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Journal : NurseLine Journal

Burden of Parents in Children with Disability at Sekolah Luar Biasa Negeri Cileunyi Yusi Desriyani; Ikeu Nurhidayah; Fanny Adistie
NurseLine Journal Vol 4 No 1 (2019): May 2019
Publisher : Faculty of Nursing, Universitas Jember

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.19184/nlj.v4i1.8696

Abstract

Children with disabilities are children who have limited whether physical, intellectual, mental, sensory, and multiple disability. Children with disabilities tend to have poor quality of life due to low ability fulfilled basic needs independently. Therefore, they need special treatment from their parents and that could be the reasons of burden for parents as primary caregiver. This research aims to find the general burden of parents in disabilities children who attended Sekolah Luar Biasa (SLB) Negeri Cileunyi. This is a quantitative descriptive research with cross sectional approach. The population in this research were 158 parents (father/mother) of children with disability. The sample in this research was obtained 67 people by using convenience sampling technique. The research used Zarit Burden Interview (ZBI) as research instrument. The data have been obtained and analyzed by univariate analysis. The results will be analyzed by using frequency distribution. The result showed that 46.3% means little or no burden, 37.3% means mild to moderate burden, 14,9% means moderate to severe burden and 1,5% means severe burden. The conclusions of this research show that almost half of respondents are in the category of little or no burden. However, there were still respondents who had a severe burden, this is due to parents and children characteristics, poor self-control and lack of social support. Nurses need to provide family center care such as counseling and providing health education to parents with disabilities children and optimize existing support groups.
Self-Efficacy Parents in Undergoing Child Cancer Treatment at the Rumah Kanker Anak Cinta Bandung Sri Hendrawati; Ikeu Nurhidayah; Ai Mardhiyah
NurseLine Journal Vol 4 No 1 (2019): May 2019
Publisher : Faculty of Nursing, Universitas Jember

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.19184/nlj.v4i1.8911

Abstract

The incidence of cancer in children is increasing and has entered into the top ten most prevalent diseases in children. Cancer in children have an impact both physical and psychosocial changes that can occur as a result of the disease and the side effects of treatment. The treatment for children with cancer should be done continuously and lasts a long time, so the role of parents in supporting the treatment is very important. Parents are the important factors to implementation of family centered care in the treatment and care for children with cancer. The implementation of family centered care is influenced by the self efficacy belief of parents. This study aimed to identify parental self efficacy in the treatment of children with cancer at the Rumah Kanker Anak Cinta Bandung. This study used a descriptive quantitative. The sample in this study was chosen by consecutive sampling, and found 40 samples within a month. Data collection using questionnaires developed based on Bandura theory (1997). Data was analyzed using descriptive analyzes by frequency and persentation. The results showed that the majority of parents who have children with cancer have a high self efficacy as many as 23 people (57.5%). Parents who have children with cancer in this study had a high ability or confidence (self efficacy) in treating children with cancer. So that it can be very supportive for the process of care, treatment, and cure of children, which expected to improve the quality of life for children with cancer.
Co-Authors Aan Nuraeni Aan Nuraeni Aan Nuraeni Aat Sriati Achadiyanti, Destia Adelse Prima Mulya Adistie, Fanny Ahmad Yamin Ai Mardhiyah Ai Mardhiyah Ai Mardhiyah AI MARDHIYAH, AI Ajeng Andini Sutisnu Allenidekania Allenidekania Amelia, Vira Anastasia Anna Anggoro Susan Anggraeni Anggraeni, Anggoro Susan Anisa Saraswati Annisa Nurbaiti Rahmah Annisa R Hanifah Asti Oktovianti Atlastieka Praptiwi Atmadiyanti, Ayu Lita Ayu Lita Atmadiyanti Cabanes, Ria C Citra Windani Mambang Sari Depi Lukitasari Desy Indra Yani Dewi Gayatri Dewi, Syafira Dian Palupi Kusuma Dyah Setyorini Dyah Setyorini Eka Puspita Endah Rahayu Eni Noviyani Eva Nurlaela Fadilah, Tria Nurhayyu Fanny Adistie Fanny Adistie Fanny Adistie Fatimah, Sari Gadis Pratiwi Priyono Gusgus Ghraha Ramdhanie Guztap Jabarul Haq Habsyah Saparidah Agustina Hamidah Nurhalimah Harvien Amellia Hardanti Hendrawati Hendrawati Henny S Mediani Henny S. Mediani Henny Suzana Mediani Hidayati, Nuroktavia Iceu Amira Ihda Al Adawiyah Mz Imas Rafiyah Indah Benita Tiwery Indriana, Vivi Vitriani Isna Hanifah Ita Vusfita Iwan Suhendar Jakariya Gilang Ramadhan Julvia Nurvitasari Kana Wadu, Novita Marcelina Karti Nur Aryanti Khaedar, Mochamad Kusman Ibrahim Laili Rahayuwati Ligina, Neng Lani Lilis Lusiani Lukitasari, Depi M. Haerul Anwar M. Randi Gentamandika Putra, M. Randi Gentamandika Mamat Lukman Maria komariah Maziyya, Nur Mediani , Henny Suzana Mega Tamara Mentari, Vanessa Zian Milah Kamilah Mira Trisyani Koeryaman Mufaj, Elda Nurfadila Mutiara Mutiara Nani Nurhaeni Nenden Nur Asriyani Maryam Neng Lani Ligina Nisa Lailatun Noor Ambya Novi Novianti Nur Oktavia Hidayati Nur Oktavia Hidayati Nur Oktavia Hidayati Nur Oktavia Hidayati Nur Oktavia Hidayati Nur Oktavia Hidayati Nurjanah, Lilis Siti Nuroktavia Hidayati Nurvitasari, Julvia Nur’aeni, Aan Poddar, Sandeep Pratama, Oktarian Pratiwi, Yayu Prawesti, Sabrina Junieta Rahmawati R Ramdhona, Dinyatul Arba Ratih Kusuma Dewi Regita, Yasmina Dwi Rhamelani, Putri Rindang Ekawati Rindang Ekawati Ristina Mirwanti Ristina Mirwanti Saraswati, Anisa Sari Fatimah Sari Fatimah Sari Lestari Sheizi Prista Sari Siti Yuyun Rahayu Fitri Sri Hendrawati Sri Hendrawati Suryani Suryani Susi Susanah Sutini, Tititn Teti Sholehati Titin Sutini Triliana Purwadesi Yuliar Wafa Fida Az-zahra Waluya, Jajang Ganjar Wiwi Mardiah Yani, Pebri Yanti Herawati Yayu Eka Kartika Yuli Anggia Yusi Desriyani