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Reaching the 'New Normal': A Wish for Breast Cancer Patients in Palliative Care Kristiani Sitorus; Enie Novieastari; Tuti Nuraini
JURNAL INFO KESEHATAN Vol 23 No 1 (2025): JURNAL INFO KESEHATAN
Publisher : Research and Community Service Unit, Poltekkes Kemenkes Kupang

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.31965/infokes.Vol23.Iss1.1830

Abstract

More than 80% of breast cancer patients in Indonesia who are diagnosed are at an advanced stage. Advanced cancer treatment is directed at palliative care from the beginning of diagnosis.  Patients undergoing palliative care must adjust to the changing needs that occur during palliative care in line with the decline in the condition of the disease and the impact of its treatment. It can affect changes in the patient's daily life patterns. This study was conducted to explore the unmet needs of breast cancer patients during palliative care in the context of the culture and healthcare system in Indonesia. This study utilized a descriptive qualitative phenomenological method. In-depth interviews with semi-structured interview guidelines were conducted on 14 breast cancer patients undergoing palliative care. The thematic analysis uses the Colaizzi approach. The results of this study obtained three specific themes of unmet needs in the study participants: 1) the need to achieve the 'New Normal' to return to activities with enthusiasm and hope, 2) the need for appreciation and recognition, and 3) Support to overcome the fear of death and the uncertainty of the future. Breast cancer patients want to return to their activities with enthusiasm and hope despite facing physical limitations and emotional challenges. In conclusion, achieving the 'New Normal' is an important aspect of this adjustment process, which involves physical, emotional, social, and spiritual support. This finding differs from previous research, where other publications did not explicitly mention the need to achieve the 'New Normal'. Therefore, the role of nurses in addressing unmet needs, both in the context of the 'New Normal' and more generally, is crucial in palliative care for breast cancer patients. This support enhances the patient's quality of life and gives greater meaning to the remainder of their lives.       
Healthcare Access Inequities Experienced by Patients Supported by Cancer Patient Navigators (NAPAK) Jelita Jelita; Allenidekania Allenidekania; Tuti Nuraini; Riri Maria; Ucip Sucipto
Jurnal Penelitian Kesehatan SUARA FORIKES Vol 17, No 5 (2026): May 2026
Publisher : FORIKES

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.33846/sf170511

Abstract

Cancer patients in Indonesia continue to experience substantial inequalities in accessing healthcare services, driven by structural, geographical, financial, and informational barriers. These disparities often result in delayed diagnosis, fragmented care, and adverse health outcomes. This study aimed to explore the lived experiences of cancer patients receiving navigation services from Cancer Patient Navigators (NAPAK) and to examine how these experiences reflect broader patterns of healthcare access inequality. A qualitative descriptive phenomenological design was employed, involving ten purposively selected participants who met the inclusion criteria. Data were collected through in‑depth interviews and analyzed using thematic analysis supported by NVivo 14 software. Four major themes emerged from the analysis: (1) various healthcare access inequalities, including saturated schedules, complex administrative procedures, geographical distance, financial constraints, and appointment difficulties; (2) the primary role of cancer patient navigators, who provided essential informational, procedural, emotional, and advocacy support throughout the care continuum; (3) transportation and access disparities, highlighting both accessible and severely limited mobility conditions across regions; and (4) the impact of healthcare access disparities on health, reflected in heightened anxiety, psychological distress, physical exhaustion, and emotional burden. Participants also expressed expectations for improved navigation services, enhanced facilities, clearer information systems, and stronger governmental support for insurance programs. The study concludes that healthcare access inequality significantly shapes cancer patients’ physical and psychological well‑being. Strengthening communication between healthcare providers and patients, improving navigation services, and enhancing policy support are critical to reducing disparities and promoting equitable cancer care.Keywords: cancer patient navigation; healthcare access inequality; transportation barriers; patient experience
The impact of navigators on the satisfaction of patients with cancer: A Systematic Review Herminah Winnie Firmus; Allenidekania Allenidekania; Tuti Nuraini; Yossie Susanti Eka Putri
Malahayati International Journal of Nursing and Health Science Vol. 8 No. 2 (2025): Volume 8 Number 2
Publisher : Program Studi Ilmu Keperawatan-fakultas Ilmu Kesehatan Universitas Malahayati

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.33024/minh.v8i2.862

Abstract

Background: Cancer is a disease or part of cells in the body that grows abnormally in parts of the human body and can spread to other parts of the body. Cancer can occur in children and adults. Patient navigators serve as intermediaries between individuals and the healthcare team, assisting patients in addressing and overcoming obstacles that may hinder access to medical services. They offer personalized support throughout the continuum of care, guiding patients through the various stages of their treatment journey. Purpose: To determine the effect of navigators on cancer patient satisfaction. Method: A systematic review approach in line with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. The author used several research article databases, namely PubMed, ProQuest, Science Direct and Sage. 3 articles met the criteria and were analyzed and criticized using the JBI instrument. Results: Patient navigator is an effective strategy to improve diagnosis time, reduce anxiety, and increase patient satisfaction. Conclusion: The role of patient navigator in the context of cancer care can increase patient satisfaction and self-efficacy.
PSYCHOEDUCATION TO COPE WITH CAREGIVER BURDEN OF A MOTHERS OF PATIENTs WITH ACUTE MYELOBLASTIC LEUKEMIA (AML): CASE STUDY Santi Wahyuningsih; Tuti Nuraini; Arif Rahman; Putri Nurfitriani
Jurnal Kesehatan Karya Husada Vol 14 No 2 (2026): Jurnal Kesehatan Karya Husada
Publisher : POLITEKNIK KESEHATAN KARYA HUSDA YOGYAKARTA

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.36577/jkkh.v14i2.558

Abstract

Leukemia is the most common type of cancer in children and adolescents. The most common types of leukemia in children are acute lymphocytic leukemia (ALL) and acute myeloid leukemia (AML). During and after AML therapy, patients become highly dependent on caregivers. This can increase the burden, poor quality of life, and lead to burnout in caregivers. Various interventions have been developed to reduce the burden on caregivers and improve their quality of life. One of which is psychoeducational intervention. Psychoeducational intervention in the form of 1-hour-counseling was carried out to Mrs. M (49 years old), mother of A with AML diagnosis. Prior to counseling, caregivers' burden was measured using the Zarit Burden Interview (ZBI), a caregiver self-report measure with 22 items questionnaire. Within 1 week, monitoring was carried out per telephone for 2 times. On day 7, an evaluation of the caregiver's burden was done. The measurement results showed that there was a decrease in the ZBI score before and after the intervention.
Management oral care mengatasi mucositis pada pasien kanker yang menjalani terapi kemo dan radiasi: A systematic review Ngolu Siregar; Yosie Susanti Eka Putri; Tuti Nuraini
Hik Vol. 19 No. 1 (2025): Volume 19 Nomor 1
Publisher : Program Studi Ilmu Keperawatan-fakultas Ilmu Kesehatan Universitas Malahayati

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.33024/hjk.v19i1.765

Abstract

Background: Oral mucositis (OM) is a common and highly symptomatic complication of cancer therapy that affects the quality of life function. Chemotherapy and radiation are the most widely used interventions in cancer treatment. The prevalence of oral mucositis side effects among 294 head and neck cancer patients was 93.9%. Purpose: To analyze oral care management to overcome mucositis in cancer patients undergoing chemotherapy and radiation therapy. Method: Literature review study using Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines and PICOS approach, P: cancer patients undergoing chemotherapy and radiation, I: oral care management, C: no specific treatment or other standard care, O: reducing severity and accelerating healing, S: randomized controlled trial (RCT). Literature search using keywords “management” AND "oral mucositis" OR “stomatitis” OR “oromucositis” OR “oromucositides” AND "cancer", “management” AND “mucositis” OR “oral mucositis” OR “mucosa inflammation” OR “stomatitis” AND “cancer treatment”. Results: Various methods have been used to treat oral mucositis in cancer patients undergoing chemotherapy and radiation. Although there are differences in the timing, method, and frequency of mouthwash use, most of the literature shows that mouthwash is effective in reducing oral mucositis in patients. Conclusion: Management of oral mucositis can be done to treat and prevent oral mucositis in cancer patients currently receiving chemo and radiation therapy.   Keywords: Cancer; Chemotherapy; Mucositis Oral; Radiotherapy.   Pendahuluan: Oral mucositis (OM) merupakan komplikasi umum dan sangat simtomatik dari terapi kanker yang memengaruhi fungsi kualitas hidup. Kemoterapi dan radiasi adalah intervensi paling banyak digunakan dalam pengobatan kanker. Prevalensi efek samping mukositis oral diantara 294 pasien kanker kepala dan leher adalah 93.9%. Tujuan: Untuk menganalisis management oral care mengatasi mucositis pada pasien kanker yang menjalani terapi kemo dan radiasi. Metode: Penelitian literature review menggunakan panduan Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) dan pendekatan PICOS, P: pasien kanker yang menjalani kemoterapi dan radiasi, I: manajemen perawatan oral, C: tidak ada perawatan khusus atau perawatan standar lainnya, O: mengurangi keparahan dan mempercepat penyembuhan, S: randomized control trial (RCT). Pencarian literatur menggunakan kata kunci “management” AND "oral mucositis" OR “stomatitis” OR “oromucositis” OR “oromucositides” AND "cancer", “management” AND “mucositis” OR “oral mucositis” OR “mucosa inflammation” OR “stomatitis” AND “cancer treatment”. Hasil: Berbagai metode telah digunakan untuk mengatasi mukositis oral pada pasien kanker yang menjalani kemoterapi dan radiasi. Meskipun terdapat perbedaan dalam waktu, cara, dan frekuensi penggunaan obat kumur, sebagian besar literatur menunjukkan bahwa obat kumur efektif dalam mengurangi mukositis oral pada pasien. Simpulan: Manajemen penanganan mukositis oral dapat dilakukan untuk mengatasi dan mencegah mukositis oral pada pasien kanker yang menjalani terapi kemo dan radiasi.   Kata Kunci: Kanker; Mukosisitis Oral; Radiasi; Terapi Kemo.
Kepatuhan discharge planning sebelum dan setelah standardisasi berbasis lean management di rumah sakit pendidikan Friska Simarmata; Hanny Handiyani; Tuti Nuraini; Erna Puspita Sari
Hik Vol. 20 No. 7 (2026): Volume 20 Nomor 7
Publisher : Program Studi Ilmu Keperawatan-fakultas Ilmu Kesehatan Universitas Malahayati

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.33024/hjk.v20i7.3607

Abstract

Background: Suboptimal discharge planning contributes to prolonged length of stay, increased readmission rates, and reduced patient satisfaction. At Hospital X, a type-A teaching hospital, mean length of stay was recorded at 5.3 days, exceeding the hospital's 5-day quality target. Purpose: This study aimed to analyze lean management-based discharge planning implementation and evaluate the impact of standard operating procedure (SOP) socialization on nurse compliance. Method: This quality improvement study followed Lewin's three-stage change model (unfreezing, changing, refreezing). Assessment was conducted through data triangulation comprising in-depth interviews, a questionnaire distributed to 18 inpatient nurses, and direct observation over five weeks (April-May 2026). Findings were analyzed using a POSAC fishbone diagram, SWOT analysis, and the USG (Urgency, Seriousness, Growth) method for problem prioritization. Results: Two main priorities were identified: unsocialized discharge planning SOP (highest USG score: 15) and absence of an estimated discharge date (EDD) from the first day of admission (USG score: 14). Intervention through development and socialization of a lean-based SOP to all inpatient nurses increased mean compliance from 20.6% to 72.6% (+52 percentage points), with two components reaching the 80% target: SOP documentation (80%) and staged patient and family education (85%). Conclusion: Consistent lean management implementation is projected to reduce length of stay toward the 5-day target and sustainably improve discharge planning quality.   Keywords: Discharge Planning; Lean Management; Length of Stay; Nurse Compliance; Nursing Management.
Co-Authors Aam Sumadi Abdul Gowi Abdul Madjid Achir Yani S. Hamid Agung Waluyo Aldri Frinaldi Allenidekania Allenidekania Amalia Nur Aqmarini Amiruddin Amiruddin Andi Amalia Wildani Anik Rustiyaningsih1 Arif Rahman Ayu Ramadhana Barnis Lady Mentari Alamdani Budi Anna Keliat Cynthia Tri Wardhani Dadang Kusmana Darmajayanti, Febry Desta Bambangsafira Dewi Gayatri Dewi Irawaty Dhea Natashia Dian Anggraini Dian Istiana Diana Irawati Dina Lestari Dwi Suryani Efy Afifah Efy Afifah Elly Nurachmah Enie Novieastari Erna Puspita Sari Evin Novianti Friska Simarmata Gayatri, Dewi Gayatri, Dewi Gayatri, Dewi Gayatri, Dewi Grace Solely Haeril Amir Hanny Handiyani Hareyrha Meiranti Hargiana, Giur Herminah Winnie Firmus Herni Susanti Ice Yulia Wardani Ida Ayu Made Ari Santi Tisnasari Iin Nur Indah Sari Imami Nur Rachmawati Indah Susilowati Indah Susilowati Isran, Isran Jelita Jelita Jelita, Jelita Junaiti Sahar Kristiani Sitorus Kuntarti La Ode A. Rahman Lia Dwi Jayanti Manoppo, Inggerid Agnes Maria Elisabeth Peni Tukan Maria Yulianti Moh Heri Kurniawan Moh. Heri Kurniawan Munezarah Munezarah Munezarah Munezarah Murtiwi Murtiwi Mustikasari Mustikasari Nani Asna Dewi Ngolu Siregar Ngolu Siregar Nisa, Dinar Khoirun Nuniek Setyo Wardani Poppy Fitriani Prayetni Prayetni Purnomo Purnomo Putri Nurfitriani Rachmi, Shanti Farida Ratnawati, Ika Retno Lestari Rifqi Alifa Bestari Riri Maria Rosita, Ita Rr Tutik Sri Hariyati Santi Wahyuningsih Shinta Restu Wibawa Simbolon, Citra Nasrani Natalia Br Siti Utami Dewi Sri Sugiwati Syadza Tazkia Tiara Suciani Tri Setyaningsih Ucip Sucipto Utami, Fadhilah Rizka Waluyo , Agung Wati Jumaiyah Wibawa, Shinta Restu Yati Afiyanti Yeni Rustina Yodang Yodang Yosie Susanti Eka Putri Yossie Susanti Eka Putri Yulia Yasman Yushlihah Rofiati Yusuf