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Gambaran Kualitas Hidup Keluarga Dalam Merawat Anak Dengan Leukemia yang Menjalani Kemoterapi di RSUP Dr. Hasan Sadikin, Bandung GAMAYANTI, PRILIANA; RAKHMAWATI, WINDY; MARDHIYAH, AI; YUYUN, SITI
Indonesian Journal of Cancer Vol 6, No 1 (2012): Jan - Mar 2012
Publisher : "Dharmais" Cancer Center Hospital

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Abstract

Leukemia adalah penyakit neoplastik yang umumnya terjadi pada anak berusia 2-6 tahun dan ditandai dengan akumulasi sel darah putih dalam sumsum tulang. Pengobatan utama pasien leukemia adalah kemoterapi dalam waktu lama sehingga sangat mempengaruhi kualitas hidup anak dan keluarganya sebagai caregiver. Tujuan dari penelitian ini adalah untuk mendapatkan gambaran mengenai kualitas hidup keluarga dalam merawat anak dengan leukemia yang menjalani kemoterapi di RSUP Dr. Hasan Sadikin, Bandung.Penelitian ini menggunakan metode deskriptif kuantitatif dengan modifikasi instrumen yang dikembangkan oleh Munoz et al (2008) tentang kualitas hidup caregiver penderita kanker. Teknik sampling menggunakan accidental sampling selama 1 bulan sehingga diperoleh sampel sebanyak 33 responden. Hasil penelitian dianalisis menggunakan rumus Skor-T, kemudian diinterpretasikan menggunakan persentase dan distribusi frekuensi.Lebih dari setengah responden yang merawat anak leukemia yang menjalani kemoterapi di RSUP Dr. Hasan Sadikin Bandung memiliki kualitas hidup tinggi (54,5%) dan hampir setengah responden memiliki kualitas hidup rendah (45,5%). Tingkat kualitas hidup yang dipersepsikan oleh sebagian besar keluarga pada masing-masing dimensi adalahrendah (60,6%) pada dimensi fisik, tinggi (51,5%) pada dimensi psikologis, rendah (54,5%) pada dimensi sosial, dan tinggi (51,5%) pada dimensi spiritual.Kualitas hidup keluarga tinggi karena keluarga telah beradaptasi dengan tanggung jawab perawatan sejak anak mengalami sakit. Saran yang dapat diberikan adalah keluarga dapat mempertahankan kualitas hidup dengan cara meningkatkan peran hubungan personal dan sosial dengan tenaga kesehatan profesional dalam usaha memperoleh informasi, dukungan, serta pengalaman dalam merawat anak dengan penyakit kronis.Kata Kunci: leukemia anak, kemoterapi, kualitas hidup keluarga
Hubungan Perilaku Sakit Dalam Aspek Psikososial Dengan Kualitas Hidup Remaja Thalasemia Yanitawati, Yanitawati; Mardhiyah, AI; Widianti, Efri
KEPERAWATAN Vol 5, No 1 (2017): JURNAL KEPERAWATAN
Publisher : LPPM BSI Bandung

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ABSTRAKPerilaku sakit dapat dikonseptualisasikan sebagai respon seseorang terhadap ancaman kesehatan yang dirasakan. Respon ini yang mendorong seseorang untuk mempersepsikan ancaman kesehatan yang mendasari timbulnya perilaku sakit. Perilaku sakit menurut konsep abnormal illness behaviour yang dikembangkan oleh Pilowsky adalah suatu respon seseorang dari gangguan keadaan sakit yang menimbulkan perilaku sakit abnormal. Munculnya perilaku sakit pada individu sakit bisa dianggap perilaku yang normal. Namun bila perilaku sakit pada individu tersebut menimbulkan aspek psikososial yang berlebihan dan mengarah negatif, maka perilaku sakit pun akan menjadi perilaku sakit abnormal. Penilitian ini bertujuan untuk mengetahui hubungan perilaku sakit dalam aspek psikososial dengan kualitas hidup remaja thalasemia Penelitian ini adalah penelitian kuantitatif korelasional dengan sampel 63 responden remaja thalasemia kisaran usia 14 – 19 tahun. Pengumpulan data menggunakan kuesioner Illness Behavior Questionnaire (IBQ) dari Pilowsky dan Spence (1983) dan kuesioner PedsQL dari Dr. Varni. Pengolahan data menggunakan analisis univariat dan analisis bivariat dengan menggunakan uji spearman. Hasil penelitian menunjukan perilaku sakit dalam aspek psikososial pada kategori tinggi sebanyak 50.8 persen dan kualitas hidup remaja thalasemia pada kategori rendah 54.0 persen. Terdapat hubungan yang signifikan antara perilaku sakit dalam aspek psikososial dengan kualitas hidup remaja thalasemia. Berdasarkan hasil penelitian ini untuk memberikan informasi kepada teman sejawat agar dalam pelaksanaan pengelolaan remaja thalasemia dapat membuat suatu program layanan konseling , family advocacy dan health teaching guna meminimalkan perilaku sakit dalam aspek psikososial yang berhubungan dengan kualitas hidup remaja thalasemia. Kata Kunci: Kualitas hidup, Perilaku sakit, Remaja Thalasemia. ABSTRACTIll behavior can be conceptualized as a persons response to the perceived health threats. Abnormal illness behavior according to concepts developed by Pilowsky is a response to a person from a state of pain disorders that cause abnormal illness behavior. The emergence of pain in the sick individual behavior can be considered normal behavior. However, if the behavior of these individuals inflict pain on psychosocial aspects of the excessive and negative lead, then the ill behavior will be abnormal illness behavior. This research aims to determine the relationship of pain behavior in the psychosocial aspects of the quality of life of teenagers with thalassemia. This research was a quantitative study with a sample of 63 thalassemia adolescent respondents ranging from 14-19 years old. Data collection using Illness Behavior Questionnaire (IBQ) of Pilowsky and Spence (1983) and PedsQL of Dr. Varni. Data processing using univariate and bivariate analysis using the Spearman test. The results showed psychosocial aspects of illness behavior with high category as much as 50.8 percent and 54.0 percent had low quality of life. There was significant relationship between psychosocial aspects of illness behavior with thalassemia adolescent quality of life. The use of counseling services, family advocacy and health teaching were essential in the implementation of the management of adolescent with thalassemia and minimize the ill behavior in the psychosocial aspects related to the quality of life. Keywords: Quality of life, illness Behavior, Adolescent Thalassemia.
Gambaran Self-Efficacy Ibu dengan Anak yang sedang menjalani Pengobatan Tuberkulosis di Poliklinik Spesialis Anak Rsud Cibabat Cimahi Nabilah, Nabilah; Mardhiyah, Ai; Widianti, Efri
Jurnal Keperawatan Jiwa Vol 4, No 1 (2016): Mei 2016
Publisher : Jurnal Keperawatan Jiwa

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Abstract

Introduction: One of important thing of treatment on children tuberculosis is a parent’s existence as a taking medicine guard (PMO) with their roles and tasks. Therefore, it’s important that PMO has a good self-efficacy. The purpose of this research is to describe self-efficacy of mother with children in tuberculosis treatment at paediatric’s polyclinic of RSUD Cibabat Cimahi. Method: The research used descriptive quantitative method with purposive sampling and involving 84 mothers as participant. The data was collected by using closed questionnaire based on self-efficacy theory from Albert Bandura. Results: The result showed that several of participant have a low self-efficacy (53,6%) and the other have a high self-efficacy (46,4%). The result of this research give suggestion to the hospital for creating an appropriate program with phsycosocial approachement , and for nurses, it can be a suggestion that the nurses must give a comprehensive and holistic nursing intervention then doing an accurate nursing intervention, from assessment until the interventions.
MASALAH PSIKOSOSIAL PADA PENYANDANG TALASEMIA USIA SEKOLAH DI POLIKLINIK TALASEMIA RSUD SUMEDANG Nurvitasari, Julvia; Mardhiyah, Ai; Nurhidayah, Ikeu
Jurnal Keperawatan Komprehensif Vol 5, No 1 (2019): Jurnal Keperawatan Komprehensif
Publisher : STIKep PPNI Jawa Barat

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Abstract

Masalah psikososial pada penyandang talasemia usia sekolah dapat berdampak negatif pada perkembangan, pendidikan, gangguan perilaku, depresi, dan isolasi sosial. Penelitian ini bertujuan untuk mengidentifikasi masalah psikososial pada penyandang talasemia usia sekolah di Poliklinik Talasemia Rumah Sakit Umum Daerah Sumedang. Penelitian ini merupakan penelitian deskriptif kuantitatif, populasinya adalah orang tua penyandang talasemia usia sekolah di Poliklinik talasemia RSUD Sumedang. Sejumlah 52 responden berpartisipasi dalam penelitian ini dan diambil dengan total sampling. Pengukuran masalah psikososial menggunakan kuesioner Pediatric Symptoms Checklist-17 dari Jellinek. Data dianalisis menggunakan analisis deskriptif yaitu persentase. Hasil penelitian didapatkan bahwa kurang dari setengah (31%) anak mengalami masalah psikososial. Berdasarkan dimensi, kurang dari setengah anak mengalami masalah internal (40,3%), serta sebagian kecil anak mengalami masalah eksternal (7,7%) dan perhatian 11,5%. Simpulan penelitian ini yaitu anak talasemia memiliki psikososial yang baik, namun terdapat kecenderungan anak rentan mengalami masalah psikososial. Upaya yang dapat dilakukan perawat adalah preventif melalui deteksi masalah psikososial sejak dini dan berkesinambungan untuk mengidentifikasi adanya masalah psikososial, sehingga dapat diantisipasi sejak dini
Skrining Perilaku Remaja Di Lembaga Pembinaan Khusus Anak (LPKA) Kelas II Bandung Agustine, Eska Madya; Sutini, Titin; Mardhiyah, Ai
Jurnal Keperawatan Komprehensif Vol 4, No 1 (2018): Jurnal Keperawatan Komprehensif
Publisher : STIKep PPNI Jawa Barat

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Abstract

AbstrakRemaja yang menjalani kehidupan di Lembaga Pembinaan Khusus Anak (LPKA) akan berbeda dengan kehidupan teman-teman seusianya, mereka tidak merasakan kebebasan seperti kehidupan di luar LPKA, dengan kondisi seperti ini akan terjadi beberapa masalah perilaku pada remaja tersebut. Tujuan penelitian ini untuk mengetahui gambaran perilaku remaja di Lembaga Pembinaan Khusus Anak (LPKA) Kelas II Bandung. Metode penelitian yang digunakan yaitu deskriptif kuantitatif dengan teknik total sampling. Responden dalam penelitian ini sebanyak 56 orang dengan menggunakan analisis distribusi frekuensi. Instrumen yang digunakan menggunakan Strenght and Difficulties Questionnaire (SDQ), sebanyak 25 item pernyataan. Nilai validitas 0,012 dan nilai reliabilitas 0,773. Hasil penelitian ini menunjukkan 38 responden (67,9%) memiliki perilaku normal, 10 responden (17,9%) memiliki perilaku borderline dan 8 responden (14,2%) memiliki perilaku abnormal. Perilaku abnormal ini ditunjukkan dengan gejala sebagian besar responden mengalami kecemasan, kekhawatiran dan kegelisahan. Sebagian kecil responden berada pada kategori perilaku abnormal dan borderline. Oleh karena itu, perlu diperhatikan kembali aspek perilaku remaja di LPKA melalui kegiatan-kegiatan pembinaan agar tidak terdapatnya masalah perilaku dalam remaja tersebut. AbstractThe adolescents who live in the Youth Detention Center (Indonesia: LPKA) will have a different living from their peers, they do not feel the freedom like living outside of LPKA, with this condition there will be some behavioral problems in these adolescents. The purpose of this study was determining the description of adolescents’ behavior in the LPKA Class II Bandung. The research method was using descriptive quantitative by total sampling technique. Respondents in this study were 56 people using distribution frequency analysis. Instruments was adopting Strength and Difficulties Questionnaire (SDQ), as many as 25 items statement. The validity value was 0.012 and the reliability value was 0.773. The results of this study showed 38 respondents (67.9%) had normal behavior, 10 respondents (17.9%) had borderline behavior, and 8 respondents (14.2%) had abnormal behavior. This abnormal behavior was indicated by symptoms of the most respondents who experienced anxiety, worry, and restlessness. A small percentage of respondents were in the category of abnormal and borderline behavior. Therefore, it is necessary to re-take a concern about the adolescents’ behavior aspects in LPKA through coaching activities so that there will be no behavioral problems in those adolescents.
HUBUNGAN SIBLING RIVALRY DENGAN CEDERA PADA ANAK USIA BALITA DI DESA CIPACING KECAMATAN JATINANGOR Anggraeni, Anggoro Susan; MArdhiyah, Ai; Nurhidayah, Ikeu
Jurnal Keperawatan Komprehensif Vol 4, No 2 (2018): Jurnal Keperawatan Komprehensif
Publisher : STIKep PPNI Jawa Barat

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Abstract

Latar belakang. Sibling rivalry terjadi pada anak usia balita yang memiliki saudara kandung, kecemburuan dan kebencian menyebabkan kompetisi untuk mendapatkan perhatian dari orangtua. Dampak sibling rivalry antara lain dapat menimbulkan risiko cedera fisik pada anak. Tujuan penelitian ini adalah untuk mengidentifikasi hubungan sibling rivalry dengan kejadian cedera pada anak usia balita di Desa Cipacing Kecamatan Jatinangor. Metode. Rancangan penelitian yang digunakan adalah deskriptif korelasi dengan pendekatan cross sectional. Sampel penelitian sebanyak 47 responden yang dipilih meggunakan teknik total sampling. Instrumen sibling rivalry dari penelitian Vevandi (2015). Instrumen cedera dikembangkan dari WHO. Data dianalisis menggunakan distribusi frekuensi dan ujia Spearman-Rank. Hasil. Hasil penelitian menunjukkan 31 responden (66%) memiliki anak yang mengalami sibling rivalry pada tingkat sedang dan 28 responden (59,6%) anak mengalami cedera ringan. Terdapat hubungan yang lemah antara sibling rivalry dengan cedera pada anak usia balita di Desa Cipacing Kecamatan Jatinangor (p-value=0,048; r-value=0,290). Kesimpulan. Hasil penelitian menyarankan diperlukannya edukasi tentang pencegahan kecelakaan pada anak (bimbingan antisipasi pada orangtua).
Gambaran Self-Efficacy Ibu dengan Anak yang sedang menjalani Pengobatan Tuberkulosis di Poliklinik Spesialis Anak Rsud Cibabat Cimahi Nabilah, Nabilah; Mardhiyah, Ai; Widianti, Efri
Jurnal Keperawatan Jiwa (JKJ): Persatuan Perawat Nasional Indonesia Vol 4, No 1 (2016): Mei 2016
Publisher : Universitas Muhammadiyah Semarang

Show Abstract | Download Original | Original Source | Check in Google Scholar | Full PDF (382.452 KB) | DOI: 10.26714/jkj.4.1.2016.21-30

Abstract

Introduction: One of important thing of treatment on children tuberculosis is a parent’s existence as a taking medicine guard (PMO) with their roles and tasks. Therefore, it’s important that PMO has a good self-efficacy. The purpose of this research is to describe self-efficacy of mother with children in tuberculosis treatment at paediatric’s polyclinic of RSUD Cibabat Cimahi. Method: The research used descriptive quantitative method with purposive sampling and involving 84 mothers as participant. The data was collected by using closed questionnaire based on self-efficacy theory from Albert Bandura. Results: The result showed that several of participant have a low self-efficacy (53,6%) and the other have a high self-efficacy (46,4%). The result of this research give suggestion to the hospital for creating an appropriate program with phsycosocial approachement , and for nurses, it can be a suggestion that the nurses must give a comprehensive and holistic nursing intervention then doing an accurate nursing intervention, from assessment until the interventions.
Needs of parents in critically ill infants care in the Neonatal Intensive Care Unit (NICU) Hendrawati, Sri; Fatimah, Sari; Fitri, Siti Yuyun Rahayu; Mardhiyah, Ai; Nurhidayah, Ikeu
Jurnal Keperawatan Vol 9, No 1 (2018): JANUARI
Publisher : University of Muhammadiyah Malang

Show Abstract | Download Original | Original Source | Check in Google Scholar | Full PDF (390.278 KB) | DOI: 10.22219/jk.v9i1.4651

Abstract

Infants hospitalization in the neonatal intensive care unit adversely affect for infants and parents. Efforts that can be developed to minimize the negative impact is by applying family centered care. The first step is to identify needs of parents. In previous study examined the differences in needs of particular groups of parents. This study aimed to identify the needs of parents in critically ill infants care in the neonatal intensive care unit. The research method was descriptive quantitative design. The samples were 45 respondents and data collection was done by using questionnaires NICU Family Need Inventory. Data analysis was done by score mean. This research has been carried out in the NICU Government Hospital of Bandung Raya. The quantitative result indicated that parents with critically ill infants in  the NICU need assurance most (M = 3,90), followed by information (M = 3,82), proximity (M = 3,76), support (M = 3,49), and comfort (M = 3,37). Needs of parents are focused on the wellbeing of their infants. In doing nursing care, in addition to improving care to the infants, the nurses also should pay attention to needs of parents related to the assurance that their infants get the best care, open communication, and close contact with their infants. By identifying the needs of parents in the NICU, it can allow nurses to integrate the needs of parents into family centered care so that parents can meet these needs, get satisfaction, and can improve the quality of life infants.
Incident of Mucositis and The Factors that Influence it on Children with Cancer Who Received Chemotherapy Hendrawati, Sri; Nurhidayah, Ikeu; Mediani, Henny Suzana; Mardhiyah, Ai
Jurnal Keperawatan Vol 10, No 2 (2019): Juli
Publisher : University of Muhammadiyah Malang

Show Abstract | Download Original | Original Source | Check in Google Scholar | Full PDF (274.542 KB) | DOI: 10.22219/jk.v10i2.5498

Abstract

Chemotherapy shows high effectiveness, but also has side effects, including mucositis. Mucositis can cause pain, difficulty sleeping, eating disorders, mood, and activity, which has implications for the quality of life of children. The purpose of this study was to identify the incidence of mucositis and the factors that influence the incidence of mucositis in cancerous children receiving chemotherapy treatment. This research method is descriptive correlational analysis with cross sectional design. Consecutive sampling technique was used to establish respondents as research samples so as to get 60 respondents. Data were analyzed univariately and bivariately. Bivariate analysis was performed with Chi square test and 2 mean difference test to see differences in the mean values of mucositis before and after chemotherapy. The results showed that almost all cancer children who received chemotherapy had 53 people (88.3%) and a small portion, 7 people (11.7%) had no mucositis. There was a significant difference in the mean value (p = 0,000) between before and after chemotherapy with an increase in the average mucositis value of 3.12. The research shows that there is a significant relationship (p <0.05) between previous mucositis experience (p = 0,000), type of cancer (p = 0.025), type of chemotherapy (p = 0.010), and duration of therapy (p = 0.027) and the incidence of mucositis. Meanwhile nutritional status was not related to the incidence of mucositis (p = 0.077). Nurses, as health workers who most often contact with patients, should be able to improve nursing care in cancer children who get chemotherapy in minimizing the occurrence of mucositis by conducting routine mucositis and oral care assessments.
Screen Fatigue During Online Learning Among First Grade of Nursing Students Yosep, Iyus; Sakti, Dimas Wibawa; Mardhiyah, Ai; Maulana, Indra; Hernawaty, Taty; Lukman, Mamat
Jurnal Keperawatan Komprehensif (Comprehensive Nursing Journal) Vol. 10 No. 2 (2024): JURNAL KEPERAWATAN KOMPREHENSIF (COMPREHENSIVE NURSING JOURNAL)
Publisher : STIKep PPNI Jawa Barat

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.33755/jkk.v10i2.631

Abstract

Aims: Online learning causes mental health problems in students. Fatigue among students can hinder concentration, memory retention, and cognitive functioning, leading to decreased academic productivity, heightened stress, and disrupted personal and social lives. Screen fatigue among students can be attributed to factors such as prolonged screen exposure, inadequate breaks, poor ergonomics, multitasking, content nature, sleep deprivation, screen brightness, glare, visual discomfort, and reduced physical interaction during online classes. Method: This study used a quantitative descriptive design. The population in this study were first-year nursing students during online learning. The sample technique used total sampling. The sample in this study amounted to 180 respondents. Data collection used the Zoom Exhaustion & Fatigue Scale (ZEF Scale). Univariate data analysis to describe the frequency of screen fatigue levels in students. Results: The results of this study indicate that the majority of students have a moderate level of screen fatigue, namely 77 respondents (42.8%). Then respondents with low screen fatigue category were 45 people (25%). Then respondents with high screen fatigue category were 58 people (32.2%). This shows that student screen fatigue is still high, so lecturers and students must care about each other's mental health problems during online learning. Conclusion: Screen fatigue is a problem experienced by students during online learning, this data becomes data for universities to develop learning methods that are effective in reducing the problem of screen fatigue in students. Nursing Implications: The implication of this research is that there is data for universities and lecturers in providing psychological services to students during online learning.
Co-Authors Aat Sriati Adistie, Fanny Agustine, Eska Madya Ahmad Yamin Anggraeni, Anggoro Susan Ayu K.W, Fauziah Dyan Baeti, Rahmawati Nur Bambang Priadi Damayanti, Siti Nur DESI APRIANI, DESI Dewi, Kurnia Meishinta Efri Widianti Ema Arum Rukmasari Fadilah, Arifah Afkar Fathaddin, Asma Teja asih Fatimah, Sari Fitri, Siti Yuyun Rahayu Yuyun Gusgus Ghraha Ramdhanie Hafitriany, Syifa Aulia Harun, Hasniatisari Hazmi, Helmy Hendrawati Hendrawati Henny Suzana Mediani Hikmat, Rohman Ikeu Nurhidayah Imas Rafiyah Indra Maulana, Indra Iwan Shalahuddin Iyus Yosep Jubaedah, Dede Kirana, Anggita Dyah Kurniawan Kurniawan Laili Rahayuwati Lestari, Andini Tri Mamat Lukman, Mamat Maryam, Nenden Mulya, Adelse Prima Nabilah Nabilah Nenden Nur Asriyani Maryam Neng Heni Nurhaeni Nina Sumarni Nita Fitria Nur Oktavia Hidayati Nurlaila Fitriani Nurvitasari, Julvia Panduragan, Santhna Letchmi PRILIANA GAMAYANTI, PRILIANA Putri, Hani Amelia RACHMAWATI KUSUMA WARDANI Rachmawati, Hanna Nabila Radinka, Evania Altsa Rahayu, Nindy Sofiani Rakhmawaty, Windy Ristina Mirwanti, Ristina RR. Ella Evrita Hestiandari Safitri, Dian Dinnar Eka Sakti, Dimas Wibawa Shaumy, Bella Nadya Sismayadi, Zahrul Insan Siti Yuyun Rahayu Fitri Sri Hendrawati Suryadi, Ardiansyah Ekaputra Suryani Suryani Tarigan, Sri Yenni Br Taty Hernawaty Theresia Eriyani Titin Sutini, Titin Tram, Nguyen Thi Bich Tuti Pahria Widiastuti, Maria Yosephine Windy Rakhmawati Witdiawati Witdiawati, Witdiawati Yanitawati Yanitawati, Yanitawati Yanti, Silvya Dwi Yudianto, Kurniawan