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All Journal Jurnal Keperawatan Indonesia Jurnal Ners Indonesia Jurnal NERS MUSTEK ANIM HA Jurnal Promkes: The Indonesian Journal of Health Promotion and Health Education Jurnal Kesehatan Gigi IJNP (Indonesian Journal of Nursing Practices) Jurnal Penelitian Kesehatan Suara Forikes Qanun Medika - Medical Journal Faculty of Medicine Muhammadiyah Surabaya Jurnal Kesehatan Vokasional Syntax Literate: Jurnal Ilmiah Indonesia Jurnal Keperawatan Silampari Media Keperawatan Indonesia International Journal of Nursing and Health Services (IJNHS) Jurnal Perawat Indonesia Indonesian Journal of Nursing Research (IJNR) Jurnal Kesehatan Seminar Nasional Keperawatan Viva Medika: Jurnal Kesehatan, Kebidanan dan Keperawatan Poltekita : Jurnal Ilmu Kesehatan Al-Asalmiya Nursing: Journal of Nursing Sciences Health Information : Jurnal Penelitian Jurnal Persatuan Perawat Nasional Indonesia (JPPNI) Journal of Telenursing (JOTING) Jurnal Aisyah : Jurnal Ilmu Kesehatan Indonesian Journal of Global Health research Jurnal Ilmiah Keperawatan Altruistik Majalah Kesehatan Indonesia JOURNAL LA MEDIHEALTICO Alauddin Scientific Journal Of Nursing (ASJN) An Idea Health Journal Nursing Information Journal Jurnal Keperawatan Klinis dan Komunitas (Clinical and Community Nursing Journal) Quality : Jurnal Kesehatan Indonesian Journal of Cancer Jurnal Keperawatan Soedirman (The Soedirman Journal of Nursing) Jurnal Keperawatan Malahayati International Journal of Nursing and Health Science Jurnal Ilmiah Keperawatan Altruistik Strada Jurnal Ilmiah Kesehatan (SJIK) Indonesian Journal of Global Health Research
Allenidekania Allenidekania
Departemen Keperawatan Fakultas Ilmu Keperawatan Universitas Indonesia
Humanities Biochemistry, Genetics & Molecular Biology Computer Science & IT Dentistry Education Electrical & Electronics Engineering Engineering Environmental Science Health Professions Immunology & microbiology Languange, Linguistic, Communication & Media Law, Crime, Criminology & Criminal Justice Mechanical Engineering Medicine & Pharmacology Nursing Public Health Social Sciences Veterinary Other

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Parental Adaptation in Caring for Children with Thalassemia: A Meta-Synthesis Setiyowati, Erni; Agustina, Ayuda Nia; Rustina, Yeni; Allenidekania, Allenidekania
Jurnal Keperawatan Soedirman Vol 20 No 3 (2025): Jurnal Keperawatan Soedirman (JKS)
Publisher : Fakultas Ilmu-ilmu Kesehatan

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.20884/1.jks.2025.20.3.17042

Abstract

Thalassemia is a chronic disease that requires lifelong treatment. Children with thalassemia are highly dependent on their parents for daily care and management. This study aims to identify key themes reflecting the challenges, needs, and expectations of parents caring for children with thalassemia through a qualitative meta-synthesis approach based on Roy’s Adaptation Model (RAM). A literature search was conducted in the PubMed, MEDLINE, Scopus, and ScienceDirect databases for English-language articles published between 2014 and 2024. Twelve studies from six countries were analyzed using the Critical Appraisal Skills Programme (CASP). The synthesis identified four meta-themes describing the parents’ adaptation process: (1) physical fatigue and psychosomatic symptoms, (2) psychological stress and parental identity crisis, (3) disruption of family roles and functions, and (4) lack of systemic and social support. These findings emphasize the importance of a multidimensional support approach encompassing emotional, educational, and health policy aspects to improve family quality of life. This study provides a theoretical foundation for family-centered nursing interventions and supports parental resilience.
The Urgency of Screening for Thalassemia Carriers in Indonesia: Policy Analysis Setiyowati, Erni; Rustina, Yeni; Allenidekania, Allenidekania
Majalah Kesehatan Indonesia Vol. 6 No. 4 (2025)
Publisher : Utan Kayu Publishing

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.47679/makein.2025285

Abstract

Thalassemia is a hereditary blood disorder that, while incurable, is entirely preventable through early detection. In Indonesia, an estimated 6–10% of the population carries the thalassemia gene but screening is not a nationwide mandatory. Existing initiatives remain fragmented across regions and target only specific groups, such as prospective brides and grooms in Jakarta or pilot programs in Bekasi Regency. Lack of early screening leads to the birth of thousands of children with thalassemia major, requiring lifelong transfusions and iron chelation therapy that costs the government IDR 800 billion per year. To achieve long-term sustainability, Indonesia must shift from curative to preventive strategies by integrating genetic screening into the national health insurance and reproductive health systems. Policy Ask: Develop a joint regulation between the Minister of Health and the Minister of Religious Affairs, or Minister of Health Regulation (Permenkes), mandating premarital and school-based thalassemia screening as part of national health and marriage registration programs.
The effect of body position on cardiorespiratory status of premature infants: A systematic review Werlyningsih Werlyningsih; Allenidekania Allenidekania; Yeni Rustina; Robiyatul Adawiyah
Malahayati International Journal of Nursing and Health Science Vol. 9 No. 3 (2026): Volume 9 Number 3
Publisher : Program Studi Ilmu Keperawatan-fakultas Ilmu Kesehatan Universitas Malahayati

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.33024/minh.v9i3.2948

Abstract

Background: Preterm infants are a group of infants with a high risk of various health problems, especially respiratory disorders that can affect their oxygenation status and cardiorespiratory function. Body positioning of preterm infants in the neonatal intensive care unit (NICU) is one of the important interventions that can affect lung function and hemodynamic stability Purpose:  To determine the effect of body position on cardiorespiratory status in preterm infants. Method: This systematic review used the PICO search strategy.  The data sources used came from 3 databases namely Pubmed, ProQuest, and ScientDirect. Based on the database, 5 articles were obtained that met the inclusion criteria. Inclusion criteria include respondents are premature infants < 37 weeks gestational age, articles used in the last 10 years (2016 to 2026) and use English. Results: The study showed that position change interventions had a significant effect on the cardiorespiratory status of preterm infants. Pronation (prone) positioning and its variations, such as quarter prone positioning help maintain cardiorespiratory stability of preterm infants. However, there are certain indications and contraindications in the application of pronation position that need to be considered. Conclusion: Pronation and semi pronation positions have been shown to increase lung expansion, oxygen saturation, and decrease respiratory frequency and pulse rate, thus helping to maintain cardiorespiratory stability of preterm infants.
Prevalence of Motor Impairments in Children with Acute Lymphoblastic Leukemia during Chemotherapy: A Systematic Review Desti Elza Muslimah; Mega Hasanul Huda; Allenidekania Allenidekania; Ayu Widya Lestari
Nursing Information Journal Vol. 5 No. 2 (2026): Nursing Information Journal
Publisher : Pusat Penelitian dan Pengabdian Masyarakat STIKES Banyuwangi

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.54832/nij.v5i2.1366

Abstract

Motor impairments are a frequent and disabling consequence of vincristine‑based chemotherapy in children with acute lymphoblastic leukemia (ALL). These deficits can compromise daily functioning and long‑term quality of life. This systematic review aimed to synthesize evidence on the prevalence and characteristics of motor impairments among pediatric ALL patients undergoing chemotherapy.  A comprehensive search was conducted across PubMed, ScienceDirect, Scopus, ClinicalKey, and ClinicalKey Nursing, supplemented by citation tracking. Observational studies published up to May 2025 were screened using the PEOS framework. Ten eligible studies involving 580 children were included. Outcomes assessed encompassed fine motor precision, manual dexterity, coordination, balance, agility, and strength. Motor impairments were consistently reported across all studies, with prevalence varying by treatment phase and country. During induction, prevalence ranged from 48% (USA) to 62.5% (Netherlands). In consolidation, rates reached 75.5% (Colombia). The highest prevalence was observed in the maintenance phase, with Turkey reporting 83.9% overall impairment and specific deficits in fine motor integration (70.6%), strength (74.4%), and upper‑limb coordination (61.1%). Finland showed the lowest overall prevalence (31.8%). Motor impairments are common and persistent in children with ALL receiving vincristine‑based chemotherapy, particularly during the maintenance phase. These findings underscore the need for standardized monitoring protocols, early detection, and timely rehabilitation strategies to mitigate long‑term functional decline and optimize quality of life in pediatric oncology care.
Edukasi Meningkatkan Pengetahuan dan Sikap Ibu dalam Pencegahan Kejang Demam Berulang Jayanti Dwi Puspitasari; Nani Nurhaeni; Allenidekania Allenidekania
Jurnal Persatuan Perawat Nasional Indonesia (JPPNI) Vol 4, No 3 (2019)
Publisher : Persatuan Perawat Nasional Indonesia (JPPNI)

Show Abstract | Download Original | Original Source | Check in Google Scholar | Full PDF (340.881 KB) | DOI: 10.32419/jppni.v4i3.186

Abstract

ABSTRAKLatar Belakang: Kejang demam yang terjadi berulang akan mengakibatkan efek yang buruk bagi anak, terutama untuk kecerdasan dan perkembangan otak. Salah satu cara untuk mencegah kejang demam berulang adalah dengan memberikan edukasi kesehatan kepada ibu. Edukasi kesehatan dapat meningkatkan pengetahuan ibu, sehingga sikap ibu akan berubah kearah positif. Tujuan: untuk mengetahui pengaruh edukasi kesehatan terhadap pengetahuan dan sikap ibu dalam pencegahan kejang demam berulang. Metode: Desain penelitian ini adalah Quasi Experiment dengan teknik pre test and post test nonequevalent control group pada 58 responden (kelompok intervensi=29 dan kelompok kontrol=29). Instrumen yang digunakan dalam penelitian ini adalah kuesioner A, B, C dan media audiovisual. Responden adalah ibu yang memiliki balita pernah mengalami kejang demam dan pernah dirawat di rumah sakit. Kelompok intervensi diberikan edukasi kesehatan tentang pencegahan kejang demam berulang dengan media video, sedangkan kelompok kontrol tidak diberikan intervensi. Analisis yang digunakan dalam penelitian ini adalah analisis bivariat dengan uji paired t-test dan independent t-test dan multivariate dengan MANCOVA. Hasil: ada pengaruh edukasi kesehatan terhadap pengetahuan (p=0,001) dan sikap (p=0,001). Kesimpulan: Edukasi dapat dimasukkan ke dalam rencana asuhan keperawatan ketika anak pertama kali dirawat di rumah sakit karena kejang demam, karena terbukti dapat meningkatkan pengetahuan ibu sehingga ibu dapat mengambil sikap yang positif untuk pencegahan terjadinya kejang demam berulang.Kata kunci: edukasi kesehatan, pengetahuan, sikap, kejang, demamThe Effect of Health Education on Knowledge and Attitude of Mothers in Preventing the Recurrent Febrile Seizures Abstract The Recurrent Febrile Seizures (RFS) could affect the children intelligence and their brain development. Health education is one of the ways in order to prevent the RFS. By providing health education among mothers, it might increase their knowledge and could lead to a positive attitude in preventing the RFS. Aim: This study was aimed at investigating the effect of health education on knowledge and attitude of mothers in preventing the RFS among hospitalized children. Method: This was a quasi-experimental study with pre- and post-test nonequivalent control group with total sample was 58 respondents (intervention group, n=29, and control group, n=29). The instruments used in this study were questionnaire A, B, C and audiovisual media. Respondents in this determination are mothers who have children who have experienced febrile seizures and have been hospitalized. The video guidelines on RFS prevention was performed in the intervention group, while there was no intervention performed in the control group.Data was analysed with univariate (paired t-test and unpaired t-test) and multivariate with MANCOVA. Result: There was a significant effect of health education on knowledge (p=0.001), and attitude (p=0.001). Conclusion: Health education should be included in the nursing care plan when the children with RFS were admitted to the hospital.Keywords: Health education, knowledge, attitude, febrile, seizures
Self-Management Programs of Fatigue Syndrome in Children and Adolescents Living with Chronic Conditions: A Systematic Review Vincentia Exandy Salvera Arnoldy; Allenidekania Allenidekania; Siti Chodidjah; Etty Rekawati
Indonesian Journal of Global Health Research Vol 7 No 3 (2025): Indonesian Journal of Global Health Research
Publisher : GLOBAL HEALTH SCIENCE GROUP

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.37287/ijghr.v7i3.6118

Abstract

Chronic fatigue syndrome is a debilitating illness of unknown cause that affects physical, psychological, emotional, and social aspects of life, manifesting in poor physical stamina, reduced social interaction, and depression. Self-management programs involve the deliberate practice of specific tasks, activities, and behaviors aimed at managing the medical, psychosocial, and daily life impacts of chronic illness. These programs include strategies such as symptom monitoring, adherence to treatment plans, and maintaining healthy practices. Aim to evaluate the effectiveness of self-management programs in reducing fatigue so as to improve quality of life. In a study utilizing the PICO search strategy related to self-management activities for reducing fatigue, 396 articles were found in the Cochrane, PubMed, Medline, Taylor & Francis, ProQuest, ScienceDirect, and Sage databases between 2020-2024; four articles meeting the inclusion criteria were analyzed in depth using quality assessment tools such as PRISMA. The study protocol was registered in the Prospective Register of Systematic Reviews (PROSPERO) with the following registration number: CRD42024622785. Based on the literature search was conducted without restrictions on the start year, including publications up to 2024.", 415 articles were identified, 19 duplicate articles were selected, until 5 eligible articles were obtained based on the selection of design, participant, intervention, and outcome This review concludes that self-management, such as lifestyle advice, web-based programs, and physical activity, is effective in reducing fatigue, and to achieve better quality of life and fatigue reduction outcomes, tailored to patient needs and conditions needed to be strengthened.
Feeling as A Bullying Victim” Perceptions of Adolescent Female with Thalassemia Major: A Qualitative Study Nanda Sartika; Allenidekania Allenidekania; Nani Nurhaeni
Indonesian Journal of Global Health Research Vol 5 No 4 (2023): Indonesian Journal of Global Health Research
Publisher : GLOBAL HEALTH SCIENCE GROUP

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.37287/ijghr.v5i4.2251

Abstract

Adolescent female with thalassemia major disease experience various psychological, emotional, and social behavioral problems that affect their perceptions of being a woman in the future. The purpose of this study was to explore the perceptions of female teenagers with thalassemia major about being woman. This study uses a descriptive phenomenological approach. The method used was in-depth interviews using semi-structured interview guidelines, and data was analyzed using the Colaizzi method. There were 12 participants selected using a purposive sampling technique. The results was based on the theme, fear of ill- treatment, with the sub-themes, fear of bullying from friends and fear of physical violence from men. Adolescent female with thalassemia major in this study experienced bullying both verbally and physically. Verbally, adolescents receive various kinds of negative labels that are often said by their friends. Three teenagers in this study received physical abuse (physical violence) from their friends and their father. Adolescents with this disease experience fear and worry about their future as women, especially with the experience of treatment from those around them.
The Effectiveness of Bathing and Massage Methods on Stress Levels and Physiological Parameters in Premature Infants in the NICU: A Systematic Review Suci Rahayu; Allenidekania Allenidekania
Indonesian Journal of Global Health Research Vol. 8 No. 3 (2026): Indonesian Journal of Global Health Research
Publisher : GLOBAL HEALTH SCIENCE GROUP

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.37287/ijghr.v8i3.1191

Abstract

Premature infants are at high risk of physiological and neurological disturbances due to organ immaturity. Although bathing is often considered a calming routine, it may act as a significant sensory stressor for premature infants in the neonatal intensive care unit (NICU). This study aimed to evaluate the effectiveness of various bathing methods and complementary interventions in reducing stress levels and maintaining physiological stability in premature infants. A systematic review was conducted following the PRISMA 2020 guidelines. Literature searches were performed across five electronic databases PubMed, Scopus, ScienceDirect, ProQuest, and Sage Journals as well as additional website sources, covering publications from 2016 to 2025. The search used combinations of keywords including premature infant, preterm infant, bathing, stress, physiological stability, and NICU. A total of 634 records were identified, with 50 duplicates removed. After title and abstract screening, 70 full-text articles were assessed for eligibility. Seven randomized controlled trials involving 523 premature infants met the inclusion criteria and were included in the final review. Data were analyzed using narrative synthesis. Swaddled bathing was consistently more effective than conventional bathing methods in maintaining physiological stability and reducing acute stress responses. Complementary interventions, such as aromatherapy massage and mother-led multisensory stimulation, were beneficial as post-bathing strategies to enhance recovery and relaxation. Swaddled bathing is an effective and recommended bathing method for premature infants in the NICU to reduce stress and support physiological stability.  
Associations of Fatigue with Quality of Life and Self-Efficacy in Adolescents with Type 1 Diabetes Mellitus: A Cross-Sectional Study Nur Agustini; Allenidekania Allenidekania; Yulia Yulia
An Idea Health Journal Vol 6 No 03 (2026)
Publisher : PT.Mantaya Idea Batara

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.53690/ihj.v6i03.761

Abstract

Background: Fatigue is a common concern among adolescents with Type 1 Diabetes Mellitus (T1DM) and may affect their quality of life and disease management. However, the relationship between fatigue, quality of life, and self-efficacy remains insufficiently understood. This study aimed to examine the relationship between fatigue and quality of life and self-efficacy among adolescents with T1DM. Methods: A cross-sectional correlational study was conducted with 110 adolescents aged 10–19 years with T1DM. Diabetes-related quality of life was assessed using the PedsQL Diabetes Module, fatigue using the Short Fatigue Scale, and self-efficacy using the Pediatric Rating of Chronic Illness Self-Efficacy (PRCISE) scale. Spearman correlations and Chi-square tests were used for analysis. Results: The results showed that 82.7% of participants experienced fatigue, with 17.3% categorized as having severe fatigue. Fatigue was moderately negatively correlated with quality of life (r = −0.547, p < 0.001) and self- efficacy (r = −0.475, p < 0.001). A significant association was also found between gender and fatigue level (p = 0.029), with severe fatigue reported more frequently among females (24.2%) than males (8.3%). Conclusion: Fatigue among adolescents with T1DM is associated with lower quality of life, lower self-efficacy, and gender differences. Self-efficacy may play an important role in reducing fatigue and supporting adolescent well-being.
The impact of navigators on the satisfaction of patients with cancer: A Systematic Review Herminah Winnie Firmus; Allenidekania Allenidekania; Tuti Nuraini; Yossie Susanti Eka Putri
Malahayati International Journal of Nursing and Health Science Vol. 8 No. 2 (2025): Volume 8 Number 2
Publisher : Program Studi Ilmu Keperawatan-fakultas Ilmu Kesehatan Universitas Malahayati

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.33024/minh.v8i2.862

Abstract

Background: Cancer is a disease or part of cells in the body that grows abnormally in parts of the human body and can spread to other parts of the body. Cancer can occur in children and adults. Patient navigators serve as intermediaries between individuals and the healthcare team, assisting patients in addressing and overcoming obstacles that may hinder access to medical services. They offer personalized support throughout the continuum of care, guiding patients through the various stages of their treatment journey. Purpose: To determine the effect of navigators on cancer patient satisfaction. Method: A systematic review approach in line with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. The author used several research article databases, namely PubMed, ProQuest, Science Direct and Sage. 3 articles met the criteria and were analyzed and criticized using the JBI instrument. Results: Patient navigator is an effective strategy to improve diagnosis time, reduce anxiety, and increase patient satisfaction. Conclusion: The role of patient navigator in the context of cancer care can increase patient satisfaction and self-efficacy.
Co-Authors -, Halimah Agnita Utami Agung Waluyo Agus Nugroho, Agus Aldri Frinaldi Alfani Prima Kusumasari Alfhy Septiana Ningsih Alvian Harisandy Amalia Dewi Ariyanti Amallia, Indah Reski Amelia Arnis Aminah, Ai Andriyani, Yulia Anis Isnaeniyah Anton Purkon Patoni Arif Fadllullah Ayu Widya Lestari Ayuda Nia Agustina Baiq Fitria Frisma Lita Bella, Rosalinda Bergita Olivia Hali Samon Besral . Casman, Casman Chatarina Umbul Wahyuni Chodidjah, Siti Desti Elza Muslimah Dewi Gayatri Dewi Puriani Dian Ayubi Dian Ramawati Dwi Setiowati El Nino Tunjungsari El Nino Tunjungsari Elfi Syahreni Elly Nurachmah Elsa Naviati Enie Novieastari Erna Julianti Erna Julianti Erna Julianti Erni Setiyowati Etty Rekawati Fajar Tri Waluyanti Fariz Darari Faruq Ainul Yaqin Feri Atmajaya Fetty Rahmawaty Firman Firman Fitria Masulili Halimah - Handriani, Hani Hanny Handiyani Happy Hayati Hargiana, Giur Hening Pujasari Herminah Winnie Firmus Ikeu Nurhidayah Imam Ghozali Imami Nur Rachmawati Isna Hanifah Isnaini, Barkah Ita Pursitasari Jayanti Dwi Puspitasari Kurniawan Kurniawan lilis kurniawati, lilis Lisna Lisna, Lisna Luknis Sabri Maria A. Wijayarini Maria Evarista Sugo Maria, Riri Maya Sari Mega Hasanul Huda Meriam Efendi Meriam Efendi, Meriam Muhammad, Gian Rasyiddin Mulyana, Aep Maulid Nanda Sartika Nanda Sartika Nani Nurhaeni Nani Nurhaeni Nartiana, Sari Ni Nyoman Budi Indrayanti Ni Nyoman Budi Indrayanti Nona Mulyani Aronggear Nur Agustini Nuraini Hakim Nurati, Okti Eko Nurmalasari Nurmalasari Permaida, Permaida Pradhita Hendriyeni Prasestiyo, Hamudi Puriani, Dewi Putry Nur Faidah Rachmawati, Anita Resi Putri Naulia Ria Andriani Rikumahu, Marisco Rizany, Ichsan Robiyatul Adawiyah Robiyatul Adawiyah Rokhaidah, Rokhaidah Rudi Rudi S., Chiyar Edison Saragih, Betti Arisanti sari, endang puspita Selviany, Melissa Sistina, Norma Siti Chodidjah Siti Utami Dewi, Siti Utami Sri Hendrawati Sri Murtiasih Sri Yona Sriasih, Ni Kadek Suci Rahayu Sulupadang, Prishilla Sutanto Priyo Hastono Syafrina Arbaani Djuria Tris Eryando Tuti Nuraini Tuti Nuraini Vincentia Exandy Salvera Arnoldy Wahyuningsih, Rita Sri Waluyanti, Fajar T Wanda , Dessie Wardatus Sholihah Wardhani, Rachmayanti Purawita Werlyningsih Werlyningsih Yati Afiyanti Yati Afiyati, Yati Yeni Rustina Yossie Susanti Eka Putri Yulia Yulia Zesi Aprillia Zulfia, Rahmatuz