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Journal : Jurnal NERS

PERSEPSI ANAK DAN ORANG TUA TENTANG KUALITAS HIDUP ANAK PENDERITA DIABETES MELLITUS TIPE 1 Agustini, Nur -; Allenidekania, Allenidekania; Efendi, Meriam
Jurnal NERS Vol 11, No 1 (2016): Jurnal Ners
Publisher : Universitas Airlangga

Show Abstract | Download Original | Original Source | Check in Google Scholar | Full PDF (1167.315 KB) | DOI: 10.20473/%oj.Ners111%y51-55

Abstract

Type-1Diabetes mellitus (T1D) management is important to increase the quality of life in diabetic children. This research aimed to explore and to compare the parents and children perspective in the quality of life related to T1D. Cross sectional method was used to 35 dyad children (8-18 years old) and their parents. Children have been registered in top referral hospital in Indonesia. They filled the PedsQL® Module Diabetes 3.2 by self-report. Data were analyzed by t-test. The characteristic of respondents consist of the children and parents age, length of being diagnoses with T1D and the number of visit in the last 6 months.  Quality of life dimensions were measured in the last month since data collected. It consists of sign and symptom, disease and therapy, T1D management concern related to complication and communication. The result showed that the children mean age was 13.11 + 2.85 years old compared to parents (41.03 + 8.34 years old). The average length of being diagnoses with T1D was 4.54 +2.87 years and the average number of visit in the last 6 months was 5.8 + 1.79. Total score of quality of life from parents and children perspective were 64.41% + 10.97 and 63.09% + 13.25. Moreover, t-test analysis found that there was significant difference in parent perspective compared to the children perspective regarding quality of life related to T1D. In conclusion, children have relatively lower perception in evaluating their quality of life in T1D compared to the parents. Therefore, it is necessary for nurses to explore the influencing factors as well as coping mechanism related to T1D management so that nurses can develop individual nursing plan to increase the T1D childrens quality of life.
Persepsi Anak dan Orang Tua tentang Kualitas Hidup Anak Penderita Diabetes Mellitus Tipe 1 Nur Agustini; Allenidekania Allenidekania; Meriam Efendi
Jurnal Ners Vol. 11 No. 1 (2016): April 2016
Publisher : Universitas Airlangga

Show Abstract | Download Original | Original Source | Check in Google Scholar | Full PDF (1167.315 KB) | DOI: 10.20473/jn.v11i1.1210

Abstract

Introduction: Type-1Diabetes mellitus (T1D) management is important to increase the quality of life in diabetic children. This research aimed to explore and to compare the parents and children perspective in the quality of life related to T1D.Methods: Cross sectional method was used to 35 dyad children (8-18 years old) and their parents. Children have been registered in top referral hospital in Indonesia. They filled the PedsQL® Module Diabetes 3.2 by self-report. Data were analyzed by t-test. The characteristic of respondents consist of the children and parents age, length of being diagnoses with T1D and the number of visit in the last 6 months.  Quality of life dimensions were measured in the last month since data collected. It consists of sign and symptom, disease and therapy, T1D management concern related to complication and communication.Results: showed that the children mean age was 13.11 + 2.85 years old compared to parents (41.03 + 8.34 years old). The average length of being diagnoses with T1D was 4.54 +2.87 years and the average number of visit in the last 6 months was 5.8 + 1.79. Total score of quality of life from parents and children perspective were 64.41% + 10.97 and 63.09% + 13.25. Moreover, t-test analysis found that there was significant difference in parent perspective compared to the children perspective regarding quality of life related to T1D.Conclusion: children have relatively lower perception in evaluating their quality of life in T1D compared to the parents. Therefore, it is necessary for nurses to explore the influencing factors as well as coping mechanism related to T1D management so that nurses can develop individual nursing plan to increase the T1D children's quality of life.
Cultural care behaviors of multidisciplinary health workers in preventing neutropenic fever in children with leukemia after chemotherapy: an Ethnonursing study Naviati, Elsa; Afiyanti, Yati; Allenidekania, Allenidekania; Novieastari, Enie
Jurnal Ners Vol. 19 No. 1 (2024): FEBRUARY 2024
Publisher : Universitas Airlangga

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.20473/jn.v19i1.50681

Abstract

Introduction: Neutropenic fever is commonly found in children with leukemia after chemotherapy. Fever occurs when children's immunity decreases after chemotherapy, and they are prone to infection. This study aims to describe the cultural care behaviors of multidisciplinary health workers in preventing neutropenic fever among hospitalized children with leukemia after chemotherapy. Methods: An ethnonursing study was conducted at a cancer referral hospital in Central Java, Indonesia. Data were collected through observation in two Pediatric ward and chemotherapy unit for three months and FGDs and in-depth interviews with health workers who provided care services to leukemia patients post-chemotherapy. Data were collected from 14 informants: six nurses, four doctors, two clinical pharmacists, and two nutritionists. This study employed four phases of Leininger analysis for qualitative data to develop its thematic structures. Results: The analysis of the entire data has revealed five themes: (1) performing antiseptic and aseptic techniques consistently, (2) nurse and dietician collaboration in handling eating difficulties post-chemotherapy, (3) collaborative interactions interdisciplinary in handling medication, (4) patient placement in an isolation room adjusted to patients' conditions, and (5) nurse's challenge to educate patients and their families. Conclusions: Health workers from multiple disciplines play essential roles in preventing neutropenic fever by involving patients, parents, and other family members. It is necessary for the nurses to collaborate with other healthcare professionals and educate patients, and families to participate in the care interventions for these patients in minimizing the occurrence of infection among leukemia patients.
Co-Authors -, Halimah Agnita Utami Agung Waluyo Agus Nugroho, Agus Aldri Frinaldi Alfani Prima Kusumasari Alfhy Septiana Ningsih Alvian Harisandy Amalia Dewi Ariyanti Amallia, Indah Reski Amelia Arnis Aminah, Ai Andriyani, Yulia Anis Isnaeniyah Anton Purkon Patoni Arif Fadllullah Arnoldy, Vincentia Exandy Salvera Baiq Fitria Frisma Lita Bella, Rosalinda Besral . Casman, Casman Chodidjah, Siti Dewi Gayatri Dewi Puriani Dian Ayubi Dian Ramawati Djuria, Syafrina Arbaani Dwi Setiowati El Nino Tunjungsari El Nino Tunjungsari Elfi Syahreni Elly Nurachmah Elsa Naviati Enie Novieastari Erna Julianti Erna Julianti Erna Julianti Etty Rekawati Fajar Tri Waluyanti Fariz Darari Faruq Ainul Yaqin Fetty Rahmawaty Firman Firman Firmus, Herminah Winnie Fitria Masulili Gayatri , Dewi Halimah - Handriani, Hani Hanny Handiyani Happy Hayati Hargiana, Giur Hening Pujasari Ikeu Nurhidayah Imam Ghozali Imami Nur Rachmawati Isna Hanifah Isnaini, Barkah Ita Pursitasari Khoirunnisa Khoirunnisa Kurniawan Kurniawan lilis kurniawati, lilis Lisna Lisna, Lisna Luknis Sabri Maria A. Wijayarini Maria, Riri Maya Sari Meriam Efendi Meriam Efendi, Meriam Muhammad, Gian Rasyiddin Mulyana, Aep Maulid Nanda Sartika Nani Nurhaeni Nartiana, Sari Ni Nyoman Budi Indrayanti Ni Nyoman Budi Indrayanti Nur Agustini Nuraini Hakim Nurati, Okti Eko Nurmalasari Nurmalasari Permaida, Permaida Pradhita Hendriyeni Prasestiyo, Hamudi Puriani, Dewi Puspitasari, Jayanti Dwi Putry Nur Faidah Rachmawati, Anita Resi Putri Naulia Ria Andriani Rikumahu, Marisco Rizany, Ichsan Rokhaidah Rokhaidah Rudi Rudi S., Chiyar Edison Saragih, Betti Arisanti sari, endang puspita Sartika, Nanda Selviany, Melissa Sistina, Norma Siti Utami Dewi, Siti Utami Sri Hendrawati Sri Murtiasih Sri Yona Sriasih, Ni Kadek Sugo, Maria Evarista Sulupadang, Prishilla Sutanto Priyo Hastono Tris Eryando Tuti Nuraini Wahyuningsih, Rita Sri Waluyanti, Fajar T Wanda , Dessie Wardatus Sholihah Wardhani, Rachmayanti Purawita Yati Afiyanti Yati Afiyati, Yati Yeni Rustina Yossie Susanti Eka Putri Zahrawaani, Munqiidz Zesi Aprillia Zulfia, Rahmatuz