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Journal : Jurnal NERS

Navigating care: family information needs and responsibilities in the context of schizophrenia caregiving Fitryasari, Rizki; Nurlela, Lela; Syadiyah, Hidayatus; Yusuf, Ah; Maliah, Iin; Ambarwati, Galuh Adjeng; Mulud, Zamzaliza Abdul; Diba, Rafidah Farah; Sari, Dianis Wulan
Jurnal Ners Vol. 19 No. 3 (2024): AUGUST 2024
Publisher : Universitas Airlangga

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.20473/jn.v19i3.58359

Abstract

Introduction: : Families of schizophrenia patients need   to obtain information from health services about how to care for them. Limited information and understanding of responsibilities in caring are still obstacles to becoming an empowered family in caring for patients with schizophrenia. The study aimed to explore family needs regarding information from health services and family responsibilities when caring for patients with schizophrenia. Methods: This study used a descriptive qualitative design. The study involved families who cared for patients with schizophrenia in Surabaya, Indonesia. Twenty participants were obtained using purposive sampling techniques and the sample size was determined by data saturation. Data were collected using in-depth interviews, field notes and interview question guides. The data were processed with content analysis. Results: The results showed eight themes. Families need information about patient conditions, medication, routine control, and counseling for patient conditions as well as for families. The family describes the responsibilities carried out for the patient as providing support for patient treatment, fulfilling daily needs, helping with social skills, and providing activities in spare time. Conclusions: Adequate information from health services regarding both the patient's condition and family counseling can help to meet the demands of care, which stimulates families to be more empowered to carry out care responsibilities and has an impact on the ability to care better Keywords: counseling, empowerment, family, mental disorder, responsibility, schizophrenia
Understanding predictors of caregivers’ treatment-seeking behavior for mental health: the roles of stigma, motivation, relationship, and literacy Fitryasari, Rizki; Iswanti, Dwi Indah; Sari, Dianis Wulan; Nurlela, Lela; Marthoenis, Marthoenis; Warsini, Sri; Mulud, Zamzaliza Abdul
Jurnal Ners Vol. 20 No. 4 (2025): VOLUME 20 ISSUE 4 (NOVEMBER 2025)
Publisher : Universitas Airlangga

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.20473/jn.v20i4.75117

Abstract

Introduction: Caregivers play a crucial role in seeking timely treatment for individuals with mental disorders. However, reliance on traditional healing practices often leads to delayed medical care. This study aims to identify predictors of caregivers' treatment-seeking efforts, focusing on the role of stigma, motivation, relationship with the patient, and mental health literacy. Methods: A cross-sectional study involving 301 caregivers of patients with mental disorders was conducted in two mental hospitals using cluster sampling. Variables studied include sociodemographic factors, caregiving burden, stigma, social support, motivation, mental health literacy, and treatment-seeking behavior. The data were collected through validated questionnaires as instruments. Multivariate regression analysis was performed to identify significant predictors of treatment-seeking behavior. Results: The study revealed that caregivers' relationship with the patient, perceived stigma, caregiving motivation, and mental health literacy significantly predicted treatment-seeking behavior (p < 0.05). Mental health literacy emerged as the strongest predictor (β = 0.349), followed by motivation (β = 0.202), stigma (β = -0.125), and relationship with the patient (β = -0.108). Together, these variables explained 23.4% of the variance in treatment-seeking efforts. Conclusions: Mental health literacy is the most influential factor in caregivers' efforts to seek medical treatment. Interventions aimed at increasing mental health literacy and reducing stigma are critical to enhancing caregivers' engagement with formal healthcare services. Findings support the development of culturally appropriate education and support programs to improve mental health outcomes.