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All Journal Jurnal Keperawatan Jurnal Keperawatan Soedirman (The Soedirman Journal of Nursing) Dharmakarya : Jurnal Aplikasi Ipteks Untuk Masyarakat Jurnal Promkes: The Indonesian Journal of Health Promotion and Health Education JURNAL PENDIDIKAN KEPERAWATAN INDONESIA Jurnal Obsesi: Jurnal Pendidikan Anak Usia Dini Jurnal Surya Medika Jurnal Keperawatan Padjadjaran Jurnal Keperawatan Komprehensif (Comprehensive Nursing Journal) Journal of Nursing Care Jurnal Perawat Indonesia Jurnal Ilmu Keperawatan Anak Media Karya Kesehatan Pediomaternal Nursing Journal Indonesian Journal of Global Health research Jurnal Kesehatan STIKes IMC Bintaro Jurnal Kampus STIKes YPIB Majalengka Indonesian Journal of Cancer Jurnal Keperawatan 'Aisyiyah Healthcaring: Jurnal Ilmiah Kesehatan Prosiding Seminar Nasional Keperawatan Universitas Muhammadiyah Surakarta Jurnal Kampus STIKes YPIB Majalengka Jurnal Riset Ilmiah NERS Jurnal Keperawatan Kesmas: Jurnal Kesehatan Masyarakat Nasional (National Public Health Journal)
Ikeu Nurhidayah
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Journal : Pediomaternal Nursing Journal

 1 
Quality of Life of Preschool-Age Children with Thalassemia Major Nurhidayah, Ikeu
Pediomaternal Nursing Journal Vol. 8 No. 2 (2022): VOLUME 8 NO 2 SEPTEMBER 2022
Publisher : Universitas Airlangga

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.20473/pmnj.v8i2.31889

Abstract

Introduction: Health problems caused by thalassemia disease process and treatment affect patients who suffer from this disease, including pediatric patients who are in their preschool age. These problems can interfere with the child's physical, emotional, social, and school functions. This study aimed to describe the quality of life of preschool-age children with thalassemia major in Sumedang and Garut areas. Methods: In this study, a quantitative descriptive design was applied to a sample of 63 parents of children with 3-6 years old children with thalassemia who were recruited using the total sampling approach. The quality of life as a variable was measured using the PedsQLTM 4.0 Generic Core Scales for parent-proxy reports. Data collected were then analyzed for the mean score and categorized into good or poor quality of life, which were then expressed in frequencies and percentages. Results: Results showed that the mean score of quality of life was 75.94, with the mean scores for physical function, emotional function, social function, and school function of 75.79, 71.98, 87.46, and 60.95, respectively. The majority of preschool-age children with thalassemia have poor quality of life. The dimension that receives the most negative influence is the school function. Conculusion: It is suggested that nurses can improve the quality of life of these children by identifying the impaired functions and providing the appropriate care, such as facilitating the needs of these children to receive blood transfusions in hospitals.
Co-Authors Aan Nuraeni Aan Nuraeni Aat Sriati Aat Sriati Achadiyanti, Destia Adistie, Fanny Ai Mardhiyah Ai Mardhiyah AI MARDHIYAH, AI Allenidekania Allenidekania Amelia, Vira Anggraeni, Anggoro Susan Anisa Saraswati Asti Oktovianti Atmadiyanti, Ayu Lita Ayu Lita Atmadiyanti Cabanes, Ria C Citra Windani Mambang Sari Depi Lukitasari Dewi Gayatri Dewi, Syafira Dian Palupi Kusuma Dyah Setyorini Eka Puspita Eni Noviyani Eva Nurlaela Fadilah, Tria Nurhayyu Fanny Adistie Fatimah, Sari Gusgus Ghraha Ramdhanie Guztap Jabarul Haq Harvien Amellia Hardanti Henny S. Mediani Henny Suzana Mediani Hidayati, Nuroktavia Ihda Al Adawiyah Mz Indah Benita Tiwery Indriana, Vivi Vitriani Isna Hanifah Ita Vusfita Iwan Suhendar Julvia Nurvitasari Kana Wadu, Novita Marcelina Karti Nur Aryanti Khaedar, Mochamad Kusman Ibrahim Laili Rahayuwati Ligina, Neng Lani Lilis Lusiani Lukitasari, Depi M. Randi Gentamandika Putra, M. Randi Gentamandika Mamat Lukman Maria komariah Mediani , Henny Suzana Mega Tamara Mentari, Vanessa Zian Mira Trisyani Koeryaman Mufaj, Elda Nurfadila Nani Nurhaeni Nenden Nur Asriyani Maryam Nur Maziyya Nur Oktavia Hidayati Nur Oktavia Hidayati Nurjanah, Lilis Siti Nuroktavia Hidayati Nurvitasari, Julvia Poddar, Sandeep Pratama, Oktarian Pratiwi, Yayu Prawesti, Sabrina Junieta Rahmawati R Ramdhona, Dinyatul Arba Ratih Kusuma Dewi Regita, Yasmina Dwi Rhamelani, Putri Ristina Mirwanti Saraswati, Anisa Sari Fatimah Sheizi Prista Sari Siti Yuyun Rahayu Fitri Sri Hendrawati Sri Hendrawati Sri Hendrawati Sri Hendrawati Sri Hendrawati Susi Susanah Sutini, Tititn Teti Sholehati Titin Sutini, Titin Triliana Purwadesi Yuliar Wafa Fida Az-zahra Waluya, Jajang Ganjar Wiwi Mardiah Yani, Pebri Yanti Herawati