care is achieved, namely improving the quality of life of patients by meeting physical, psychological, social and spiritual needs.
Self-Transformation of Lay Workers through Field-Based Learning Experiences on Cancer Palliative Care Hermawan, Stepanus Maman; Wihardja, Hany
Indonesian Journal of Global Health Research Vol 7 No 4 (2025): Indonesian Journal of Global Health Research
Publisher : GLOBAL HEALTH SCIENCE GROUP

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.37287/ijghr.v7i4.6289

Abstract

Palliative care is essential in improving quality of life for cancer patients, especially in community settings where access to specialist care is limited. In Indonesia, lay workers play a vital role in bridging formal health services and patients requiring psychosocial and emotional support. This study explores the self-transformation experiences of palliative care lay workers following an advanced palliative cancer training program in Jakarta. Using a qualitative approach with interpretative phenomenological analysis, the study involved 14 participants selected through purposive sampling. Data were collected via in-depth interviews and analysed thematically. Findings reveal four main themes: (1) increased confidence and competence after training, (2) challenges in implementing palliative care in the community, (3) the importance of social and institutional support, and (4) recommendations for improving future training. The study concludes that experiential, context-based training enhances lay workers’ ability to provide holistic care, though systemic support and mentorship are crucial for sustainable impact. This research contributes to the growing evidence on community lay workers in palliative care and offers insights for designing programs that empower lay workers as reliable care agents in community-based cancer management.
Nursing Care for Dengue Fever Patient in the Critical Phase, at a Hospital in West Jakarta Nurhasanah; Ernawati; Permaida; Hermawan, Stepanus Maman
Jurnal Keperawatan Priority Vol. 8 No. 1 (2025)
Publisher : Universitas Prima Indonesia

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.34012/jukep.v8i1.6296

Abstract

Dengue Haemorrhagic Fever is a disease caused by the dengue virus due to the bite of the Aedes aegypti mosquito. Patients will go through 3 phases of this disease: fever, critical, and recovery. A complication that often occurs in the critical phase is dengue shock syndrome. This case report aimed to provide an overview of nursing care for patients in the critical phase of dengue hemorrhagic fever at a private hospital in West Jakarta. Care was provided by Diploma III nursing students for 4 days using a nursing process approach that includes assessment, diagnosis, planning, implementation, and evaluation. Data was collected using interview techniques, observation, and physical and diagnostic examinations. The assessment showed that the patient was in a grade II critical phase, characterized by the appearance of petechiae on both superior extremities without a tourniquet test. The nursing problems raised were the risk of hypovolemia, the risk of bleeding, acute pain, and nausea. The interventions provided focus on preventing bleeding and fluid management. The implementation includes providing appropriate fluid resuscitation, monitoring blood hematology laboratories, and encouraging patients to rest in bed to reduce the risk of other bleeding. On the fourth day of treatment, three nursing problems were solved: the risk of bleeding, acute pain and nausea. The nursing problem that was partially resolved is the risk of hypovolemia. In conclusion, in dengue hemorrhagic patients in the critical phase, nurses need to pay primary attention to the possibility of hypovolemia even though it is not necessarily an actual problem.
BRIDGING THE NURSING CARE GAP: BUILDING QUALITY NURSING SERVICES FOR GAYS WITH HIV/AIDS THROUGH STANDARDIZATION, ENHANCEMENT OF NURSES' COMPETENCE, AND PATIENT PARTICIPATION Malianti Silalahi; Santa Maria Pangaribuan; Permaida Permaida; Stepanus Maman Hermawan
Nursing Current: Jurnal Keperawatan Vol. 12 No. 2 (2024): December
Publisher : Universitas Pelita Harapan

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.19166/nc.v12i2.9050

Abstract

Nursing care is a crucial aspect in addressing health issues, including Human Immunodeficiency Virus (HIV)/ Acquired Immunodeficiency Syndrome (AIDS), especially within the gay population. A lack of knowledge regarding nursing care for this population can hinder the reduction of HIV/AIDS cases. There is a need for HIV/AIDS nursing care standards that are not only comprehensive but also sensitive to the specific perceptions and needs of gay patients. Negative perceptions of nursing care can affect the quality of care and patient involvement in managing their health. Therefore, this study aims to explore these perceptions. This study employed a qualitative descriptive design to gain a deep understanding of the perceptions of gay patients with HIV/AIDS towards nursing care. Data was collected through in-depth interviews with 14 participants selected purposively. The interviews were designed to explore the participants' views, experiences, and expectations regarding the nursing services they received. The collected data was analyzed using thematic analysis, allowing the researchers to identify and categorize the main themes from the gathered information. Two main themes were identified during this study: The desired professional nursing services for gay individuals with HIV/AIDS and the limitations of nurses in involving gay clients with HIV/AIDS in the nursing care planning process. Consistent and standardized nursing care services, as well as enhancing nurses' skills and abilities through mentoring and training, are the expectations of gay individuals with HIV/AIDS towards professional nursing care. A heavy workload is a limitation faced by nurses in providing optimal nursing care to gay individuals with HIV/AIDS.
PENINGKATAN PENGETAHUAN DAN KETERAMPILAN PERAWATAN LUKA DASAR KADER PALIATIF Zendrato, Mey Lona Verawaty; Anggraini, Dian; Dasat, Mariam; Hermawan, Stepanus Maman
JMM (Jurnal Masyarakat Mandiri) Vol 8, No 5 (2024): Oktober
Publisher : Universitas Muhammadiyah Mataram

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.31764/jmm.v8i5.25977

Abstract

Abstrak: Perawatan paliatif dilakukan melalui pencegahan dan tindakan meringankan nyeri, masalah fisik dan sosial, dan spiritual dihadapi pasien selama pengobatan. Perawatan paliatif umumnya ditujukan pada proses pengobatan kanker didiagnosis stadium lanjut. Tujuan dari pengabdian masyarakat untuk meningkatkan softskill dan hardskill para kader palliatif. Peningkatan softskill berupa kemampuan berkomunikasi kepada pasien dan hard skills meliputi kemampuan merawat luka pasien kanker. Metode pelaksanaan pengabdian yaitu penyuluhan dan pelatihan. Pelatihan yang diberikan tentang konsep luka kanker, luka tekan dan luka stoma. Pelaksanaan kegiatan di Graha Yayasan Kanker Indonesia Jakarta pada Juni 2024 melibatkan 32 peserta yang merupakan kader PKK dan kader kesehatan. Evaluasi kegiatan dilakukan dengan metode evaluasi formatif dan evaluasi kualitatif. Evaluasi formatif menggunakan lembar penilaian tindakan, lembar pre and post test. Evaluasi kualitatif merupakan evaluasi di akhir kegiatan.Hasil pre post kegiatan didapati adanya peningkatan pengetahuan kader terkait perawatan luka kanker dan stoma sebelum dan sesudah tindakan, diikuti dengan penilaian sikap > 80.00 (kategori sangat baik) Kesimpulan penting dari pengabdian masyarakat adalah adanya kesadaran dan motivasi keterlibatan kader, dan masyarakat secara maksimal dalam membantu dan merawat pasien dan keluarga penderita luka kanker.Abstract: Palliative care is provided through the prevention and relief of pain, physical and social problems, and spiritual issues faced by patients during treatment. Palliative care is generally aimed at the treatment process for cancer diagnosed at an advanced stage. The goal of community service is to enhance both soft skills and hard skills of palliative care volunteers. The improvement in soft skills involves communication abilities with patients, while hard skills include wound care for cancer patients. The method of implementing this community service involves counseling and training. The training provided covers concepts of cancer wounds, pressure ulcers, and stoma care. The activities took place at Graha Yayasan Kanker Indonesia Jakarta in June 2024, involving 32 participants, including PKK (Family Welfare Program) cadres and health cadres. Evaluation of the activities was conducted using formative and qualitative evaluation methods. Formative evaluation employed action assessment sheets and pre- and post-tests. Qualitative evaluation was performed at the end of the activities. The pre- and post-activity results showed an increase in knowledge among the cadres related to cancer and stoma wound care before and after the training, followed by an attitude assessment of >80.00 (categorized as very good). The key conclusion from the community service is the increased awareness and motivation of cadres and the community to actively assist and care for patients and families suffering from cancer wounds.
MENANGKAL HIPERTENSI PADA LANSIA: HASIL PENGABDIAN MASYARAKAT MELALUI SKRINING, EDUKASI, DAN KONSULTASI KESEHATAN Noviantari, Komang; Silalahi, Malianti; Zendrato, Mey Lona Verawaty; Permaida, Permaida; Hermawan, Stepanus Maman; Ernawati, Ernawati; Anggraini, Dian; Marpaung, Yosi Marin; Dasat, Mariam
JMM (Jurnal Masyarakat Mandiri) Vol 8, No 4 (2024): Agustus
Publisher : Universitas Muhammadiyah Mataram

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.31764/jmm.v8i4.24851

Abstract

Abstrak: Hipertensi, atau tekanan darah tinggi, masih menjadi masalah kesehatan utama dan penyebab kematian terbanyak di dunia, terutama pada lansia. Skrining hipertensi sangat penting untuk meningkatkan kesadaran dan deteksi dini penyakit ini. Pengabdian kepada masyarakat ini bertujuan untuk meningkatkan kesadaran lansia tentang pentingnya hipertensi dan cara mengatasinya. Kegiatan ini dilakukan dalam bentuk skrining, edukasi, dan pemeriksaan kesehatan terkait bahaya hipertensi dengan jumlah peserta adalah 105 lansia. Kegiatan ini dilakukan melalui tiga tahap: perencanaan, pelaksanaan, dan evaluasi. Pada tahap pelaksanaan, dilakukan penyuluhan tentang bahaya hipertensi, skrining tekanan darah, gula darah sewaktu, dan kolesterol total, serta konsultasi kesehatan dengan dokter. Hasil skrining menunjukkan bahwa 37% lansia mengalami pre-hipertensi, 97,5% memiliki gula darah sewaktu normal, dan 40% memiliki hasil kolesterol total tinggi. Evaluasi menunjukkan bahwa lansia yang mengikuti kegiatan ini mendapatkan edukasi terkait bahaya hipertensi, melakukan skrining kesehatan, serta konsultasi kesehatan dari dokter untuk mengatasi hipertensi, Antusiasme lansia terhadap kegiatan ini sangat tinggi.Abstract: Hypertension, or high blood pressure, remains a prevalent health concern and a leading cause of mortality worldwide, particularly among the elderly population. Hypertension screening is crucial for promoting awareness and early detection of this condition. This community service project aimed to raise awareness among elderly individuals about the significance of hypertension and its management strategies. The project involved screening, education, and health examinations related to hypertension risks, targeting 105 elderly participants.The project was implemented in three phases: planning, implementation, and evaluation. During the implementation phase, educational sessions on hypertension risks were conducted, followed by screenings for blood pressure, random blood glucose, and total cholesterol. Additionally, participants received medical consultations with a physician.The screening results revealed that 37% of the elderly participants had pre-hypertension, 97.5% had normal random blood glucose levels, and 40% had high total cholesterol levels. The evaluation indicated that participants gained knowledge about hypertension risks, underwent health screenings, and received medical consultations from a physician to manage their hypertension. The elderly participants demonstrated high enthusiasm for the project.This community service project effectively enhanced awareness and knowledge among elderly individuals regarding hypertension. The project's success highlights the importance of targeted interventions to promote hypertension management and improve the overall health of older adults.