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A Qualitative Study To Explore the Impact of Having Children with Cancer and Parental Adjustment Nurhidayah, Ikeu; Nurhaeni, Nani; Allenidekania, Allenidekania; Gayatri, Dewi; Hendrawati, Sri
Indonesian Journal of Cancer Vol 18, No 1 (2024): March
Publisher : http://dharmais.co.id/

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.33371/ijoc.v18i1.1048

Abstract

Background: Cancer diagnosis in children impacts not only the children themselves but also their parents, and the role of providing support during the treatment process is crucial. The illness’s complexity, the diagnosis process, and the course of treatment can have various effects on parents and family life. To cope with the challenges of caring for their chronically ill children, families adopt a normalization process to restore their routines. Therefore, this study aims to investigate the implications of a childhood cancer diagnosis on families and how parents normalize their daily lives in the face of this difficult situation. Methods: The study was a qualitative study conducted in a pediatric cancer shelter house in Bandung, Indonesia, from May to August 2018. Ten parents who had children with cancer were included in the study. Data were collected through interviews and thematically analyzed.  Results: This study yielded five themes: 1) parents’ negative feelings when children are first diagnosed with the illness, 2) various changes in the family’s life, 3) the impact on the family’s quality of life, 4) family’s extra effort to overcome the illness’s impact and 5) parents’ expectations for social support. Conclusions: Cancer in children has a significant impact on the lives of the entire family, particularly parents. Normalizing the lives of parents who have children with cancer entails several adaptation or adjustment tasks. Nurses can assist families in adapting by guiding how to deal with the changes they are experiencing and accepting this as the new normal. Nurses can help families normalize their daily routines, provide social support, improve coping strategies, increase family closeness, and identify the source of support from other families or the community.
Information Needs among Parents of Cancer Children: A Systematic Review Nurhidayah, Ikeu; Nani Nurhaeni; Isna Hanifah; Allenidekania Allenidekania
Jurnal Promkes: The Indonesian Journal of Health Promotion and Health Education Vol. 12 No. 1 (2024): Jurnal Promkes: The Indonesian Journal of Health Promotion and Health Educatio
Publisher : Universitas Airlangga

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.20473/jpk.V12.I1.2024.112-119

Abstract

Background: When a child is diagnosed with cancer, parents are affected, especially if they are unprepared and do not understand the illness. Parents' informational needs are frequently expressed and vary, so identifying parent needs is critical before providing health or nursing interventions. Aims: This review aimed to identify the information needs of parents of children with cancer. Method: PubMed, Medline, and CINAHL were applied to conduct electronic searches. The terms "information needs”, "parent”, "cancer”, and "child” were combined using Boolean expressions "OR” and "AND”. The inclusion criteria were non-experimental studies published in English within the last 10 years (2011-2021). A risk of bias assessment was conducted for each included study using the Joanna Bridge Institute critical appraisal tools. After identification and screening, the articles were filtered according to the criteria with a total of 15 articles included in this study. Furthermore, data extraction and synthesis were carried out. Narrative synthesis is used by collecting information on the findings of the article to be grouped into themes of finding problems. Results: Four themes emerged based on the results of the analysis: types of information needed; information formats; provision of information; and sources of information. Conclusion: This study concluded that parents require accurate information that addresses their specific information needs and is appropriate for their child's cancer stage. The provision of balanced written and verbal information, as well as information that is complete, accurate, and reliable, makes it easier for parents to increase their knowledge about caring for their children.
A Systematic Review of the Impact of COVID-19 on Children's Outcomes Nurhidayah, Ikeu; Mega Tamara; Dyah Setyorini
Jurnal Promkes: The Indonesian Journal of Health Promotion and Health Education Vol. 12 No. SI1 (2024): Jurnal Promkes: The Indonesian Journal of Health Promotion and Health Educat
Publisher : Universitas Airlangga

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.20473/jpk.V12.ISI1.2024.181-194

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Background: The COVID-19 pandemic has had an impact on the health of children. Nurses and healthcare professionals should know the latest information regarding the impact of Covid-19 on children. Aims: This literature review aims to identify the impact of COVID-19 on children's outcomes. Method: This literature study uses the narrative review method. CINAHL, PubMed, Proquest, Science Direct, and Google Scholar were used to conduct the literature search. The keywords used are "Children” AND "Coronavirus Disease 2019” OR "COVID-19” AND "Impact” OR "Effect”. The articles used were subjected to critical assessment. Seven quantitative research articles were reviewed in this literature study. Results: This study shows that the COVID-19 pandemic has impacted children's health and education. In terms of health, COVID-19 causes changes in physical activity to more sedentary behavior, delayed immunization, a negative impact on the mental health of children and adolescents, and children with special needs health. In the education aspect, COVID-19 has brought about a transformation in the field. Conclusion: The ongoing COVID-19 pandemic makes assessing the short- and long-term effects on children difficult. The need to conduct further research will benefit nurses and healthcare professionals in providing appropriate nursing services to children and families.
Mental Health Problems among Adolescent Prisoners: A Literature Review Hidayati, Nur Oktavia; Dewi, Syafira; Mentari, Vanessa Zian; Nurhidayah, Ikeu
Jurnal Keperawatan Komprehensif (Comprehensive Nursing Journal) Vol. 9 No. 4 (2023): JURNAL KEPERAWATAN KOMPREHENSIF (COMPREHENSIVE NURSING JOURNAL)
Publisher : STIKep PPNI Jawa Barat

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.33755/jkk.v9i4.445

Abstract

Aims: The purpose of this literature review is to identify mental health problems in adolescent prisoners. Methods: A literature review method was used. PubMed, Sage Journal, Springer, and EBSCO were used to search for articles. This literature review's inclusion criteria were English publications published during the last ten years, and qualitative and quantitative study. Results: The results obtained were mental health problems that often appear in adolescent prisoners such as behavioral disorders, hyperactivity, violent behavior, Oppositional Defiant Disorder (disobedient behavior), substance use disorders, and anxiety disorders. Conclusions: Mental health services for adolescents in prisons need to be improved to prevent more serious health problems.
Quality of Life of Preschool-Age Children with Thalassemia Major Nurhidayah, Ikeu
Pediomaternal Nursing Journal Vol. 8 No. 2 (2022): VOLUME 8 NO 2 SEPTEMBER 2022
Publisher : Universitas Airlangga

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.20473/pmnj.v8i2.31889

Abstract

Introduction: Health problems caused by thalassemia disease process and treatment affect patients who suffer from this disease, including pediatric patients who are in their preschool age. These problems can interfere with the child's physical, emotional, social, and school functions. This study aimed to describe the quality of life of preschool-age children with thalassemia major in Sumedang and Garut areas. Methods: In this study, a quantitative descriptive design was applied to a sample of 63 parents of children with 3-6 years old children with thalassemia who were recruited using the total sampling approach. The quality of life as a variable was measured using the PedsQLTM 4.0 Generic Core Scales for parent-proxy reports. Data collected were then analyzed for the mean score and categorized into good or poor quality of life, which were then expressed in frequencies and percentages. Results: Results showed that the mean score of quality of life was 75.94, with the mean scores for physical function, emotional function, social function, and school function of 75.79, 71.98, 87.46, and 60.95, respectively. The majority of preschool-age children with thalassemia have poor quality of life. The dimension that receives the most negative influence is the school function. Conculusion: It is suggested that nurses can improve the quality of life of these children by identifying the impaired functions and providing the appropriate care, such as facilitating the needs of these children to receive blood transfusions in hospitals.
Dukungan Sosial bagi Orang Tua yang Memiliki Anak dengan Gangguan Spektrum Autis Nurhidayah, Ikeu; Indriana, Vivi Vitriani; Adistie, Fanny; Hidayati, Nuroktavia
Prosiding Seminar Nasional Keperawatan Universitas Muhammadiyah Surakarta 2023: Prosiding Seminar Nasional Keperawatan Universitas Muhammadiyah Surakarta (Profesi Ners XXVI)
Publisher : Universitas Muhammadiyah Surakarta

Show Abstract | Download Original | Original Source | Check in Google Scholar

Abstract

Autisme merupakan salah satu gangguan perkembangan yang banyak terjadi pada anak. Dalam merawat anak penyandang autis, orangtua akan mendapatkan beban dan imbasnya dapat menyebabkan berbagai masalah. Orangtua membutuhkan dukungan sosial dalam merawat anak penyandang autis, Oleh karena itu penelitian ini bertujuan untuk mengetahui gambaran dukunga sosial pada ornagtua yang memiliki anak penyandang autis. Penelitian ini menggunakan desain deksriptif kuantitatif. Populasi penelitia adalah orangtua yang memiliki anak penyandnag autis di sekolah luar biasa (SLB) Kota Bandung. Sampel penelitian sejumlah 66 orang responden yang diambil dengan teknik total sampling. Dukungan sosial orangtua diukur menggunakan instrumen dukungan sosial yang dikembangkan berdasarkan Teori Sarafino dan Smith. Dukungan sosial dikategorikan sebagai kategori rendah jika jika skormean (56,758). Hasil penelitian menunjukkan sebanyak 35 orang (53%) responden memiliki kategori dukungan sosial tinggi, dan 31 orang (47%) responden memiliki dukungan sosial rendah. Dimensi dukungan instrumental merupakan domain dengan skor tertinggi yang dimiliki oleh orangtua, sementara dukungan emosional merupakan domain dengan skor terendah. Penelitian ini diharapkan dapat menjadi rekomendasi bagi perawat untuk memberikan dukungan bagi orangtua yang dapat berbentuk konseling untuk meningkatkan dukungan emosional bagi orangtua yang memiliki anak penyandang autis.
A Narrative Review of The Effects of Mobile Intervention on Pregnant Women with Depression Hidayati, Nur Oktavia; Nurhidayah, Ikeu; Mufaj, Elda Nurfadila; Prawesti, Sabrina Junieta; Fadilah, Tria Nurhayyu; Ramdhona, Dinyatul Arba
Prosiding Seminar Nasional Keperawatan Universitas Muhammadiyah Surakarta 2023: Prosiding Seminar Nasional Keperawatan Universitas Muhammadiyah Surakarta (Profesi Ners XXVI)
Publisher : Universitas Muhammadiyah Surakarta

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Abstract

Pregnancy is one of the events that every woman experiences before becoming a mother. Many physiological and psychological changes occur in the mother's body during this time. As a result, the mother and fetus suffer from a variety of unfavorable consequences, one of which is depression. Although doctors usually believe antidepressant medicines to be safe for severe depression, most pregnant women are hesitant to use them for fear of negative effects. The purpose of this study is to see how mobile treatments affect pregnant women who are depressed. The narrative review approach is used in this literature study. Search PubMed, EBSCO, and Science Direct databases for papers containing the keywords pregnant women, pregnancy, depression, and mobile intervention with inclusion criteria, such as articles published within the previous 10 years, forms of experimental study, in English, and full-text. Seven final papers were obtained as the number of final articles appropriate for evaluation. The findings of an analysis of seven studies on mobile interventions to reduce the prevalence of depression in pregnant women reveal a substantial decrease. Because mobile intervention is successful in lowering the prevalence of depression in pregnant women, it is advised that it be used as an alternative in delivering the intervention to pregnant women, particularly in situations of depression.
Cancer Care in the Community Setting: A Mixed Method Study Rahayuwati, Laili; Ibrahim, Kusman; Nurhidayah, Ikeu; Komariah, Maria; Amelia, Vira; Cabanes, Ria C
Jurnal Keperawatan Komprehensif (Comprehensive Nursing Journal) Vol. 11 No. 1 (2025): JURNAL KEPERAWATAN KOMPREHENSIF (COMPREHENSIVE NURSING JOURNAL)
Publisher : STIKep PPNI Jawa Barat

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.33755/jkk.v11i1.786

Abstract

Aims: This study evaluated palliative care services in Indonesia, focusing on proposing a community-based model to enhance cancer care. Method: A mixed-method approach was employed, involving quantitative analysis of 200 patients’ personal and treatment factors and qualitative insights from 21 stakeholders to FGDs and in-depth interviews. Results: The qualitative results highlight five themes: 1) illness as a subjective and culturally influenced concept, 2) family’s role in treatment decision-making, 3) perceptions of healing through multiple treatment modalities, 4) finding positive meaning in illness, and 5) hopes and aspirations for recovery. The quantitative results show that 55.5% of patients had inadequate knowledge, with 69.5% preferring modern therapy. A significant relationship was found between knowledge, perception, and treatment options, while no significant correlation was observed with self-confidence or diagnosis date. Conclusion: An integrated community-based palliative care model tailored to Indonesia’s healthcare system is proposed to improve the quality of life for cancer patients.
TINJAUAN LITERATUR: POLA NORMALIZATION BEHAVIOR PADA ORANGTUA YANG HIDUP DENGAN ANAK SAKIT KRONIS Hendrawati, Sri; Nurhidayah, Ikeu; Sutini, Tititn
SINERGI : Jurnal Riset Ilmiah Vol. 2 No. 1 (2025): SINERGI : Jurnal Riset Ilmiah, Januari 2025
Publisher : Lembaga Pendidikan dan Penelitian Manggala Institute

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.62335/gh7sb689

Abstract

Chronic illness in children has an impact, whether physical, psychological, social, spiritual, cultural or economic, not only for themselves but also for their parents and families. Parents have a significant role in helping children with chronic illnesses adapt to the illness and achieve optimal growth. Normalization is a process whereby families try to normalize their daily lives while having children with chronic illnesses. This literature review aims to identify normalization behaviour in parents living with chronically ill children. Articles were collected through EBSCOhost, PubMed, Science Direct, and Scopus electronic database using the keywords normalization behaviour, parent, and chronically ill children using qualitative and quantitative studies. The reviewed articles were only articles with full text, written in English, and published from 2015 to 2024. The methodological quality of this literature review was assessed according to the guidelines of the Critical Appraisal Skills Programme. It found 54 articles and only seven articles met the criteria. In families, especially parents who are experiencing difficulty in coping with chronic illness, there were recommended to promote normalization. Normalization behaviour consists of acknowledging that the impairment is present, defining life as usual, minimizing the social consequences of the illness, and engaging in behaviour that demonstrates normalcy to others. In addition, an individual or family who normalizes accepts that there is a deviation from health but strives to live as usually as possible despite the limitations. Nurses can assist the family in performing normalization behaviour by reviewing the family's daily routines, providing social support, enhancing coping strategies, enhancing family closeness, and identifying family or community support sources
PENGARUH EDUKASI GIZI PADA ORANG TUA DALAM UPAYA PENCEGAHAN STUNTING: SYSTEMATIC REVIEW Kana Wadu, Novita Marcelina; Mediani , Henny Suzana; Nurhidayah, Ikeu
Jurnal Ilmu Keperawatan Anak Vol. 7 No. 2 (2024): November 2024
Publisher : Persatuan Perawat Nasional Indonesia (PPNI) Jawa Tengah

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.32584/jika.v7i2.1381

Abstract

Stunting is a health problem experienced by toddlers in the world today. The World Health Organization (WHO) states that Indonesia is the third country with the highest prevalence of stunting under five in Southeast Asia (29.6%). Stunting is one of the problems of malnutrition that may have a negative impact on child development. Stunting prevention efforts can be carried out through specific nutrition interventions and sensitive nutrition interventions. This effort can be done through nutrition education which is a part of health education and promotion activities, which are health planning efforts to change individual behavior in the health sector. The purpose of this systematic review is to comprehensively examine the effect of nutrition education on stunting prevention and the effective methods that can be used for educational programs. A comprehensive search strategy is carried out using 4 key databases, namely, Pubmed, ProQuest, EBSCO host and Science Direct from 2012-2021 as well as through the Google Scholar Search Engine. The articles used are primary resources using keywords, namely parents, nutrition education and health promotion, prevention of stunting in children, randomized trials and quasi-experiments. Data analysis was carried out with a narrative approach. Based on the search results, found 425 articles but only 9 articles that meet the criteria. The articles obtained prove that nutrition education has an effect on the nutritional status of children which can also be an effort to prevent stunting. Methods that can be used in conducting nutrition education are home visits, counseling, teaching, demonstrations, and discussions. Through these methods nurses can assist in maximizing the implementation of nursing care for stunting prevention through education as a preventive promotive effort.
Co-Authors Aan Nuraeni Aan Nuraeni Aat Sriati Aat Sriati Achadiyanti, Destia Adistie, Fanny Ai Mardhiyah Ai Mardhiyah AI MARDHIYAH, AI Allenidekania Allenidekania Amelia, Vira Anggraeni, Anggoro Susan Anisa Saraswati Asti Oktovianti Atmadiyanti, Ayu Lita Ayu Lita Atmadiyanti Cabanes, Ria C Citra Windani Mambang Sari Depi Lukitasari Dewi Gayatri Dewi, Syafira Dian Palupi Kusuma Dyah Setyorini Eka Puspita Eni Noviyani Eva Nurlaela Fadilah, Tria Nurhayyu Fanny Adistie Fatimah, Sari Gusgus Ghraha Ramdhanie Guztap Jabarul Haq Harvien Amellia Hardanti Henny S. Mediani Henny Suzana Mediani Hidayati, Nuroktavia Ihda Al Adawiyah Mz Indriana, Vivi Vitriani Isna Hanifah Ita Vusfita Iwan Suhendar Julvia Nurvitasari Kana Wadu, Novita Marcelina Karti Nur Aryanti Kusman Ibrahim Laili Rahayuwati Ligina, Neng Lani Lilis Lusiani Lukitasari, Depi M. Randi Gentamandika Putra, M. Randi Gentamandika Mamat Lukman Maria komariah Mediani , Henny Suzana Mega Tamara Mentari, Vanessa Zian Mufaj, Elda Nurfadila Nani Nurhaeni Nenden Nur Asriyani Maryam Nur Maziyya Nur Oktavia Hidayati Nur Oktavia Hidayati Nuroktavia Hidayati Nurvitasari, Julvia Poddar, Sandeep Pratama, Oktarian Pratiwi, Yayu Prawesti, Sabrina Junieta Rahmawati R Ramdhona, Dinyatul Arba Ratih Kusuma Dewi Ristina Mirwanti Saraswati, Anisa Sari Fatimah Sheizi Prista Sari Siti Yuyun Rahayu Fitri Sri Hendrawati Sri Hendrawati Sri Hendrawati Sri Hendrawati Sri Hendrawati Susi Susanah Sutini, Tititn Teti Sholehati Titin Sutini, Titin Triliana Purwadesi Yuliar Wafa Fida Az-zahra Waluya, Jajang Ganjar Wiwi Mardiah