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EXPLORING THE NEEDS AND LIVED EXPERIENCES OF FAMILY MEMBERS OF CRITICALLY ILL PATIENTS IN THE INTENSIVE CARE UNIT:A PHENOMENOLOGICAL STUDY Budi santoso; Rachmawaty M. Noer; nauza agis irdiana; Yulianti Wulandari
Proceeding of Banten Internasional Conference on Health Advancement and Research Vol. 1 No. 1 (2026): Proceeding Banten International Conference on Health Advancement & Research (BI
Publisher : Poltekkes Kemenkes Banten

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Abstract

In addition to intensive medical care, the condition of critically ill patients also significantly impacts the physical, psychological, social, and spiritual well-being of accompanying family members. Limited access to information, strict visitation rules, and the high-pressure ICU environment often lead to anxiety, stress, and fatigue among family members.This phenomenon highlights the need for a deeper understanding of the needs and experiences of families as caregivers. This study aims to explore the needs and experiences of families of critically ill patients being treated in the ICU of Hospital X in Batam. This study was conducted using a qualitative approach. The research design applied was phenomenology. Data collection was carried out through in-depth interviews, designed in a semi-structured format to allow flexibility in responses. Data were obtained from five participants who were included in this study, selected through the convenience sampling technique. The data analysis process was carried out using thematic analysis. This study identified five main themes. First, Family Sacrifice and Responsibility. Second, The Physical and Emotional Burden of ICU Patient Families. Third, The Meaning of Prayer and Hope in Facing Critical Care. Fourth, The Essence of Togetherness in Patient Care. Fifth, Family Experiences with Hospital Services and Facilities. The study concludes that caregivers experience substantial physical and emotional burdens, yet continue to show deep concern and responsibility. Spiritual support, togetherness, and hospital services significantly shape their overall experience during the care process. Recommendations for Hospitals: Hospitals should provide emotional and educational support for families. Effective communication by healthcare professionals and flexible visitation policies can enhance families' comfort and trust as they accompany and support their loved ones.  Keywords: Intensive Care Unit; family care giver; human needs; phenomenology; holistic care.   In addition to intensive medical care, the condition of critically ill patients also significantly impacts the physical, psychological, social, and spiritual well-being of accompanying family members. Limited access to information, strict visitation rules, and the high-pressure ICU environment often lead to anxiety, stress, and fatigue among family members.This phenomenon highlights the need for a deeper understanding of the needs and experiences of families as caregivers. This study aims to explore the needs and experiences of families of critically ill patients being treated in the ICU of Hospital X in Batam. This study was conducted using a qualitative approach. The research design applied was phenomenology. Data collection was carried out through in-depth interviews, designed in a semi-structured format to allow flexibility in responses. Data were obtained from five participants who were included in this study, selected through the convenience sampling technique. The data analysis process was carried out using thematic analysis. This study identified five main themes. First, Family Sacrifice and Responsibility. Second, The Physical and Emotional Burden of ICU Patient Families. Third, The Meaning of Prayer and Hope in Facing Critical Care. Fourth, The Essence of Togetherness in Patient Care. Fifth, Family Experiences with Hospital Services and Facilities. The study concludes that caregivers experience substantial physical and emotional burdens, yet continue to show deep concern and responsibility. Spiritual support, togetherness, and hospital services significantly shape their overall experience during the care process. Recommendations for Hospitals: Hospitals should provide emotional and educational support for families. Effective communication by healthcare professionals and flexible visitation policies can enhance families' comfort and trust as they accompany and support their loved ones.  Keywords: Intensive Care Unit; family care giver; human needs; phenomenology; holistic care.   In addition to intensive medical care, the condition of critically ill patients also significantly impacts the physical, psychological, social, and spiritual well-being of accompanying family members. Limited access to information, strict visitation rules, and the high-pressure ICU environment often lead to anxiety, stress, and fatigue among family members.This phenomenon highlights the need for a deeper understanding of the needs and experiences of families as caregivers. This study aims to explore the needs and experiences of families of critically ill patients being treated in the ICU of Hospital X in Batam. This study was conducted using a qualitative approach. The research design applied was phenomenology. Data collection was carried out through in-depth interviews, designed in a semi-structured format to allow flexibility in responses. Data were obtained from five participants who were included in this study, selected through the convenience sampling technique. The data analysis process was carried out using thematic analysis. This study identified five main themes. First, Family Sacrifice and Responsibility. Second, The Physical and Emotional Burden of ICU Patient Families. Third, The Meaning of Prayer and Hope in Facing Critical Care. Fourth, The Essence of Togetherness in Patient Care. Fifth, Family Experiences with Hospital Services and Facilities. The study concludes that caregivers experience substantial physical and emotional burdens, yet continue to show deep concern and responsibility. Spiritual support, togetherness, and hospital services significantly shape their overall experience during the care process. Recommendations for Hospitals: Hospitals should provide emotional and educational support for families. Effective communication by healthcare professionals and flexible visitation policies can enhance families' comfort and trust as they accompany and support their loved ones.  Keywords: Intensive Care Unit; family care giver; human needs; phenomenology; holistic care.  
Co-Authors A.Haitami ABDUL RACHMAD BUDIONO Achmad Fauzi Febrianto Madjri Aden Sutisna Adhany, Putri Cheria Adhimas Putra Pradana Ady Rendra Bachtiar Agus Sulistyono Agustinus Budi Santoso Ahmad Sobri Ahmad Syahputra Ahmad Yusof Alfariza Alif Anggara Ambo Tang Amilia, Rendi Kiki Rizki Ananda Firza Ramadhan Andini Andri Anto Andri Andri Anto Tri Susilo, Andri Anto Andriani, Desta angelia@gmail.com Angga Marta Arisandy Anggriya Utami Anisa Putri Anisa Rahmawati Anita Rahmawati Anton Yusuf Arief Kurniawan Arif Ardiansyah Arif rachman Arisca Yuliarto, Angelia Armanto Armanto Arvianto, Ronny Arya Brahmanta Asep Sirojudin Abas Aulia Pratama Bagus Rahmat Budiarto Bintoro Wardiyanto Bolla, Ibrahim Noch Bunga Intan Bunga Intan Bunga Intan Cahyadi, H. Aditya Cane Lukisari Chairil Ezward, Chairil Cindi Wulandari Danang Danang Dasrun Hidayat Derik Dwi Heavyanto Devi Fitriani Dewi Pratiwi Sumarni Dezan Novhansa Didik Artino Jamaludin Dyah Ayu Retno Wulan Dyah Ayu Retnowulan eddy hermanto Edi Susilo Eeng Ahman, Eeng Eko Budi Satoto Eko Siswanto Elfi Indrawanis, Elfi Elisa, Erlin Emy Khoironi Endah Tri Wulandari Endah Wahjuningsih Ery Agus Priyono Fadhila Dhuha Oktiana Fifi Siti Fauziah Yani Firman Gilang Yoego Santoso Gitalansa Martantina Widya Gusti Marlina Gustryanti, Kiki Hadi Nasbey Hanif Assabib Rosyid Hanif Nur Widhiyanti Hansen Kurniawan Hany Aryani Puspita Havida Widyastuti Heny Indriani Heri Puspito Hery Supriyadi Hidayat, Monna Maharani Icha Artyas Annariswati Ilham, Mochamad Imam Supriyadi Imelisa, Rahmi Indah Pratiwi Indra Sumantiawan, Dody Iqbal Yusriansyah Ira Puspitadewi Samsuryaningrum Istiqomah Rosidah Jalaluddin Mubarok Joni Karman Juhaeriah, Juju Jumadi Jumadi Kasimaldi Kulsum, Dewi Umu Kusnendi Lilik Sriwiyati Linda Suanti Lisa Rahmah Agustini Lukman Sunardi M. Afifulloh M. Nelvandi Setiawan Maudi Endah Lestari Meinar Nur Ashrin MeraldaRsoyy Mohamad Yanuarto Bramuda Mohammad Samsul Bakhri Mudyawati Kamaruddin Muh Fadli Muhamad Ainurohman Muhamad Salman Muhamad Salsabil Fadilah Muhammad Cahaya Saputra Muhammad Dzaky Muhammad Nabil Al Faqih Muhammad Umam Mubarok Muhammad Zahran Gibran Muljadi Hartono Mulyati, Rini N, Sri Wulandari Namira Audita nauza agis irdiana Ni Nyoman Putu Martini Nisrina Nabila A`bidah Notodiguno Nova Nadia Firdaus Novendy Yoyada Novi Lestari Nur Pudyastuti Pratiwi Nurcinta Leoni Nursalam Oktaviana, Ria Rindika Pajriah Putri Islamy Putri Danisa Rachmawaty M. Noer rahmadiah, rifa Rahmi Sulistyarini Rian Gunawan Riyan Eko Rosandi Riyanto Setiawan Rizky Ni'ma Febriani Rizky Ramadhan Robert Robert Rudi Kurniawan Rudi Kurniawan Rudyana, Hikmat Safarina, Lina Sakina, Zafira Naja Satria Amiputra Amimakmur Satrio Ageng Rihardi Seprido Seprido, Seprido Setiyo Adi Wibowo Setyo Puguh Widodo Sherly Adelia Shindytya Hari Pratiwi Siti Lady Havivi Siti Nuraisyah Siti Rahayu Sugeng Santoso PN Suhariningsih Suharjiman, Suharjiman Suhendra SUNARTO Susanto Susanto Susiani Suwardi Syamsul Arifin, M. Agus Syarif Dahlan Taufik Rahman Tri Nopsagiarti Upik Rahma Fitri Wahyu Sanjaya Gultom Wahyudi Wahyudi Wayan Darsana Widjiati WIDYASTUTI Widyastuti, Havida Widyawati Ika Putri Wisnusakti, Khrisna Yana Setiawan Yenny Puspitasari Yessy Eka Ambarwati Yudi Kristyawan Yulianti Wulandari Zellius Ragiliawan Zita L. Sarungallo Zulfauzi -