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All Journal Jurnal Keperawatan Jurnal Keperawatan Jiwa (JKJ): Persatuan Perawat Nasional Indonesia Jendela Nursing Journal (JNJ) Indonesian Journal of Cancer Jurnal Keperawatan BSI Jurnal Kreativitas PKM Jurnal Keperawatan Komprehensif (Comprehensive Nursing Journal) JPP Jurnal Kesehatan Poltekkes Palembang Jurnal Ners Jurnal Aisyah : Jurnal Ilmu Kesehatan Indonesian Journal of Global Health research MAHESA : Malahayati Health Student Journal INDOGENIUS Jurnal Keperawatan 'Aisyiyah Jurnal Keperawatan Profesional (KEPO) Jurnal Kesehatan Metro Sai Wawai Journal of Nursing Culture and Technology Jurnal Kesehatan An-Nuur Holistik Jurnal Kesehatan Jurnal Info Kesehatan
AI MARDHIYAH, AI
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Biochemistry, Genetics & Molecular Biology Chemistry Computer Science & IT Dentistry Education Environmental Science Health Professions Immunology & microbiology Languange, Linguistic, Communication & Media Medicine & Pharmacology Nursing Physics Public Health Social Sciences Veterinary Other

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Empathy Training for Reducing Bullying Behavior among Adolescents: A Scoping Review Hikmat, Rohman; Yosep, Iyus; Hernawaty, Taty; Suryani, Suryani; Mardhiyah, Ai; Widianti, Efri; Maulana, Indra; Rafiyah, Imas; Sutini, Titin; Sriati, Aat
JENDELA NURSING JOURNAL Vol 9, No 1 (2025): JUNE 2025
Publisher : Poltekkes Kemenkes Semarang

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.31983/jnj.v9i1.10524

Abstract

Background: Bullying is a serious problem in adolescents. The negative impact of bullying is the occurrence of physical and psychological problems in adolescents. These problems can be prolonged and lead to criminal behavior in adolescents. Empathy is one of the aspects that influence bullying behavior.Purpose: to describe empathy training in reducing bullying behavior in adolescents.Method: This research design used a scoping review. Searching strategy used PRISMA Extension for Scoping Review with major keywords are empathy training, bullying, and adolescents. The databases used were CINAHL, PubMed, and google scholar. The inclusion criteria used were original research, quasi experiment design, publication period of the last 10 years (2012-2022), and using English. Data analysis used a descriptive approach.Results and Discussion: The authors found 5 articles that discuss empathy therapy in reducing bullying behavior significantly (p value 0.05). Empathy therapy is carried out with discussion activities, role playing, counseling, and using empathy therapy modules. This intervention is carried out by involving the teacher as a companion during the intervention process.Conclusion: Empathy therapy needs to be given to the perpetrator or victim so that repeated bullying behavior does not occur in adolescents. So that empathy therapy can be a reference for schools and health workers in preventing bullying in students at school.
The Effect of Motivational Interviewing on Adolescent Life Skill Toward Risky Behaviors in Indonesia: A Queasy Experimental Design Yosep, Iyus; Mardhiyah, Ai; Tram, Nguyen Thi Bich
Jurnal Keperawatan Komprehensif (Comprehensive Nursing Journal) Vol. 11 No. 2 (2025): JURNAL KEPERAWATAN KOMPREHENSIF (COMPREHENSIVE NURSING JOURNAL)
Publisher : STIKep PPNI Jawa Barat

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.33755/jkk.v11i2.850

Abstract

Background: Adolescents are vulnerable to engaging in risky behaviors that compromise their health. Motivational interviewing (MI) is a brief intervention that can promote positive behavior changes. Objectives: This study aimed to examine the effect of MI on adolescent life skills related to risky behavior prevention in Indonesia. Methods: A quasi-experimental design with a pre-test/post-test control group was conducted between April and May 2021. The intervention group received five weekly MI counseling sessions (30–45 minutes each). Life skills were assessed using the Life Skill Training Questionnaire for High School Students (LSTQ-HS). An ANCOVA test was used to compare post-intervention scores between groups, controlling for baseline differences. Results: The intervention group’s total life skills score significantly increased from 94.57 (SD=14.06) to 117.80 (SD=4.71) (p<0.001). Significant improvements were also observed across refusal skills, assertiveness, relaxation, and self-control (p<0.05). ANCOVA analysis confirmed a significant difference between the intervention and control groups post-intervention (F=94.82, p<0.001). Conclusions: Motivational interviewing effectively enhanced adolescents' life skills related to risky behavior prevention. Integrating MI into school-based life skills programs may support adolescent health. Future studies with rigorous designs and larger sample sizes are recommended to strengthen these findings.
Faktor yang Mempengaruhi Psychological Well Being Pada Orang Tua yang Memiliki Anak dengan Thalasemia: A Scoping Review Priadi, Bambang; Mardhiyah, Ai; Rakhmawati, Windy
MAHESA : Malahayati Health Student Journal Vol 5, No 6 (2025): Volume 5 Nomor 6 (2025)
Publisher : Universitas Malahayati

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.33024/mahesa.v5i6.18048

Abstract

ABSTRACT Thalassemia is a chronic condition that burdens the entire family. Parents with children with thalassemia experience critical psychological impacts, which cause deep anxiety, isolation, and self-neglect. To identify the description of PWB of parents with thalassemia children and the factors that influence it. Scoping review with Arksey & O’Malley framework. A literature search was conducted using three primary databases: EbscoHost: Medline Ultimate, Pubmed, Scopus, and one search engine, Google Scholar. The keywords were “Psychological Well-being OR PWB AND Parent OR Parental OR Family AND Thalassemia”. A total of 9 articles were analyzed. Several studies reported that there are still quite a lot of parents with thalassemia children who tend to have low PWB. Factors influencing the level of PWB are social activities, education, knowledge, economic status, self-acceptance, gratitude, religious practices, and effective coping strategies. Many parents experience psychological problems due to their child's illness. Psychological support for them is critical as part of comprehensive medical care along with clinical management for parents with children with thalassemia. Keywords: Psychological well being, Thalasemia, Parents  ABSTRAK Talasemia merupakan kondisi kronis yang membebani kehidupan seluruh keluarga. Orang tua dengan anak penderita talasemia mengalami dampak psikologis yang kritis, yang menyebabkan kecemasan mendalam, isolasi, dan pengabaian diri. Untuk mengidentifikasi gambaran PWB orang tua dengan anak thalassemia dan faktor yang memengaruhinya. Scoping review dengan framework Arksey & O’Malley. Pencarian literatur dari tiga database utama: EbscoHost: Medline Ultimate, Pubmed, Scopus, dan satu search engine yaitu Google Scholar. Kata kunci yang digunakan adalah “Psychological Well-being OR PWB AND Parent OR Parental OR Family AND Thalassemia”. Sebanyak 9 artikel yang dianalisis. Beberapa studi melaporkan masih cukup banyak orang tua dengan anak thalassemia memiliki PWB yang cenderung rendah. Faktor yang dinilai memengaruhi tingkat PWB adalah aktivitas sosial, Pendidikan, pengetahuan, status ekonomi, penerimaan diri, rasa syukur, praktik keagamaan, dan strategi koping efektif. Banyak orang tua yang mengalami masalah psikologis akibat penyakit yang diderita anaknya. Dukungan psikologis bagi mereka sangat penting sebagai bagian dari perawatan medis yang komprehensif beserta manajemen klinis bagi orang tua dengan anak penderita thalassemia. Kata Kunci: Orang tua, Psychological well Being, Talasemia.
Praktik Perawatan Diri Pada Orang Tua dengan Anak Talasemia Mayor Usia Sekolah di Bandung Raya Suryadi, Ardiansyah Ekaputra; Mardhiyah, Ai; Sumarni, Nina
Jurnal Ners Vol. 9 No. 2 (2025): APRIL 2025
Publisher : Universitas Pahlawan Tuanku Tambusai

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.31004/jn.v9i2.43972

Abstract

Latar belakang: Talasemia pada anak tidak hanya berdampak pada kehidupan anak, tetapi juga mempengaruhi kesejahteraan orang tua. Sebagai caregiver, orang tua menghadapi berbagai tantangan yang berdampak pada kesehatan fisik, emosional, dan mental, sehingga sering kali kurang memiliki waktu untuk melakukan praktik perawatan diri (self-care). Perawatan diri yang baik berkorelasi dengan kesejahteraan yang baik pada orang tua dan perawatan terhadap anak. Tujuan: Penelitian deskriptif kuantitatif ini bertujuan untuk mengetahui praktik perawatan diri orang tua yang memiliki anak dengan talasemia usia sekolah di Bandung Raya. Metode: Penelitian ini menggunakan pendekatan survei deskriptif kuantitatif. Sampel penelitian dilakukan menggunakan teknik purposive sampling pada orang tua dengan anak talasemia usia sekolah di Bandung Raya. Penelitian di lakukan pada seting komunitas yang di kumpulkan melalui Perhimpunan Orang Tua Penderita Thalasemia Indonesia (POPTI). Alat ukur penelitian menggunakan Caregiver Well-Being Scale (CWBS) yang diadaptasi dari Tebb (2013) dengan koefisien realibilitas (α=0.865). Analisis data menggunakan deskriptif kuantitatif.. Hasil:  Sebanyak 84 orang tua dengan anak talasemia dianalisis pada penelitian ini. Hasil penelitian menunjukan bahwa sebagian besar orang tua yang memiliki anak talasemia mayor usia sekolah masih berada pada tingkat praktik perawatan diri yang buruk (51,2%). Perawatan diri dimensi fisik, emosional, dan relasional memiliki hasil dominan buruk, sementara pada dimensi psikologis dan profesional menunjukan hasil baik lebih banyak, dan pada dimensi spiritual memiliki distribusi yang seimbang antara baik dan buruk. Simpulan: Praktik perawatan diri pada orang tua dengan talasemia masih menunjukan praktik yang rendah. Dengan demikian diperlukan program yang mendukung peningkatan perawatan diri orang tua di komunitas. Kata kunci: anak usia sekolah, praktik perawatan diri, talasemia.   Abstract Background: Thalassemia in children not only affects their lives but also impacts the well-being of their parents. As caregivers, parents face various challenges that affect their physical, Emotional, and mental health, often leaving them with little time to engage in self-care practices. However, good self-care practices are essential for improving their well-being and ensuring optimal care for their children. Objective: This study aims to survey the self-care practice among parents with thalassemia children In Bandung. Methods: This study used a quantitative descriptive approach.  The sample of this study use purposive sampling among  parents with with school-age children diagnosed with major thalassemia in Bandung area. This study was collected in the community setting through Perhimpunan Orang Tua Penderita Talasemia Indonesia (POPTI), This study was measured using the Caregiver Well-Being Scale (CWBS), adapted from Tebb (2013) with a reliability coefficient of α=0.865. Data analysis was conducted using univariate testing with frequency distribution. Results: The study involved 84 parents with children thalassemia. The results showed that the majority of parents with school-age children diagnosed with major thalassemia had bad self-care practices (51.2%). The physical, emotional, and relational self-care dimensions predominantly showed bad results, while the psychological and professional dimensions had a higher proportion of good results. Meanwhile, the spiritual self-care dimension showed a balanced distribution between good and bad categories. Conclusion: The self-care among parents with thalassemia showed low level. Therefore, the program aimed to improve self-care among parents are needed, especially in community setting.
Latihan pernapasan untuk meningkatkan saturasi oksigen pada anak dengan infeksi saluran pernapasan bawah: A scoping review Widiastuti, Maria Yosephine; Fitri, Siti Yuyun Rahayu; Mardhiyah, Ai
Holistik Jurnal Kesehatan Vol. 19 No. 3 (2025): Volume 19 Nomor 3
Publisher : Program Studi Ilmu Keperawatan-fakultas Ilmu Kesehatan Universitas Malahayati

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.33024/hjk.v19i3.796

Abstract

Background: Lower respiratory tract infections are a major cause of morbidity and mortality in children. Prompt and effective management is essential to improve child health outcomes. Breathing exercises have been identified as an intervention that can help improve oxygen saturation in children with respiratory distress. However, a deeper understanding of the effectiveness and application of breathing exercises in the context of lower respiratory tract infections remains to be improved. Purpose: To explore and analyze breathing exercises to improve oxygen saturation in children with lower respiratory tract infections. Method: Research scope reviews using Prisma-ScR guidelines. Research leveling and article feasibility criteria using the population, concepts, and context (PCC) approaches with sources taken from the pubmed database, ScienceDirect, and Google Scholar. The keyword used is “Breathing Exercise OR Respiratory Muscle Training AND Children OR Child OR Pediatric OR Childhood AND Oxygen Saturation OR Oxygen Level OR SpO2“. Results: This review identified that breathing exercise interventions, such as balloon blowing, Hoberman Spheres, and modified pursed lip breathing, significantly improved oxygen saturation and respiratory function in children with lower respiratory tract infections. Key findings included decreased breathing difficulty, increased compliance through play-based methods, and clinically significant improvements in respiratory parameters over 3–10 days of intervention. Strategies to optimize outcomes include a structured, play-based approach, frequent short-duration exercises, and integration into routine pediatric care. Conclusion: Game-based breathing exercises have proven effective in increasing oxygen saturation and various respiratory parameters in children with respiratory problems. Every technique mimics the specific advantages, and the right application can be an optimal result for the child's population.   Keywords: Children; Breathing Exercises; Lower Respiratory Tract Infection; Oxygen Saturation.   Pendahuluan: Infeksi saluran pernapasan bawah merupakan salah satu penyebab utama morbiditas dan mortalitas pada anak. Penanganan yang cepat dan efektif sangat penting untuk meningkatkan hasil kesehatan pediatrik. Latihan pernapasan telah diidentifikasi sebagai intervensi yang dapat membantu meningkatkan saturasi oksigen pada anak-anak yang mengalami kesulitan bernapas. Namun, pemahaman yang lebih mendalam mengenai efektivitas dan penerapan latihan pernapasan dalam konteks infeksi saluran pernapasan bawah masih perlu ditingkatkan. Tujuan: Untuk mengeksplorasi dan menganalisis latihan pernapasan untuk meningkatkan saturasi oksigen pada anak dengan infeksi saluran pernapasan bawah. Metode: Penelitian scoping review menggunakan panduan PRISMA-ScR. Pertanyaan penelitian dan kriteria kelayakan artikel menggunakan pendekatan population, concept, dan context (PCC) dengan sumber literatur diambil dari database PubMed, ScienceDirect, dan Google Scholar. Kata kunci yang digunakan adalah “Breathing Exercise OR Respiratory Muscle Training AND Children OR Child OR Pediatric OR Childhood AND Oxygen Saturation OR Oxygen Level OR SpO2 “. Hasil: Tinjauan ini mengidentifikasi bahwa intervensi latihan pernapasan, seperti meniup balon, Hoberman Sphere, dan pernapasan bibir menyempit yang dimodifikasi, secara signifikan meningkatkan saturasi oksigen dan fungsi pernapasan pada anak-anak dengan infeksi saluran pernapasan bawah. Temuan kunci meliputi penurunan kesulitan bernapas, peningkatan kepatuhan melalui metode berbasis permainan, dan perbaikan klinis yang signifikan dalam parameter pernapasan selama 3–10 hari intervensi. Strategi untuk mengoptimalkan hasil mencakup pendekatan berbasis permainan yang terstruktur, latihan durasi pendek yang sering, serta integrasi ke dalam perawatan pediatrik rutin. Simpulan: Latihan pernapasan berbasis permainan terbukti efektif dalam meningkatkan saturasi oksigen dan berbagai parameter pernapasan pada anak-anak dengan gangguan pernapasan. Setiap teknik memiliki kelebihan spesifik, dan penerapan yang tepat dapat memberikan hasil yang optimal bagi populasi pediatrik   Kata Kunci: Anak; Infeksi Saluran Pernapasan Bawah; Latihan Pernapasan; Saturasi Oksigen.
Harapan anak usia sekolah penyandang talasemia yang bergantung pada transfusi Yanti, Silvya Dwi; Mardhiyah, Ai; Hendrawati, Sri
Holistik Jurnal Kesehatan Vol. 19 No. 6 (2025): Volume 19 Nomor 6
Publisher : Program Studi Ilmu Keperawatan-fakultas Ilmu Kesehatan Universitas Malahayati

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.33024/hjk.v19i6.646

Abstract

Background: Children with transfusion-dependent thalassemia require lifelong blood transfusion and iron chelation treatment, resulting in stressful conditions that interfere with the child's psychosocial well-being and may lead to hopelessness. Hopelessness leads to loss of hope and non-compliance with treatment. Purpose: To identify the expected picture of school-age children with thalassemia who are dependent on transfusions. Method: This study is a quantitative descriptive study with univariate analysis. This study used a total sampling technique totaling 44 school-age children with transfusion-dependent thalassemia with parents who are POPTI members. This study used the Child Hope Scale instrument which has been translated and has been tested valid and reliable. Results: That the level of expectations of respondents was in the moderate category as many as 29 people (65.9%). Likewise, the pathway dimension as many as 25 people (56.8%) and the agency dimension as many as 28 people (63.6%) are in the moderate category. Conclusion: The expectancy level of children with transfusion-dependent thalassemia is mostly in the moderate category. Suggestion: Future researchers can further examine the influence of hope on children with thalassemia and relate it to other variables such as quality of life or factors related to hope in school-age children with thalassemia who depend on transfusions.   Keywords: Children; Hope; School Age; Thalassemia; Transfusion.   Pendahuluan: Anak penyandang talasemia yang bergantung pada transfusi membutuhkan pengobatan transfusi darah dan kelasi besi seumur hidupnya sehingga mengalami kondisi stres yang mengganggu psikososial anak dan dapat terjadi keputusasaan. Keputusasaan menyebabkan penyandang kehilangan harapan dan tidak mematuhi pengobatan. Tujuan: Untuk mengidentifikasi gambaran harapan anak usia sekolah penyandang talasemia yang bergantung pada transfusi. Metode: Penelitian deskriptif kuantitatif dengan analisis univariat. Penelitian ini menggunakan teknik total sampling berjumlah 44 anak usia sekolah penyandang talasemia yang bergantung pada transfusi dengan orang tua anggota POPTI. Penelitian ini menggunakan instrumen Child Hope Scale yang sudah diterjemahkan dan sudah teruji valid serta reliabel. Hasil: Tingkat harapan responden berada dalam kategori sedang sebanyak 29 penyandang (65.9%). Begitu pula dimensi pathway sebanyak 25 penyandang (56.8%) dan dimensi agency sebanyak 28 penyandang (63.6%) berada pada kategori sedang. Simpulan: Tingkat harapan anak penyandang talasemia yang bergantung pada transfusi sebagian besar berada dalam kategori sedang. Saran: Bagi peneliti selanjutnya dapat meneliti lebih lanjut mengenai analisis pengaruh harapan pada anak penyandang talasemia dan menghubungkan dengan variabel lainnya seperti kualitas hidup ataupun mengenai faktor-faktor yang berhubungan dengan harapan anak usia sekolah penyandang talasemia yang bergantung pada transfusi.  
Program Pemberian Makanan Tambahan (PMT) sebagai Intervensi Penurunan Angka Stunting dengan Pendampingan Keluarga di Desa Jelegong Mardhiyah, Ai; Mediani, Henny Suzana; Rakhmawati, Windy; Hendrawati, Sri; Maryam, Nenden Nur Asriyani; Fitria, Nita
Jurnal Kreativitas Pengabdian Kepada Masyarakat (PKM) Vol 8, No 10 (2025): Volume 8 No 10 (2025)
Publisher : Universitas Malahayati Lampung

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.33024/jkpm.v8i10.22653

Abstract

ABSTRAK Stunting merupakan permasalahan gizi yang masih menjadi perhatian utama di Indonesia, termasuk di Desa Jelegong, Kecamatan Rancaekek, Kabupaten Bandung. Angka stunting di Desa Jelegong terbilang cukup tinggi, yaitu sebanyak 39 balita. Salah satu pendekatan yang mungkin untuk mengurangi stunting adalah dengan membeli lebih banyak makanan (PMT), yang didampingi dengan penyuluhan mengenai gizi seimbang melalui media leaflet kepada keluarga. Untuk mengidentifikasi pelaksanaan pendampingan keluarga dalam pemberian makanan tambahan sebagai intervensi untuk menurunkan angka stunting di Desa Jelegong. Kegiatan ini menggunakan metode observasi, wawancara, dan sosialisasi. Terdapat kenaikan berat badan dan tinggi badan dari sebelum dan sesudah dilakukan pemberian makanan tambahan, dengan rata-rata kenaikan berat badan sebesar 0,37 kg dan kenaikan tinggi badan sebesar 0,94 cm. Kegiatan ini telah membantu meningkatkan kesadaran keluarga balita tentang pentingnya pemberian makanan tambahan, pemberian ASI eksklusif, pemenuhan gizi seimbang, serta pentingnya lingkungan dan sanitasi yang sehat dan layak bagi tumbuh kembang balita. Kata Kunci: Intervensi, Pemberian Makanan Tambahan (PMT), Pendampingan Keluarga, Stunting  ABSTRACT Stunting is a nutritional problem that remains a major concern in Indonesia, including in Jelegong Village, Rancaekek District, Bandung Regency. The stunting rate in Jelegong Village is quite high, with 39 toddlers affected. A possible approach for reducing stunting is to buy more food (PMT), accompanied by counseling on balanced nutrition through leaflet media for families. This report aims to identify the implementation of family assistance in the provision of supplementary feeding as an intervention to reduce stunting in Jelegong Village. The methods used in this activity include observation, interviews, and socialization. There was an increase in body weight and height between before and after giving additional food, with an average increase in body weight of 0.37 kg and an increase in height of 0.94 cm. The results of this activity have helped raise the awareness of families with toddlers about the importance of supplementary feeding, exclusive breastfeeding, balanced nutrition, and the importance of a healthy and suitable environment and sanitation for the growth and development of toddlers. Keywords: Intervention, Provision of Additional Food Giving, Family Assistance, Stunting
Education Level and Illness Perception in Parents of School-Aged Children with Thalassemia Major Fathaddin, Asma Teja asih; Yamin, Ahmad; Mardhiyah, Ai
Jurnal Keperawatan Profesional (KEPO) Vol. 6 No. 1 (2025): Volume 6 Nomor 1 Mei 2025
Publisher : Sarana Ilmu Indonesia (salnesia)

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.36590/kepo.v6i1.1471

Abstract

The education level of parents shapes their mindset and perception of illness, significantly influencing their child’s illness perception, coping strategies, psychological well-being, medication adherence, and physical functioning. This study aimed to identify the relationship between the education level and illness perception of parents with children suffering from thalassemia major. This study used secondary data from previous research conducted within the institution that had not been published. It employed a descriptive analytical method with a cross-sectional approach. The sample was selected using purposive sampling, involving 90 parents as participants. Data were collected using demographic data and the Illness Perception Questionnaire-Revised (IPQ-R) instrument. Data analysis was performed using univariate and bivariate methods, with the chi-square test applied for the bivariate analysis. Among all subject, the majority (51,1%) had a secondary education level. A total of 53,3% of parents had a positive illness perception. The relationship between education level and illness perception was not statistically significant (p-value = 0,813). This study indicated that parents' education level did not have a significant impact on their illness perception. Formal education was not the primary factor influencing the illness perception of parents with school-age children with thalassemia major in Bandung.
Effect of family-centered empowerment model on HOPE of adolescents with thalassemia major Mardhiyah, Ai; Panduragan, Santhna Letchmi; Mediani, Henny Suzana; Yosep, Iyus; Shalahuddin, Iwan; Hafitriany, Syifa Aulia
Jurnal Aisyah : Jurnal Ilmu Kesehatan Vol 9, No 2 (2024): September
Publisher : Universitas Aisyah Pringsewu

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.30604/jika.v9i2.2143

Abstract

Thalassemia Major is a hereditary blood disorder and is a chronic disease that can cause various problems regarding future expectations for sufferers. Adolescents with thalassemia major experience various psychosocial problems which have an impact on decreasing hope, quality of life, interpersonal relationships, self-esteem which results in depression. The aim of this study was to identify the effect of the family centered empowerment model on the hope of adolescents with thalassemia major in Indonesia. This study uses a quasi-experimental design. The sample in this study were 240 adolescents with thalassemia major. Participants were given 4 sessions of family empowerment interventions for 4 weeks. Each session is carried out for 90 minutes. this study uses Children's Hope Scale (CHS) for data collection. Data analysis used independent t test and chi-square. The results of the study showed that the hope score increased significantly after the family-centered empowerment model in the intervention group (P=0.002). In addition, there was a significant difference between the intervention group and the control group in the mean of hope score among adolescents with thalassemia. The family centered empowerment model is an effective intervention to improve the hope for adolescents with thalassemia.
Parental barriers in preventing recurrent thalassemia in children: A qualitative study Mardhiyah, Ai; Yosep, Iyus; Rakhmawati, Windy; Fitri, Siti Yuyun Rahayu; Shalahuddin, Iwan
Jurnal Aisyah : Jurnal Ilmu Kesehatan Vol 9, No 1 (2024): March 2024
Publisher : Universitas Aisyah Pringsewu

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.30604/jika.v9i1.2630

Abstract

Thalassemia is a genetic blood disorder that can cause a heavy burden on families, especially parents whose children suffer from this condition. Parental involvement in preventing thalassemia in children is key, but there are many challenges to be faced. The aim of this study was to explore parental barriers in preventing recurrent thalassemia in children. This research uses a qualitative design with a phenomenological approach. Researchers conducted interviews and focus group discussions with 15 parents of children with thalassemia at a hospital in West Java Province. Data was collected and then analyzed using a phenomenological approach to identify main themes. The results of the study show that the barrier for parents in preventing recurrent thalassemia is the belief that my bloodline is clean, because there are no plans to have more children, so lazy to do screening, busy time, fear, expensive cost, and desire to have another child . This study found that there are various psychosocial and economic factors that influence parents' decisions in preventing thalassemia in their children. Increased education and financial support can help reduce the barriers parents face. More inclusive health policies and social support programs designed to target these factors could improve thalassemia prevention efforts.
Co-Authors Aat Sriati Adistie, Fanny Agustine, Eska Madya Ahmad Yamin Anggraeni, Anggoro Susan Ayu K.W, Fauziah Dyan Baeti, Rahmawati Nur Bambang Priadi Damayanti, Siti Nur DESI APRIANI, DESI Dewi, Kurnia Meishinta Efri Widianti Ema Arum Rukmasari Fadilah, Arifah Afkar Fathaddin, Asma Teja asih Fatimah, Sari Fitri, Siti Yuyun Rahayu Yuyun Gusgus Ghraha Ramdhanie Hafitriany, Syifa Aulia Harun, Hasniatisari Hazmi, Helmy Hendrawati Hendrawati Henny Suzana Mediani Hikmat, Rohman Ikeu Nurhidayah Imas Rafiyah Indra Maulana, Indra Iwan Shalahuddin Iyus Yosep Jubaedah, Dede Kirana, Anggita Dyah Kurniawan Kurniawan Laili Rahayuwati Lestari, Andini Tri Mamat Lukman, Mamat Maryam, Nenden Mulya, Adelse Prima Nabilah Nabilah Nenden Nur Asriyani Maryam Neng Heni Nurhaeni Nina Sumarni Nita Fitria Nur Oktavia Hidayati Nurlaila Fitriani Nurvitasari, Julvia Panduragan, Santhna Letchmi PRILIANA GAMAYANTI, PRILIANA Putri, Hani Amelia RACHMAWATI KUSUMA WARDANI Rachmawati, Hanna Nabila Radinka, Evania Altsa Rahayu, Nindy Sofiani Rakhmawaty, Windy Ristina Mirwanti, Ristina RR. Ella Evrita Hestiandari Safitri, Dian Dinnar Eka Sakti, Dimas Wibawa Shaumy, Bella Nadya Sismayadi, Zahrul Insan Siti Yuyun Rahayu Fitri Sri Hendrawati Suryadi, Ardiansyah Ekaputra Suryani Suryani Tarigan, Sri Yenni Br Taty Hernawaty Theresia Eriyani Titin Sutini, Titin Tram, Nguyen Thi Bich Tuti Pahria Widiastuti, Maria Yosephine Windy Rakhmawati Witdiawati Witdiawati, Witdiawati Yanitawati Yanitawati, Yanitawati Yanti, Silvya Dwi Yudianto, Kurniawan