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sri murtini .
Departemen Ilmu Penyakit Hewan Dan Kesehatan Masyarakat Veteriner, Fakultas Kedokteran Hewan, Institut Pertanian Bogor, Bogor, Jawa Barat, Indonesia 16680
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Journal : Jurnal Riset Keperawatan dan Kesehatan

 1 
DUKUNGAN ORANG TUA PADA ANAK DENGAN THALASEMIA Murtini, Sri; Pradika, Jaka; Suriadi
Jurnal Riset Keperawatan dan Kesehatan Vol. 1 No. 1 (2024): Jurnal Riset Keperawatan dan Kesehatan
Publisher : Literasi Intelektual

Show Abstract | Download Original | Original Source | Check in Google Scholar | DOI: 10.71203/jrkk.v1i1.44

Abstract

Background: Thalassemia is a genetically inherited blood disorder that is chronic and difficult to prevent, significantly affecting children’s quality of life physically, socially, and emotionally. Improving quality of life requires not only medical management such as regular transfusions but also positive parental support, including motivation, attention, and nondiscriminatory treatment compared to healthy children. Understanding parental support and interaction is essential for promoting optimal outcomes. Purpose: This study aimed to assess the level of parental support and interaction for children with thalassemia. Methods: A descriptive study was conducted with purposive sampling, including 75 parents of children with thalassemia. Data were collected using structured observation sheets to evaluate parental support and interaction levels, alongside demographic information such as age, sex, education, and occupation. Results: Most respondents were aged 46–55 years (46.7%), female (86.7%), with high school education (53.3%), and homemakers (66.7%). Findings showed that 92.0% of parents provided positive support, and 78.7% demonstrated high interaction with their children. Positive parental involvement was observed in emotional support, attention to health needs, and daily engagement. Conclusion: Parents of children with thalassemia play a crucial role in providing positive support and interaction, contributing to the child’s overall well-being and recovery. Although this study was limited to survey-based observation, it highlights the importance of parental involvement in managing chronic pediatric conditions. Future research using qualitative approaches is recommended to explore in-depth parental experiences and validate these findings.
Co-Authors -, Mujiatun Abas, Farhat Abdul Kohar Abdul Zahid Adi Supryatno Adiningsih, Melani Wahyu Aep Saefullah Afiff , Usamah Agik Suprayogi Agung, Rizki Nugraha Agus Sutedjo Agus Sutejo Agus Suwondo Agus Wijaya Agustin, Riya Ahmad Biharidin Ahmad Furqon Ahmad Yusuf Aida Kurniawati Aisy, Izdihar Alen Ardiansyah Ali Ridho Alimuddin Alimuddin Alimuddin Alimuddin Alimuddin Alimuddin Alimuddin Almegi, Almegi Alzab, Amrie Muhammad Amrie Muhammad Andrijanto Hauferson Angi Angelina N. Tethool Anita Esfandiari Annisa Madyanti Geminastiti Parampasi Ardilasunu Wicaksono Arif Purwo Mihardi Asah Hilaliah Asep Surya Lesmana Ayi Santika Ayu Nurhania Ayundyayasti, Prima Bambang Hariyanto BAMBANG SIGIT WIDODO Bambang Sigit Widodo Bayu Febram Budi Prajogo Budiono, Novericko Ginger Cece Sumantri Christina, Budhi Adhiani Daryono Denny Widaya Lukman Denny Widya Hikman DEWI APRI ASTUTI Dewi Elfidasari Dewi, Arum Kusnila Dock, Chanthoeurn Dwi Hany Yanti Dwi Retno Wulandari Edi Sukmawinata Edi Sukmawinata Edward, Syafri Eka Murtiasri EKO BUDIYANTO Eko Budiyanto Eko Sugeng Pribadi Ekowati Handharyani Elok Budi Retnani Etih Sudarnika Fadirubun, Fahmi Fahrudin Fadjar Satrija Fadjar Satrija Fahmi Fahrudi Fadirubun Fahrudin Fadirubun, Fahmi Fathin, Khusnun Fitria Susanti Fitria Susanti Fitriani, Hervina Gayatrie, Christina Retno Hasanudin, Mohammad Heirina, Anna HELMI -, HELMI Hendra Candra Hendriana, Okta Hilmy, Anggit Athoillah I Gusti Ngurah Kade Mahardika I wayan Teguh Wibawan I.W. Teguh Wibawan Ikhlasul, Galih Intan Tolistiawaty Irma Isnafia Arief Isyana Khaerunnisa Ita Mardiani Zain Izdihar Aisy Jihan Rahmawati Joko Yunianto Prihatin Joned C. Saksana Kamalludin Zarkasie Kathirina Beatrik Riwu Wolo Ketut Prasetyo koekoeh santoso Kusaeri Kusaeri Latifa, Rima Leli Anggreini Leni Maylina Lesmana, Asep Surya Lestari Sitohang, Lidya Lestari, Alif Putra Lidya Lestari Sitohang Lismawati, Rina Listari, Tria Luci Cyrilla M.B.M Malole Made Agus Nurjana Makhmudiyah, Nurul Malonda Maksud Mansur, Ahmad Wafa Mardinawati, Mardinawati Marlefzena Marlefzena Marliyati Marliyati, Marliyati Masrurah Masrurah Melly Pratiwi Setyawati Melly Pratiwi Setyawati Muhammad Asrori Muhammad Fikri Al Habib Muhammad Noor Ardiansah Muharifah, Isnaini Mujiatun, Mujiatun Murtono Murtono Nanis Nurhidayah Natih, Ketut Karuni Nyanakumari Neksidin Neksidin, Neksidin Nensy Tri Putri Niken Ulupi Norma, Getrina Putri Noviriliensi Hartika Novita, Yeni Noviyanti Noviyanti Nugraha, Arifin Budiman Nugraha, Kenda Adhitya Nugrahaeni, Mutiara Nugraheni, Dyah Hapsari Eka Nugroho Hari Purnomo Nurhayati Nurhayati Nurly Faridah Oktandini Sugesti Putri Okti Nadia Poetri Opyn Mananta Pambudi, Slamet Pamungkas, Joko Perdan Prasetya, Sukma Permana, Rangga Pradika, Jaka Prastiyono, Hendri Prima Ayundyayasti Purwaningsih Purwaningsih Putera, Alifi Restu Putra, Idrisi Raliya Putra, Raditya Pradana R Murwarni R. Susanti Raditya, Mochammad Nova Rafiq, Faizal Raharjani, Rani Rahmah, Ririn Ra'ifatur Ramadani Pardian Ramlah Ramlah Rani Raharjanti Ratnawati, Diana Ravinesh Rohit Prasad Retno D Soejoedono Retno D. Soejoedono Retno Damajanti Soejoedono Retno Damayanti Soejoedono Retno Setyaningsih Retno Setyaningsih Retno Setyaningsih Retno Wijayanti Retno Wulansari Ridi Arif Riki Siswandi Rindawati, Rindawati Risqika Akla Velayati Rita Mutia Ronald Tarigan Rosyadi, Humam Rotinsulu, Dordia Anindita Rudi Afnan Rudiansyah Rudiansyah, Rudiansyah RULLY ARDIANSYAH Ruvi, Muhammad Sabitah, Sabrina Azharia Sadida, Afiat Safitria Wulandari Salima, Rianti Samarang Samarang Sarana Sarana Satrija, Esdinawan Carakantara Saukhan, Ghiandra Naufal Syazily Sekar Ayu Chairunnisa Setiawan, Noor Rohman Silistyorini, Cahyo Ismawati Siregar, Fuad Siskamto Siti Gusti Ningrum, Siti Gusti Sitti Chadijah Sofiani, Yani Sri Darwati Sri Estuningsih Sri Nuryati Sri Utaminingsih Sriviyantiningrum, Nurul Sukma Perdana Prasetya Sulistinah Surachmi Setiyaningsih Suriadi Sus Derthi Widhyari Sus Derthi Widhyarti Suwarny Ruhi Tarigan, Indri Nur Krisna TARUNI SRI PRAWAST MIEN KAOMINI ANY ARYANI DEDY DURYADI SOLIHIN Tohiroh, Tohiroh Tria Lestari Triyono Triyono Ulfah Hidayati Ulfatin Khoiriyah Herowati Upik Kesumawati Hadi Vianisa, Putri Virgiawan, Dhimas Bagus Wahono Esthi Prasetyaningtyas Wirabumi, Putu Wiwien Mukti Andriyani Wiwien Mukti Andriyani WIWIK SRI UTAMI Wiwik Sri Utami YANUAR, ADY FITRA Yudhaningsih, Resi Yunitri, Ninik Yus Rusila Noor Yus Rusila Noor Yusuf Ridwan Zubair Arza