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All Journal International Journal of Integrated Health Sciences Majalah Kedokteran Bandung Dentika Dental Journal Althea Medical Journal Nursing News : Jurnal Ilmiah Keperawatan Global Medical and Health Communication Sari Pediatri Padjadjaran Journal of Dentistry Paediatrica Indonesiana Jurnal Keperawatan Padjadjaran Jurnal Pendidikan dan Pelayanan Kebidanan Indonesia (Indonesian Journal of Education and Midwifery Care) JPP Jurnal Kesehatan Poltekkes Palembang Jurnal Medikes (Media Informasi Kesehatan) JK Unila (Jurnal Kedokteran Universitas Lampung) Jurnal Penelitian Keperawatan Kontemporer (JPKK) Kolaborasi Jurnal Pengabdian Masyarakat

Susi Susanah

Universitas Padjadjaran Bandung

Author-ID : 508249

Agriculture, Biological Sciences & Forestry Biochemistry, Genetics & Molecular Biology Dentistry Education Environmental Science Health Professions Immunology & microbiology Medicine & Pharmacology Neuroscience Nursing Public Health

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Burden of Pediatric Cancer Treatment: Results of Online Pediatric Cancer Registry Prototype 1 at A Third Referral Hospital in Indonesia Sari, Nur Melani; Reniarti, Lelani; Suryawan, Nur; Susanah, Susi; Wahyudi, Kurnia
Althea Medical Journal Vol 4, No 3 (2017)
Publisher : Althea Medical Journal

Background: Despite the impressive progress of high-income countries, childhood cancer survival remains low in low and middle-income countries. Cancer is yet to be considered as a significant public health issue which has implicate only few pediatric cancer registry has been well established. The study aimed to describe the burden of pediatric cancer treatment in a third referral hospital in Indonesia through pediatric cancer registry.Methods: A-three-year retrospective analysis of 15 pediatric cancer diagnosed in children aged under 14 years was conducted at Dr Hasan Sadikin General Hospital, Bandung.Â Data were extracted from Online Bandung Pediatric Cancer Registry Prototype 1 and analyzed for age, gender, type of cancer. The outcomes were classified as treatment abandonment, treatment refusal, interrupted treatment, death during treatment, and completed treatment.Results: Seven-hundred and seventy-three children, 452 males and 321 females, were diagnosed with 15 types of malignancies.Â Peak incidence for each malignancy was different: at a young age was found in retinoblastoma and hepatoblastoma (mean; 3yo) while at adolescence in bone tumor and chronic myelocytic leukemia (9.1; 10 yo respectively). Distribution of the foremost malignancies recorded was: acute lymphoblastic leukemia (44.5%), retinoblastoma (15.2%), and non-Hodgkin lymphoma (8.9%). The cancer cure rate was very low (9.5%), treatment abandonment was still high (41.7%) and most patients died (27.8%) in the course of therapy either from advanced disease, infection, or late presentation. Meanwhile, 167 patients still continued the interrupted treatment.Conclusions: Cancer management is the burden for hospital, however the general outcome is very poor.Â

Burden of Pediatric Cancer Treatment: Results of Online Pediatric Cancer Registry Prototype 1 at A Third Referral Hospital in Indonesia Nur Melani Sari; Lelani Reniarti; Nur Suryawan; Susi Susanah; Kurnia Wahyudi
Althea Medical Journal Vol 4, No 3 (2017)
Publisher : Faculty of Medicine Universitas Padjadjaran

Background: Despite the impressive progress of high-income countries, childhood cancer survival remains low in low and middle-income countries. Cancer is yet to be considered as a significant public health issue which has implicate only few pediatric cancer registry has been well established. The study aimed to describe the burden of pediatric cancer treatment in a third referral hospital in Indonesia through pediatric cancer registry.Methods: A-three-year retrospective analysis of 15 pediatric cancer diagnosed in children aged under 14 years was conducted at Dr Hasan Sadikin General Hospital, Bandung. Data were extracted from Online Bandung Pediatric Cancer Registry Prototype 1 and analyzed for age, gender, type of cancer. The outcomes were classified as treatment abandonment, treatment refusal, interrupted treatment, death during treatment, and completed treatment.Results: Seven-hundred and seventy-three children, 452 males and 321 females, were diagnosed with 15 types of malignancies. Peak incidence for each malignancy was different: at a young age was found in retinoblastoma and hepatoblastoma (mean; 3yo) while at adolescence in bone tumor and chronic myelocytic leukemia (9.1; 10 yo respectively). Distribution of the foremost malignancies recorded was: acute lymphoblastic leukemia (44.5%), retinoblastoma (15.2%), and non-Hodgkin lymphoma (8.9%). The cancer cure rate was very low (9.5%), treatment abandonment was still high (41.7%) and most patients died (27.8%) in the course of therapy either from advanced disease, infection, or late presentation. Meanwhile, 167 patients still continued the interrupted treatment.Conclusions: Cancer management is the burden for hospital, however the general outcome is very poor.

Bleeding Patterns among Severe Hemophilia A and B Patients in West Java Muhammad Mufakkirul Islam; Susi Susanah; Amaylia Oehadian
Althea Medical Journal Vol 7, No 2 (2020)
Publisher : Faculty of Medicine Universitas Padjadjaran

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.15850/amj.v7n2.1941

Background: The clinical manifestations of hemophilia A (HA) and hemophilia B (HB)are quite similar; however, the bleeding characteristics of these two hemophilia types have been reported to be different. This study aimed to explore the bleeding patterns among patients with severe HA and severe HB.Methods: A cross-sectional study was conducted among patients with severe HA and HB registered at the West Java Indonesian Hemophilia Society. The inclusion criteria were patients with severe hemophilia diagnosed for at least one year. The bleeding patterns included bleeding episodes and bleeding types. The Mann-Whitney test was used to compare bleeding episodes and a chi-square test for bleeding types.Results: In total, 158 severe HA patients and 21 severe HB patients were included with a median bleeding frequency per patient per year for HA and HB was 24 (range 0–48) and 24 (range 5–48), respectively. The bleeding types in HA and HB were ecchymosis (69% vs. 66.7%), hematoma (62.7% vs. 61.9%), hemarthrosis (99.4% vs. 100%), epistaxis (46.8% vs. 38.1%), gum bleeding (87.3% vs. 95.2%), intracranial hemorrhage (15.2% vs. 9.5%), multiple hematomas (36.7% vs. 47.6%), hemarthrosis-hematoma (61.4% vs.61.9%), and hemarthrosis-ecchymosis (69% vs. 61.9%). However, there was no significant difference in all types of bleeding between HA and HB.Conclusions: There is no difference in the pattern of hemorrhage between severe HA and severe HB in West Java. However, the bleeding phenotypes in hemophilia has considerable implications in the therapeutic process. Further research is needed to optimize the treatment regimens.

Differences in Bleeding Episodes in Severe Hemophilia A Based on Nutritional Status Wenny Simamora; Susi Susanah; Amaylia Oehadian
Althea Medical Journal Vol 7, No 4 (2020)
Publisher : Faculty of Medicine Universitas Padjadjaran

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.15850/amj.v7n4.1938

Background: Hemophilia A is a congenital bleeding disorder caused by the deficiency of coagulation factor VIII and is characterized by joint bleeding, especially in weight-bearing joints. An excess weight may cause bleeding in hemophilia due to increased joint tension. This study aimed to determine the differences in bleeding episodes between severe hemophilia A patients with and without excess weight.Method: A comparative observational analytic study was conducted in March-November 2019 using a cross-sectional design. Subjects were patients with severe hemophilia A registered in the Indonesian Hemophilia Society Association in West Java and had had severe hemophilia A for at least two years old with complete data on date of birth, height, weight, and bleeding intensity. Subjects were divided into groups with excess weight (excess weight) and without excess weight (non-excess weight). Nutritional status in adults was determined based on age-specific percentile BMI. Bleeding episodes were determined as frequency of bleeding in one year. The Mann-Whitney statistical test was used to observe the difference between groups.Result: Of 226 severe hemophilia A patients registered, only 155 patients were included. Of these, 121 patients did not have excess weight and 34 had excess weight. The median bleeding episodes of in the non-excess weight and excess weight groups were 24(1-48) and 24(8-48), respectively (p=0.761).Conclusion: There is no difference in bleeding episodes Between severe hemophilia A patients with excess weight and without excess weight. However, good nutrition education needs to be provided to these patients since excess weight may increase bleeding in joints.

Knowledge towards Thalassemia and Willingness to Screen among Students in Public Senior High School 3 Bandung Rima Destya Triatin; Lulu Eva Rakhmilia; Yunia Sribudiani; Susi Susanah
Althea Medical Journal Vol 9, No 4 (2022)
Publisher : Faculty of Medicine Universitas Padjadjaran

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.15850/amj.v9n4.2730

Background: Thalassemia carrier screening is a major preventive measure potentially influenced by the level of knowledge, particularly in adolescents. Therefore, this study aimed to analyze the effect of health education on knowledge of thalassemia in adolescents and its association with their willingness to do thalassemia screening.Methods: A cross-sectional study was conducted using data regarding knowledge of thalassemia before and after health education sessions from 229 students at Public Senior High-School 3 Bandung. All participants attended a one-day health education in July 2019. A questionnaire was filled in to measure their knowledge regarding thalassemia before and after the session, including knowledge on etiology and definition, risk of disease, clinical manifestations, treatment, complication, prognosis, and disease prevention. Only data with complete questionnaire responses were included. These responses were scored quantitatively and analyzed for their association with participants’ willingness to screen. Results: Participants were knowledgeable concerning thalassemia before the health education session (median, range: 60.0, 25.0-90.0), and knowledge was increased significantly after the education session (median, range: 80.0, 35.0-100.0) with an increased median difference=19.99 (p-value <0.001). Although there was no significant association between the overall post-test score on participants’ willingness to screen (p-value >0.05), the willingness was slightly associated with improved knowledge regarding the risk of disease (OR: 1.02; 95%CI: 1.00-1.03; p-value <0.005). Conclusion: Health education regarding thalassemia significantly increases general knowledge of thalassemia. However, improving knowledge is not significant in influencing adolescents’ motivation to take the screening tests.

Co-Authors Achadiyani Adhi Kristianto Sugianli Adja, Hesti Agus Susanto Amaylia Oehadian Anggraini Alam, Anggraini Ani Sutriningsih Anto, Ambo Bambang Pontjo Priosoeryanto Berton Juniper Manurung Bethy Suryawathy Hernowo Bonnie Arseno Burhan Nasaruddin Dany Hilmanto Deddy Novianto, ⁠Eko Deni K Sunjaya Deni k Sunjaya Deni K. Sunjaya Deni Kurniadi Sunjaya Devis Enjelia Diah Asri Wulandari Dian Fitriyani Dida A. Gurnida Djatnika Setiabudi Dzulfikar Djalil Lukmanul Hakim Enjelia, Devis Evi Nurhidayati, Evi Farid Husin Fouad Hakiem Gaga Irawan Hadyana Sukandar Harry Raspati Achmad herinur Cahyanto Herwanto, Rio Husin, Farid Idham Fadhillah Ikeu Nurhidayah Indah Nurfazriah Irene Arini Ismiyati Ismiyati, Ismiyati Jennifer Hadiman Johanes C Mose Kurnia Wahyudi Kurnia Wahyudi, Kurnia Lelani Reniarti Lelani Reniarti Lelani Reniarti Lulu Eva Rakhmilia Maryam Rusli Meita Dhamayanti Meta Maulida Damayanti Mieke Hemiawati Satari Muhammad Mufakkirul Islam Nelly Amalia Risan Nur Melani Sari Nur Suryawan Nur Suryawan Oktaviana Larasati, Putri Ponpon Idjradinata Ponpon Idjradinata Rangga Walessa Raymond Warouw Reni Yuli Astutik Rima Destya Triatin Sapiie, Tuti Wahmurti A. Sri Endah Rahayuningsih Sri Sudarwati Suhardiansyah Sunjaya, Deni k Suryani, Triska Fajar Suryawan, Nur Tetty Yuniati Tetty Yuniati Triliana Purwadesi Yuliar Udin Sabarudin Versary, An nieza Dea Warsono Warsono Wenny Simamora Yuni Susanti Pratiwi, Yuni Susanti Yunia Sribudiani

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