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Journal : Berkala Ilmu Kesehatan Kulit dan Kelamin

Stigmatization of Leprosy Patients at the Primary Hospital in North Central Timor: a Qualitative Study Rusnah, Fauziyah Nadira Riani; Ika Febianti Buntoro; Nicholas Edwin Handoyo; Herjuni Oematan
Berkala Ilmu Kesehatan Kulit dan Kelamin Vol. 37 No. 1 (2025): APRIL
Publisher : Faculty of Medicine, Universitas Airlangga

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.20473/bikk.V37.1.2025.34-40

Abstract

Background: Leprosy is a chronic bacterial infection that affects the peripheral nervous system, skin, nosend eyes and can cause disability. Clinical symptoms and disabilities can give leprosy patients a negative impression, known as stigma, which can affect their self-acceptance. Purpose: This study aims to analyze the perceptions of leprosy patients at the a primary hospital in North Central Timor regarding the stigma they experience. Methods: The study was a qualitative research, utilizing the in-depth interview method. The sampling technique used purposive sampling, applied maximum variation sampling, and involved 20 patients in the study.The interview results were transcribed and analyzed using the Open Code 4.03 program. The coding results were grouped into themes and subthemes that emerged. Result: This study found that internal and social stigma affected 80% of the 20 leprosy patients at a primary hospital. Misperceptions primarily cause internal stigma, which in turn triggers fear of infection and isolation from the community. Social stigma, also triggered by misperceptions, leprosy symptoms, and disability, leads to discrimination, and ostracism, even in family circles and places of worship. Patients experience negative impacts on their self-esteem, social life, and economy. Conclusion: Leprosy patients experience internal and social stigma, with 16 out of 20 patients affected. Misperceptions, symptoms, and disability due to leprosy are the leading causes. This stigma has far-reaching social, economic, and educational impacts. Support, education, and preventive measures are needed to overcome the stigma that worsens the condition of leprosy patients.
Co-Authors Angi, Stevanii Isabella Artawan, I Made Ayal, Viany Y Bako, Yunri Anggelina Bessie, Vinsensius Apolonaris Bili, Maria Lusia Bela Christina Olly Lada Christina Olly Lada Come, Yansensius Febrianto Ray Conrad L. H. Folamauk Damanik, Efrisca M. Br. Damanik, Efrisca Meliyiuta Boru Datusanantyo, Robertus Arian Dedy, Maria Agnes Etty Deri Riskiyanti Tallo Manafe Diamanta, Agatha D.S. Dwita Anastasia Deo E D, Maria Agnes Elli Arsita Etty Dedy, Maria Agnes Folamauk, Conrad Liab Hendricson Ghawa, Ewaldina Yulsiana Dija Halena Meldy Asa Handoyo, Nicholas E. Herjuni Oematan Herman Pieter Louis Wungouw Hutasoit, Regina Hutasoit, Regina Marvina I Made Artawan Idawati Trisno Indriarini, Desi Iswaningsih, Iswaningsih Jannah, Ike Nur Safitri Miftahul Kareri, Dyah Gita Rambu Koamesah, Sangguana M. J. Koamesah, Sangguana Marthen Jacobus Kresnawati Wahyu Setiono lada, christina olly Legoh, Dickson Alan Lestari, Ni Putu Widaria Atik Liana, Debora Shinta Lidia, Kartini Listyawati Nurina Mariani, Antonia Matulessy, Giovanni Kathlix immanuel Muhajirin Dean Mukin, Yohanes Matius Demo Muntasir, Muntasir Nicholas Edwin Handoyo Nurina, Rr. Listyawati Pakan, Prisca D. Pellokila, Nindy Bethinia Priambada, Ignasius Bima PRISCA DEVIANI PAKAN Putra Milian, Galang Umbu Awang Putu Dinda Pramesti Rahel Rara Woda Rahel Rara Woda Rusnah, Fauziyah Nadira Riani Sagita, Sidarta Setianingrum, Elisabeth Levina Sari Stefanovic, Claudio Tanof, Verentika Putri Tanto, Ayu Cyntia Turupadang, Welem Wijaya, R. Pasifikus Christa William Lie Woda, Rahel Rara Yesenia Belliani Dju