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Journal : Indonesian Journal of Disability Studies

Maternal Barriers in Raising Children with Special Needs in Rural Areas: A Qualitative Study Jiu, Cau Kim; Pitri, Pitri; Pratama, Kharisma; Usman, Usman; Kardiatun, Tutur
Indonesian Journal of Disability Studies Vol. 7 No. 2 (2020)
Publisher : The Center for Disability Studies and Services Brawijaya University

Show Abstract | Download Original | Original Source | Check in Google Scholar | Full PDF (385.437 KB) | DOI: 10.21776/ub.ijds.2020.007.02.04

Abstract

It is not easy for mothers living in rural areas to raise children with special needs because various obstacles arise from both within and outside the family. This study aimed to explore various obstacles for mothers in raising children with special needs, especially in rural areas. The research design used in this study was descriptive qualitative. The sample in this study consisted of 55 mothers who were selected using purposive sampling method. Data collection was carried out through semi-structured face-to-face interviews and through focus group discussions. The data collected in this study was then analyzed using thematic analysis. There are 3 themes generated in this research including 1) family perception, 2) financials, and 3) access to health care services. Information obtained from this research can provide solutions for families to overcome or get out from the existing barriers and provide information to the government to provide health services to families with children with special needs in rural areas.
Family Management on Children with Autism: A Phenomenological Study Winarianti; Jiu, Cau Kim; Kardiatun, Tutur; Bhakti, Wida Kuswida
Indonesian Journal of Disability Studies Vol. 9 No. 2 (2022)
Publisher : The Center for Disability Studies and Services Brawijaya University

Show Abstract | Download Original | Original Source | Check in Google Scholar | Full PDF (239.765 KB) | DOI: 10.21776/ub.ijds.2022.009.02.10

Abstract

Background: Children with autism had disorder in their physical, mental, and cognitive development and socialization function, which then brought burden in family care. Method: This research used phenomenological approach by involving three type families and was conducted in Pontianak, West Borneo. Result: This research found four themes in nuclear families: the role of parent in treatment of ASD, the role of nuclear family as a caregiver for ASD, the virtue of therapy for children and mood change as parent. Three themes in extended family: the role of parent in treatment of ASD, the role of extended family as a caregiver ASD and mood change as parent. Three themes in single parent: the role of single parent with ASD, the virtue of therapy for children and consequences as a single parent. Conclusion: Each type of family had differences of parenting pattern and burden level in treatment of autistic children.
Barriers to Parents in Handling Children with Down Syndrome in Border Areas Jiu, Cau Kim; Nur Jannah
Indonesian Journal of Disability Studies Vol. 11 No. 1 (2024)
Publisher : The Center for Disability Studies and Services Brawijaya University

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.21776/ub.ijds.2024.11.1.8

Abstract

Access and facilities for children with Down syndrome are still very limited, especially in border areas far from urban areas. The remote geographical location becomes an obstacle for parents in utilizing health and educational facilities for children with Down syndrome. This qualitative descriptive research aims to determine the obstacles faced by families in dealing with children with Down syndrome in border areas. Participants in this study were 6 parents of children with Down syndrome who were selected using the purposive sampling method. This research was conducted in one of the Indonesia-Malaysia border areas in West Kalimantan. The research results revealed three (3) themes of parental barriers in dealing with Down syndrome children, such as 1) Family barriers in getting special education for children, 2) Barriers in handling children, and 3) Limited information. Therefore, regional and central government support is very necessary in providing adequate education and health facilities for people with disabilities at the border
Co-Authors Agung Anggara Lukmenda Aliana, Ande Almumtahanah, Almumtahanah Amelia, Lince Amelyadi, Amelyadi Amrullah, Syahid Annisa Rahmawati Ariyani, Peni Aryadi, Deni Ayu Diana Meilantika Ayu Romantika Azzahra, Fasya Bakti, Wida Kuswida Bhakti, Wida Kuswida Cory, Wening Dara, Sokha Dewinta Adelia Diah Ratri Larasati Djaswadi Dasuki Erin Sastrini, Yovita Febriyanti, Adinda Febriyanti, Indriani Gusmiah, Tisa Gusti Jhoni Putra Gusti Jhoni Putra, Gusti Jhoni HARIYANTO HARIYANTO Hartono Hartono Hartono Hartono Haryanto Haryanto Hasria Alang Indri Erwhani Istiqamah, Istiqamah Jhoni P, Gusti Jimmy Pintabar, Andar Junko Sugama, Junko Kardiatun, Tutur Kawuryan, Uji Kiri, Ming Lee, Ava Lestari, Astuti Lestari, Lilis Lidia Hastuti Lisbet Tiurmaida Lukita, Yenni Mansunomi, Veronika Mardiyani, Ridha Mayumi Okuwa, Mayumi Mukai, Kanae Nakatani, Toshio Nilaprapti, Endhang Novianti, Wida Novita, Ninda Nur Jannah Nuril Lutvi Azizah P, Kharisma Pandi, Jul Parliani Pertiwi, Gracia Herni Pitri, Pitri Pradika, Jaka Pratama, Kharisma Puspita, Dinarwulan Rahayu, Indah Dwi Rahmawati, Rahmawati Rungreangkulkij, Somporn Safira, Annisa Saparina, Saparina Sitepu, Juanda Siti Masdah Sri Ariyanti Sri Murthi Lestari Suriadi Jais Surtikanti Surtikanti Surtikanti SURTIKANTI SURTIKANTI Susilawati, Miya Syahid, Syahid Amrullah Syamsuri Tamara, Sena Dwi Tamara Tan, Ethan Tisa Gusmiah tri wahyuni Ujiana, Sugi Usman Usman Usman Usman Usman Vianny , Afrida Wida Novianti Winarianti Wuriani Wuriani Wuriani Wuriani Wuriani, Wuriani Yani, Diah Fauri Yukari, Nakajima Yuli Hidayati Zamzami, Imran